Jen

Fighting for PALS to be given ACCESS NOW to TREATMENTS that have been proven safe in trials one and two. WE need an EXECUTIVE ORDER.

[Jen @Jen63173662]

https://t.co/KctgyHaj1J

[No More Excuses ALS Watchdogs! @als_now]

54 pALS braved CV-19 today to ask the President to intervene and to help create new pathways for ALS therapies. One of the bravest things I've ever seen. LIVE BROADCAST AT 2PM EST FACEBOOK "NO MORE EXCUSES FDA ALSA PROTEST." #ALS #ENDALS

[No More Excuses ALS Watchdogs! @als_now]

THANK YOU to all who showed up today to help us with the plea. We were live at 2PM EST as planned but FB didn't save the video for some reason. Here was the short livestream/plea! #MND
@CNN @FOX23 #ALS #ENDALS
https://t.co/BhBXR7dxR3

[Nancy Homan @NancyHoman5]

@SteveFDA ALS 100% terminal-don’t discriminate -do the ethical act of doing for ALS what you did for CoVID 19(1% fatal) @realDonaldTrump @VP @EricTrump @GeraldoRivera @seanhannity @TheEllenShow

[Stand Up 2 ALS @up_als]

I am a veteran diagnosed November '15. Can we get a share? @PVA1946 @IndyFund @DeptVetAffairs #VetsFightALS

[Brian Wallach @bsw5020]

On the first day of a new decade, @iamalsorg launched its first national TV commercial: “Hope is Contagious.”

There will be more news tomorrow too, but for now check out the commercial here:

https://t.co/6m1WH64ZlE

[ALS Advocacy @alsadvocacy]

.@SenToddYoung We need you to join @SenatorBraun in the new ALS Caucus. It's a gr8 way to stay informed on matters that matter. Thank you.

[Brittany Mroczek 💜 @cherise77]

Molecule to treat ALS identified - Business Line #ALSResearch https://t.co/zeSR1O8Bu8

[Shah Minokadeh, M.D. @MinoShah]

.@FLOTUS Please help the 30,000+ Americans dying from ALS. Patients need access to lifesaving treatment called #NurOwn that is stuck in a phase 3 clinical trial. WE ARE DYING EVERY DAY! The FDA has failed the #ALS community @realdonaldtrump

@SteveFDA @FDACBER

[Shah Minokadeh, M.D. @MinoShah]

.@VP Please help the 30,000+ Americans dying from ALS. Patients need access to lifesaving treatment called #NurOwn that is stuck in a phase 3 clinical trial. WE ARE DYING EVERY DAY! The FDA has failed the #ALS community @realdonaldtrump

@SteveFDA @FDACBER

[Anna @Anna56795204]

.@POTUS Please help the 30,000+ Americans dying from ALS. Patients need access to a promising treatment called #NurOwn that is stuck in a phase 3 clinical trial. Patients do not have time to wait! Please help us #axeALS! @realdonaldtrump

[brock @8rokk_85]

.@POTUS Please help the 30,000+ Americans dying from ALS. Patients need access to a promising treatment called #NurOwn that is stuck in a phase 3 clinical trial. Patients do not have time to wait! Please help us #axeALS! @realdonaldtrump

[Mary LW @mlbaryo]

.@FLOTUS Please help the 30,000+ Americans dying from ALS. Patients need access to a promising treatment called #NurOwn that is stuck in a phase 3 clinical trial. Patients do not have time to wait! Please help us #axeALS! @realdonaldtrump

[Shah Minokadeh, M.D. @MinoShah]

.@SteveFDA Please help the 30,000+ Americans dying from ALS. Patients need access to lifesaving treatment called #NurOwn that is stuck in a phase 3 clinical trial. WE ARE DYING EVERY DAY! The FDA has failed the #ALS community @realdonaldtrump

@SenatorBraun @ChrisCoons @FDACBER

[Elizabeth McCormick @emmccormick2005]

He's 16 now. He and his 18 y.o. sister and 14 y.o. brother still need me. I need ALS treatment NOW. You can make that happen. #Nurown #EO #EndALS @WhiteHouse @VP @joegrogan45 @MickMulvaneyOMB @realDonaldTrump @FLOTUS @POTUS @SecAzar @GeraldoRivera

[Jen @Jen63173662]

Save lives - We need an Executive Order #NurOwn

[JM @JM_URBANWEAR]

Just donated to @ALSCanada after watching Eric Stevens, a firefighter who was diagnosed with ALS just one month after marrying his college sweetheart, on @TheEllenShow. #ALS #bringback the #icebucketchallenge and #BeKindToOneAnother by donating.

[sandra tebar collado @sandratebarcoll]

This is the time. We can't wait much time, we are dying. Approve #NurOwn now please. Stop our suffering and save our lives.
@realDonaldTrump @POTUS @FLOTUS @BrainstormCell @Cylebo @SteveFDA @US_FDA @FDACBER @FDAenEspanol @HHSGov @WhiteHouse @LuchaEla @EMA_News @EU_Commission

[Helene @Fightingforeric]

.@RepTedLieu Please help the 30,000+ Americans dying from ALS. Patients need access to a promising treatment called #NurOwn that is stuck in a phase 3 clinical trial. Patients do not have time to wait! Please help us #axeALS! @realdonaldtrump

[Shah Minokadeh, M.D. @MinoShah]

.@VP Please help the 30,000+ Americans dying from ALS. Patients need access to lifesaving treatment called #NurOwn that is stuck in a phase 3 clinical trial. WE ARE DYING EVERY DAY! The FDA has failed the #ALS community @realdonaldtrump

@SteveFDA @FDACBER

[Karen Abernathy @KarenGAbernathy]

.@VP Please help the 30,000+ Americans dying from ALS, including my brother, Victor Bettis, 58 years old in AR. Patients need access to promising treatments like, #NurOwn — stuck phase 3 clinical trial. Patients are dying daily. Please help us #axeALS! @realdonaldtrump