Amy Grant reminded us on Insta that today is #NationalConcussionAwarenessDay. A #concussion is a brain injury, something to reckon with. Don't be cavalier. Find out more at https://t.co/D1HZoGC3Mj https://t.co/MmFR0m1Cr7 via @YouTube
Outstanding rare disease care goes beyond treatment — it embraces the whole person and their support system. Help us spotlight the champions of holistic care in the rare disease community!
Submit your nominations for the #EURORDISAwards2026! 👇
🌟 https://t.co/PwHeNlhNnG
The landscape of #RareDisease diagnosis and treatment is rapidly changing. What do clinicians, health care administrators, insurers, and others in medicine need to know? Find out at the 2025 NORD Breakthrough Summit. RSVP now: https://t.co/JASzKnr2pP
Next week, we will gather at the Smithsonian National Museum of American History to mark the unveiling of a new quarter featuring Disability Justice advocate Stacey Park Milbern.
Stacey Park Milbern was a queer disabled Korean-American activist, writer, speaker, and movement organizer whose work and leadership helped make the modern Disability Justice movement what it is today. Among many things, Stacey was a Disability Justice movement leader, a boba enthusiast, an AAPD Summer Internship Program alumnus, and is now a disabled ancestor.
#StaceyTaughtUs how to fight for one another, take care of one another, and to center the leadership and experiences of disabled people of color, women, queer, and trans folks. Stacey championed the belief that every one of us is inherently worthy and deserving of care, dignity, love, and community. She embodied the idea that when systems fail us, disabled people can show up for one another in community. Until she died, Stacey was organizing from her hospital bed, facilitating mutual aid, networks of care, and coordinating supplies to protect medically vulnerable disabled people during the first few weeks of the COVID-19 pandemic.
In 2022, on the second anniversary of her death and what would have been Stacey’s 35th birthday, AAPD collaborated with Google to honor Stacey through an exhibit called “In Her Own Words: Remembering and Honoring Stacey Park Milbern.” As we prepare to honor Stacey next week, we invite you to learn more about her and the values that drove her work.
Read AAPD’s 2022 tribute to Stacey and get the link to register for tickets to or livestream the Smithsonian event on August 13 at 6 PM ET here: https://t.co/xYP33esBLh
AAPD is proud to co-sponsor this event with the United States Mint, National Museum of American History, Access Smithsonian, Asian Pacific American Center, and the Disability Cultural Center at Georgetown University — we hope you will join us! Register for the event on Eventbrite: https://t.co/SGKXyfndk2
Join us for our All About Ataxia session on Nov 26, 10am-2pm! Hear from experts on managing ataxia. Limited spots—register here: https://t.co/FTf47cuZjX
America's #Oddball Museums: Potatoes, UFOs, and Bad Art
Discover America's quirky specialty #Museums featuring potatoes, mustard, #UFOs, and bad art - all #Wheelchair#Accessible and perfect for unique travel experiences.
https://t.co/FVcNqLNP4v
The @GRIN2Bsyndrome Foundation is pleased to announce the availability of their #SeedGrant program to encourage and support patient-oriented research on #GRIN2B Related Neurodevelopmental Disorder! Applications due by Aug 15. Learn more and share: https://t.co/FU3WVryP5X
#Autism #Epilepsy #Microcephaly #Neurodevelopmental #ResearchGrant #NeurodevelopmentalDisorder
Book a last-minute summer escape with @JohnFowlerHols☀️
Their adapted accommodation makes holidaying easy, comfortable, and fun.
Wheelchair‑friendly and assisted accommodation is available at multiple locations: https://t.co/xYV5a7My7v
Bringing a pet on vacation can make a trip so much more fun. But without a little preparation, the travel can be stressful for humans and pets alike. Whether you’re booking a flight or gearing up for a road trip, here are some pet travel tips.
Meet Paige, one of the #RareFacesOfMedicaid:
“As a #RareDisease patient with severe and complex health care needs, #Medicaid is my lifeline. It has enabled me to receive the treatments and surgeries that have saved my life.”
Share your own story with NORD to help us #ProtectMedicaid by emailing us at [email protected] or submitting it here: https://t.co/UzdBj6jxQl
Rahana Life are experts in the assessment, specification and provision of assistive technology to support people with upper limb impairment, primarily muscle weakness. Check them out here - https://t.co/CCxLRGgtip
Celebrate National Wagyu Day with our Perry’s Reserve Texas Akaushi Wagyu Beef raised on the Beeman Family Ranch
Choose from three cuts: Filet Mignon (6 oz.), New York Strip (10 oz.), or Ribeye (10 oz.)
Or our: Perry's Reserve Texas Akaushi Wagyu Satay or NY Strip Flight
"I've worked hard. I'm passionate and my world is cinema, acting, theater, creativity, art, painting, books, music, sculpture, landscapes, movements of people in the streets. Everything."
- Jeanne Moreau.