Jessica Y. Allen, PhD

Associate Professor of Psychology, Birmingham-Southern College #Gerontologist #Shortbowelsyndrome caregiver-researcher-advocate

[Jessica Y. Allen, PhD @JessicaYAllen]

Many of the Birmingham-Southern College students say professors are fundamental in shaping their success, concern and care for others, and staying in AL for contributing to the state. We decided it was time to share our story.

https://t.co/90AXTuHhhK

#bsc #youngboozer

[Jessica Y. Allen, PhD @JessicaYAllen]

Friends! As part of #ForwardEverDay, following exciting news from BSC Board of Trustees, I am excited to share that the College has chosen to highlight the Embodied Labs VR software subscription as part of its fundraising initiatives. More here: https://t.co/OLgthJlwR6

[Jennifer Canvasser @jenncanvasser]

So excited to see our long-term #NEC outcomes paper up! This project stemmed from the @NECsociety's 2019 Symposium & was a patient-led effort! Thank you to everyone who made this work possible! @epNICURDN @Linseigh @JHarrisonPhD @ravimpatelmd @SusanHintzMD
https://t.co/wS5ITeyXNj

[Ira Byock @IraByock]

We must save hospice. https://t.co/L6HMJgXgRV
Recent article by @AvaKofman has sparked heated discussion w/in hospice & palliative care. Much of it defensive. My MD colleagues seem the exception. General sense among HPC docs is: Enough! Time for clinicians to take back our field.

[Jessica Y. Allen, PhD @JessicaYAllen]

Looking forward to a fabulous day of presentations on patient-centered research and healthcare! #pcori22 @PCORI

[Jessica Y. Allen, PhD @JessicaYAllen]

Such a pleasure meeting @anjalifp and King Cohen at the Horizons School yesterday! What a testament she gave to advocacy and research in disability populations across the lifespan!

[Alter: Inspiring & Equipping Faith Communities @AlterDementia]

Inspirational Friday!

Join our panel on 9/22 in partnership with South Fulton Ministerial Alliance. We will be talking about dementia caregiving and mental health.

The link:
https://t.co/flJLvd9MNX

#atlerdementia #mentalhealth #caregiving #Alz #supportdementia

[The National Institute on Aging (NIA) @NIHAging]

Calling all dementia #biomarker researchers! #NIA is #funding applications to establish a transdisciplinary network to explore #dementia biomarkers in people with multiple chronic conditions. Check out the FOA here: https://t.co/hjmSsrrUmC

[Jessica Y. Allen, PhD @JessicaYAllen]

#finishelizasrun

[Jessica Y. Allen, PhD @JessicaYAllen]

@UABHeersink is hiring! open-rank faculty position in the Center for Advanced Intestinal Rehabilitation program- Division of Pediatric Gastroenterology, Hepatology and Nutrition! https://t.co/ADbIxm2Pjb #intestinalrehab #intestinalfailure #sbs #gastroschisis #atresia

[Jessica Y. Allen, PhD @JessicaYAllen]

A1: #ShortBowelSyndrome is often seen as a “pediatric” disease. This may mean limited availability for knowledgeable healthcare for adults which can feel scary & overwhelming. Using resources like @NORD and @OleyFoundation and joining online support groups on socials can help

[Jessica Y. Allen, PhD @JessicaYAllen]

@oley @Nord Apologies, it should be @OleyFoundation

[Jessica Y. Allen, PhD @JessicaYAllen]

#wellbeing #communityengagement #data #patientexperience
#tubielife #tubie #tubefeeding #ostomy #ostomylife #AskPatients #askfamilies #chronicillness #invisibleillness #chronicpain #rarediseases #rarediseaseawareness #rarediseasewarrior #rarediseaseadvocate

[Jessica Y. Allen, PhD @JessicaYAllen]

We are so excited to share this community-driven video in recognition of #ShortBowelSyndrome Awareness Month! We are committed to continuing to shed light on the SBS experience and bringing the SBS community together!
Full video: https://t.co/5gkepIAiA3
@SwapnaSpeaks

[Jessica Y. Allen, PhD @JessicaYAllen]

#shortgutsowhat #sbswarrior #RareDisease #tpnstrong #enteralnutrition #ParenteralNutrition #centralvenousaccess #sbs #QOL #qualityoflifematters #qualityoflife #ResearchMatters #ptexperience #careaboutrare #smallintestine #smallintestinetransplant #intestinaltransplant

[Swapna Kakani, MPH @SwapnaSpeaks]

A6: Can we have child life & music therapy for adults please! There is power in doing crafts with your hands when in a hospital bed that is if your hands are not full of PIVs #ShortBowelSyndrome

[Jessica Y. Allen, PhD @JessicaYAllen]

@SwapnaSpeaks That’s good stuff @SwapnaSpeaks

[Jessica Y. Allen, PhD @JessicaYAllen]

A7: For your own quality-of-life, it’s continue plans and goals, but hold them loosely. Consider explaining to partners, co-workers and friends that your schedule may change suddenly ahead of an event so that you aren’t worried about who will step in. #ShortBowelSyndrome

[Jessica Y. Allen, PhD @JessicaYAllen]

A7: It can be mentally taxing to have frequent medical visits/hospitalizations.If you are a patient or caregiver with access to medical leave (FMLA) or leave of absence, take advantage of those if you are able to do so. #ShortBowelSyndrome

[Jessica Y. Allen, PhD @JessicaYAllen]

A7: If you are seen in multiple clinics, ask if a social worker or clinic scheduler can work with you to make appointments on the same day, especially if you are traveling from out-of-town. Consider having a “go bag” with you #ShortBowelSyndrome