Brent Forman

Living with Myalgic Encephalomyelitis since 2011. I tweet about ME #pwme

[Brent Forman @JoeBlow604]

@BurgoyneSt12110 @PierrePoilievre What makes you think this?

[Brent Forman @JoeBlow604]

@ThePOTSPostman It sounds like PEM with POTS being affected the most.

[Brent Forman @JoeBlow604]

Like many I have started a new account at Bluesky and you can find me at https://t.co/kDpnq9gtni

[Brent Forman @JoeBlow604]

@Ulpian94633775 @lonquest @healingceline Dude....A doctor's go to often is often mental health based on zero evidence. Lazy doctors, biases, lack of knowledge brings them to that. They are often wrong. Especially when it comes to autoimmune or rare diseases. That's fact. Think a little before you comment

[Putrino Lab @PutrinoLab]

Hi all, we're recruiting for another #LongCOVID trial, but we need to tap our FULLY RECOVERED or NEVER INFECTED community for this one. If you know anyone who fits this description, let us know! [email protected]

[ICanCME Research Network @ICanCMEResearch]

Congratulations to Dr. Alain Moreau and team @ChuSteJustine for their publication on circulating microRNA expression signatures #MECFS #fibromialgia ! Read the full article here: https://t.co/ZIQ9rXAbNf

[World ME Alliance @WorldMEAlliance]

Announcing the World ME Day 2023 theme!

ME: The disease where pushing harder can make you sicker.

This year, our 21 members spanning 14 countries and countless individuals will all be focusing on post-exertional malaise.

#WorldMEDay #LearnFromME
https://t.co/DAy1qWN44x

[Dr Keith Geraghty @keithgeraghty]

if ever something needs a fresh look is the entire FND concept and prevalence rates cited in the literature - with positive signs v exclusionary assessment; long-overdue, another important item on my list to to-do, if and when funding can be there to support the work needed here.

[Brent Forman @JoeBlow604]

@Darthcludeme @mrsnickhodge @DiaryofaSickGrl I was in engineering my whole life before falling ill but the old adage still holds true with you. The more education, the larger the ego, and less common sense.

[Brent Forman @JoeBlow604]

@FranceyME I have severe ME. Had covid 6 weeks ago. Took over a month to be able to eat again. Infections after infection ever since. One problem after another. It sucks. Wishing you a more speedy recovery!!

[Jennie Spotila @jspotila]

Am I the only #MECFS patient who is frustrated with “new” studies and scientific findings that repeat hypotheses from the last thirty-five years? 1/5

[Brent Forman @JoeBlow604]

@JoePhilosophe @calirunnerdoc Yup....i went from 180lbs to 90lbs in 1.5 yrs. Couldn't stay upright. Air hunger. Year's bedbound. Etc etc. No sense of urgency from Drs for me with an ME cfs label.

[Brent Forman @JoeBlow604]

@fivehundredpou1 @calirunnerdoc What exactly is "regular" CFS?

[Brent Forman @JoeBlow604]

@kwinkslager @calirunnerdoc Respectfully, you should take a look at severe ME before making that assumption.

[Millions Missing Can @MillionMissCan]

Just as for sufferers of #MyalgicEncephalomyeltis, read about the horrific realities of #LongCovid & how the Canadian health care system has failed to address these illnesses.

Among those featured are @Sabrina_Poirier, @SimonDecary & @AmirLandi.

@jyduclos @celliottability

[Kerry Newnham @SquashedSiren]

I don’t think the frailty within the severe MECFS community is understood or conveyed well enough with words like housebound /bedridden. People can be mostly in bed With flu & still self care, see friends, watch tv, read etc. But many with #severeME have appalling Quality of life

[Maclean’s Magazine @macleans]

In Canada, there is no medical consensus over whether long COVID is real, leaving those suffering from it without appropriate care, particularly in Canada. One woman who spoke with Maclean's said she paid out of pocket to seek treatment in the U.S. https://t.co/JCOjwb0Yfs

[Brent Forman @JoeBlow604]

https://t.co/S6G3DjaEQx