Mummy to a superhero with Shwachman Diamond Syndrome ๐ฆธ๐ปโโ๏ธ , volunteer @charitysdsuk, wife & proud to be Clinical Lead OT @boltonortho ๐ฆด๐ @boltonnhsft
๐จ Job alert ๐จ โผ๏ธ
Come and work in a great team. Lots of fantastic service development happening with the best MDT. Closes 21/12/23 https://t.co/eKl1fjgdq9
Sad day for team Ortho. We have been gradually coming to terms and saying goodbye to the legend that is Lucy F as she embarks on her new career at Bolton university, a great opportunity for Lucy but a huge loss to the team. We will miss you Lucy thank you for everything
Iโve done #Rycroft a bit of a disservice with the โhe loved to shoutโ thing, because although he did shout, a lot, he also used to make some lovely cooing noises too.
Hereโs 74 seconds of him fascinated with a new toy. Like and RT to share the love โค๏ธ
#Rycroft ๐๐๐
@andrewfoster101@cihospcharity@GOSHCharity Rycrofts story heavily effects our small community and we would like to thank you for sharing these deeply personal moments with us all, continuing to support our community in such difficult times and helping us to get to know your little Rycroft better
Rycroftโs made the national press ๐ฎ
Thank you @Andrew_Examiner, @yorkshirelive and @DailyMirror.
More people seeing his story means more money towards helping children like him ๐ โค๏ธ
Right now, we really want to do what we can to support other families like ours, other children like Rycroft, through @CharitySdsuk, @cihospcharity and @GOSHCharity.
Whatever you can give, whatever you can do to share, spread the word - thank you. https://t.co/g1wzonLLCK
Rycroft had a condition called Shwachman-Diamond Syndrome, and was cared for at Colchester Hospital & GOSH for much of his life. So we want to raise funds for these three fantastic charities in his name.
- @CharitySdsuk
- @cihospcharity
- @GOSHCharity
https://t.co/g1wzonLLCK
Our baby boy Rycroft died at Great Ormond Street last month.
The thread that follows is a little bit about who he was, and how you can help other children like him.
We would love any help you can give to get Rycroft's story to as many people as possible โค๏ธ
Honest updates from my amazing wife, who is the best mum this little guy could ask for.
It's hard, it's not the life we expected for us, but especially for him, lots don't go right even though we try our best.
But we never give up, we pick ourselves up and go again the next day
Successful relaunch of the OT forum today ๐ it was great to come together and share lots of ideas! ๐๐ฝ Looking forward to the next one in September already ๐๐ฝ๐ @boltonnhsft#OTforum
Well, 2 possible donors have been found. Hopefully one of those will be able to donate their stem cells๐ค
Back in clinic next Thursday. Itโs hoped treatment will start end of May๐ค
Please if you can register with @AnthonyNolan or @DKMS_uk you could literally save someoneโs life