Amazing news for the CF community!
There’s still a fight to keep access to modulator drugs on the NHS though for those to young to start treatment now, like my son - and future babies born with #cysticfibrosis
The MHRA has today extended the licence of the CF drug Kaftrio, saying it is safe and effective for eligible children over 2 years old. (1/6)
➡️ https://t.co/bJhjc719Oo
On Friday, it was announced that life extending medication for people with #cysticfibrosis, like my son, could be pulled from the NHS in March for being too expensive.
Only 250 people are born with CF each year - please sign the petition to help them.
https://t.co/8SH95XkQMu
Life update… I decided I’d like to make something for children so after much deliberation, I landed on jigsaws.
Two months later, I have a brand, website and I’ve started doing markets around the north west. So much fun 💜 https://t.co/svosazF4SN
@virginmedia guys, our internet has been awful over the last 10 days or so. Lots of other people saying the same in the area - what’s going on please? SK4
@HubSpotSupport hi guys, been trying to get in touch with you for a couple of weeks. Spoke to someone on chat who wasn't very helpful and left a voicemail last week. Is there another way to speak to you guys please?