.@MattHancock Please add motor neurone disease #MND to the list of extremely vulnerable persons urgently. All people with #MND are at high risk from the #coronavirus and must be protected. #COVID19
@BBCNews I'm not alone being fed up with the negativity of the TV journalists finding fault with everything. Nobody can do anything right & it fuels anxiety & panic. Support what is being done in this untried & untested crisis. Positivity is the public service needed now!
Government: End reassessments for those with irreversible disabilities or progressive conditions - Sign the Petition! https://t.co/f24HSE3I1j via @UKChange
I've #justdonated to split between MNDA Gloucestershire Branch / Pain in the ALS, Tewkesbury Refugee Support Group & St. Richard's Hospice. Donate on @justgiving and help raise £3000 https://t.co/wWqORMsShx
On GWR HS train to London. WCS @ extreme ends whether 1st or 2nd class. Ramps are in middle of stations as are staff & some station platforms shorter than train so how do you get on & off? Where was common sense when they fitted out these modern trains?
So fed up with #Brexit. I may have voted remain but I think if we are going let's just do it and settle down to a new era. As it stands it is killing us all piece by piece and further delay is torture!
@Leswood17@AmmarAlChalabi@MNDPatients My father was taking #Riluzole in 1999 for #MND and my sister was taking Riluzole in 2017 for MND. Both are no longer with us. 20 years and counting, and Riluzole is all we have? Astonishing isn't it?