Graphic Designer. @youngepilepsy Rep and Digital Trustee. @epilepsyaction Media volunteer. Raising awareness for epilepsy. Check out my epilepsy blog below.
Living with Absence Seizures.
Young Rep Jasmine has spoken with 10 year old Lucy about their experiences with absence seizures, when they were diagnosed and how the support of their families has been so important.
👉 https://t.co/E6n0WaLdlD
#EpilepsyAwareness 💜
Every signature brings us one step closer to ensuring that ALL children with epilepsy receive the mental health support they need.
Please share our petition and help children get #OnTopOfEpilepsy.
#ChildrensMentalHealthWeek
You shared with us how epilepsy has affected your mental wellbeing.
Based on what’s most significant for you, we’re developing a Mental Health Wellbeing Space on The Channel.
The second issue focuses on Isolation: https://t.co/4VkMRyc48y
#TheChannel
We're calling on UK healthcare leaders to provide mental health support for every child with epilepsy.
Sign our petition and help us make this a reality: https://t.co/ATFOIGagli
#OnTopOfEpilepsy#EpilepsyAwareness
Fear of seizures, coping with medication - all take their toll on the mental wellbeing of children and young people with epilepsy.
Your donation will mean a child gets the support they need: https://t.co/cKSpzA92EE
Let’s help children and young people get #OnTopOfEpilepsy 💜
“On reflection one thing I wish I did sooner was talk about how I felt.���
Read Jasmine’s story and share your experience of epilepsy and mental wellbeing.
Find out more: https://t.co/04U0EHmunz
#OnTopOfEpilepsy 💜
No taboos. No shame. No stigma. Just other young people like you, living and thriving with epilepsy.
Join The Hub today and help build your online community, a place to learn and connect to people who understand.
👉 https://t.co/5hevBZIiG3
#TheHub 💜
We are announcing our youth-led campaign, #OnTopOfEpilepsy, advocating for better mental health support for children and young people with epilepsy.
There’s more to epilepsy than seizures. Let’s get on top of it.
Find out more: https://t.co/x6I14ODTUo
#OnTopOfEpilepsy 💜
No taboos. No shame. No stigma. Just other young people like you, living and thriving with epilepsy.
Join The Hub today and help build your online community, a place to learn and connect to people who understand.
👉 https://t.co/5hevBZIiG3
#TheHub 💜
The Channel: A Year in Review!
To celebrate The Channel’s 1st Birthday, we will be sharing some of the most popular pieces of content from the year.
A huge thank you to everyone for their incredible support since the launch of The Channel.
#TheChannel 💜
“If I could tell eleven year old me anything, it would be that you are not alone and it will be okay.”
Our Young Rep Jasmine has opened up about growing up with epilepsy and shared her experience of being a Young Rep.
#TeamPurple 💜
https://t.co/6mpjgB1Txe
“Purple day is important to me because it celebrates how far you’ve come in your own epilepsy journey. For me, epilepsy is both difficult and inspiring.”
#PurpleDay 💜
https://t.co/awLBB6T4HC
Today is Purple Day, a day to continue to spread awareness and raise vital funds for children and young people living with epilepsy.
We would love for you all to join us, so let us know what your purple plans are today and don’t forget to tag us!
#PurpleDay2021 💜
"Today is a Day of Reflection to remember the lives of those who are no longer with us as a result of the pandemic..If you are able, please join us at noon for a minute’s silence to reflect on our loss, as a shared moment of consolation.”
Clare Pelham, Chief Executive
Young Rep Daisy will be baking purple, creating purple puddings to support Purple Day.
"When I was a kid I never knew anybody else like me and that was really hard. Since joining Young Epilepsy I've met so many amazing young adults!"
👉 https://t.co/UxtaGwj0N4
#PurpleDay 💜
Purple Day is just one day, but the difference you make will last a lifetime.
By fundraising this Purple Day, you will be giving hope to many young people across the country who are finding it difficult to cope with their epilepsy.
👉 https://t.co/UxtaGwj0N4
#PurpleDay 💜
Young Rep Anoushka meets Stacey, a Roald Dahl Epilepsy Nurse Specialist and Bethan, a Roald Dahl Specialist Transition Nurse to discuss transition from children's to adult's care.
Transition content is supported by an educational grant from GW Pharma.
https://t.co/8Uk1lKuqn7
Join us on Thursday 18th March for an online session all about understanding epilepsy and its impact.
It's a safe space, open to anyone to connect with others and ask any questions you may have.
To sign up please email: [email protected]#EpilepsySupport 💜