Jeff D'Angelo

[Gatlinburg Conference @gatlinburgcon]

with Sara Hart Weir, Executive Director of the @KS_DD_Council, Jeff D’Angelo, President of the @CHAMP1Research , and Zohreh Talebizadeh, Senior Director, RARE-X Research Program at @GlobalGenes . #GatlinburgConference #IDD
📷 April 17-19
📷https://t.co/ZNFJPRkfuC

[Jeff D'Angelo @JeffDDAngelo]

@MattInfante @iwald7 dolphins suck

[CHAMP1 Research Foundation @CHAMP1Research]

The Dancing House, in Prague 🇨🇿, with purple lights for CHAMP1 Awareness Day #CHAMP1AwarenessDay #CHAMP1Research

[CHAMP1 Research Foundation @CHAMP1Research]

🌟CHAMP1 news and updates - June 2022 - https://t.co/n5R42kpNmG

[Jeff D'Angelo @JeffDDAngelo]

@FootbaIIism @iwald7

[CHAMP1 Research Foundation @CHAMP1Research]

@mom2achamp1on managed to raise awareness for CHAMP1 by mobilizing her community to support her daughter Lily and the other 113 kids around the world affected by CHAMP1 gene mutation. Thank you @NBC12 @EggsupGrill and @IroncladCoffee #CHAMP1Research #CHAMP1 #CHAMP1AwarenessDAY

[CHAMP1 Research Foundation @CHAMP1Research]

This Sunday, March 20th, will be CHAMP1 Awareness Day and some Christ the Redeemer @cristoredentoroficial Rio /Brazil 🇧🇷will be lightened up with our color purple. Please wear purple to support CHAMP1 and share: #CHAMP1AwarenessDay #CHAMP1 #CHAMP1Research #ChristRio #Rio

[CHAMP1 Research Foundation @CHAMP1Research]

CHAMP1 disorder is associated with a complex neurobehavioral phenotype including autism, ADHD, repetitive behaviors and sensory symptoms https://t.co/uEYnRCDtIU

Thank you @SeaverAutism for your commitment to the CHAMP1 community. We are forever grateful for your support!

[Jeff D'Angelo @JeffDDAngelo]

@hernando_sun @HernandoSchools @herntodaysports

[Jeff D'Angelo @JeffDDAngelo]

One of my favorite seasons I have ever had coaching. During one of our playoff games we had Cody Ramsey suit up. He’s a kid on the spectrum who loves basketball. He entered the game with a minute left, well you just have to watch the ending. @SCTopTen @SportsCenter

[CHAMP1 Research Foundation @CHAMP1Research]

Christoffer loves to play with snow and we can see his happiness with this amazing smile! Go Christoffer! #WednesdayWarriors #CHAMP1Research #CHAMP1

[CHAMP1 Research Foundation @CHAMP1Research]

Today is Rare Disease Day, the day to raise awareness for the 300 million people living with rare disease around the world and their families and carers. #RareDiseaseDay #CHAMP1research #Champ1
#RareDiseaseDay2022 Donate to CHAMP1 Research Foundation: https://t.co/8I2z2wSi8z

[Jeff D'Angelo @JeffDDAngelo]

Happy 8th Birthday to my amazing son who changed my life and gave me purpose. He has truly showed me what unconditional love is! There is not a thing I would not do for him to have the fullest and happiest life possible. Praying for big things ahead for him 🙏

[CHAMP1 Research Foundation @CHAMP1Research]

We want to wish JJ a very special birthday! Today we celebrate him turning 8 years old. JJ is his parents inspiration and purpose for starting the CHAMP1 Research Foundation. They hope for a brighter future for him and to every single child born with a champ1 gene mutation.

[CHAMP1 Research Foundation @CHAMP1Research]

Meet our scientific team: Davor Lessel, M.D., is a trained clinical and molecular geneticist at the Institute of Human Genetics, University Medical Center Hamburg-Eppendorf. Check his full profile here: https://t.co/1OFOq7TqZG #CHAMP1 #CHAMP1Research #CHAMP1ResearchFoundation

[Jeff D'Angelo @JeffDDAngelo]

@CHAMP1Research @DavorLessel thankful for everything you do!

[CHAMP1 Research Foundation @CHAMP1Research]

This month Stephanie and Troy are sharing some updates about research and also interviewed  Stacey, Callum's mom, about their journey. 

Check February episode now:  
https://t.co/nxkwOyPoKj

[CHAMP1 Research Foundation @CHAMP1Research]

Dr. Kristin Grimsrud @Kngrimsrud is an Assistant Clinical Professor in the Department of Pathology and Laboratory Medicine in the School of Medicine at the University of California Davis (UCD). Check her full profile here: https://t.co/PxYlen3Cz4 #CHAMP1 #CHAMP1Research #rare

[CHAMP1 Research Foundation @CHAMP1Research]

This article from @MHealthFairview motivated our CHAMP1 community: Four-year-old Celia Grace Hamlett is the first person in the US to receive life-saving gene therapy for MLD. Check the full article here: (https://t.co/jS1Y3JoxCs) #MotivationMondays #Rare #Genetherapy

[CHAMP1 Research Foundation @CHAMP1Research]

Meet our CHAMPIONS and consider donate to accelerate research and support kids affected by CHAMP1 rare neurological disorder. #GivingTuesday #champ1 #champ1researchfoundation #rare https://t.co/wfntF3366V

[CHAMP1 Research Foundation @CHAMP1Research]

One day to donate on #GivingTuesday and support CHAMP1 Foundation to accelerate research to support kids affected by CHAMP1 neurological disorder.💜#Champ1 #rare #givingtuesday #fightlikeachamp1on #champ1researchfoundation #givingtuesday2021