Josh Sims

[Charlotte's Battle Against Glioblastoma (BAG) @alexeades1]

Charlotte's first diary entry which I have posted some months ago but I think worth a re-post for new followers.

Imagine having to think about possibly dying, being in a situation where you don’t know the outcome. It’s awful and as a teenage girl the whole situation was impacted more by the media. Always seeing ‘beautiful’ girls in magazines, with long hair and skinny waists. It was heart wrenching when I had to think about shaving my head because I was going to lose my hair anyway. It was even worse when I put on two stone due to taking steroids to stop the excruciating pain in my head. I felt horrible and could not bear to look in the mirror. Every time I tried to put on my clothes, they were too tight and would not button up. I felt so disgusting and ugly being left with a bloated face and body. I hated my balding head which was patchy all over. My skin was covered in spots and scars from various needles and operations. I was meant to be starting college and making a new start for myself after my hard time at school. Sitting in hospitals and taking 50 tablets a day was not normal, but I adjusted to it being a part of my life. I remember receiving my disabled badge and trying to justify in my head what I did to deserve this. I felt like a loner and did not have much contact with the outside world. The only contact would occasionally be a trip into town. Doing this was a struggle physically and mentally. I would get tired easily and could not walk far because of this. I felt miserable seeing other girls living their lives and being ‘normal’. I was jealous of others; I wanted hair, good health and normality. The contents of my handbag a few months earlier were a hairbrush, chewing gum and a mirror. The contents of my handbag now are a set of hearing aids, disabled badge, medication and a pair of glasses.

Charlotte 18.2.97 - 24.2.16 picture 3/5/2013 (still at school) 77 days later C diagnosed with a brain tumour aged 16 Many thanks for all your support and helping raise awareness of brain cancer please RT follow TY

[Charlotte's Battle Against Glioblastoma (BAG) @alexeades1]

C brain tumour journey raising awareness grade 4 glioblastoma 1997 – 2016

February 1st comes around pretty quickly. February is the month I find most difficult. You were born on the 18th. You would have been 27 this year. Instead of celebrating, I will place some yellow roses on your final resting place. You never got to celebrate your 19th birthday; you were in a coma. On the 24th, you will have have been gone for eight years. Again, I will place flowers on your final resting place. 8 seconds, 8 minutes, 8 hours, 8 months, 8 years - the grief of child loss, and sibling loss, will always be there. If you could RT - raising awareness of of glioblastoma.

[Charlotte's Battle Against Glioblastoma (BAG) @alexeades1]

My mum and brother work tirelessly to put brain cancer on the cancer map. I'm no longer here. I passed when I was 19 years and 5 days old, having spent my 19th birthday in a coma in 2016. That may seem a long time ago, but to my family it will always be yesterday. When I was told that I had a brain tumour, it was the worst 'luck of the draw'.

I loved life and I had so much I wanted to do. I was diagnosed at the age of 16, in 2013. My world fell apart. I was going to start college in September 2013. Instead, I started chemotherapy and radiotherapy. From diagnosis to death, I lasted 31 months.

I kept a diary of my journey post-diagnosis. Occasionally, I got to live a little, so not all days are accounted for. Mum has shared my diary through Twitter - she is trying to raise awareness of one of the most underfunded cancers.

On my journey, I had standard NHS chemotherapy/radiotherapy. Treatment abroad is incredibly expensive. Standard treatment is the norm for the majority of brain tumour sufferers.

Both my mum and brother work full time, as well as running the self-funded charity started in my name. A RT/follow would be appreciated to reach a wider audience.

https://t.co/YAJhkLpMbv

[Josh Sims @JoshSims_1989]

@PrinceSP1994 I know how he feels

[Grafton Morrish @GraftonMorrish]

Congratulations to @BirkenheadSchl who have beaten Millfield in the final to win the Grafton Morrish for the 4th time

[Charlotte's Battle Against Glioblastoma (BAG) @alexeades1]

No diary entry 2day there were days we didn’t document because C was ill may have slept all day so nothing to write about this is the first diary entry that C wrote:
Imagine having to think about possibly dying, being in a situation where you don’t
know the outcome. It’s awful and as a teenage girl the whole situation was impacted
more by the media. Always seeing ‘beautiful’ girls in magazines, with long hair and
skinny waists. It was heart wrenching when I had to think about shaving my head
because I was going to lose my hair anyway. It was even worse when I put on two
stone due to taking steroids to stop the excruciating pain in my head. I felt horrible
and could not bear to look in the mirror. Every time I tried to put on my clothes, they
were too tight and would not button up. I felt so disgusting and ugly being left with a
bloated face and body. I hated my balding head which was patchy all over. My skin
was covered in spots and scars from various needles and operations. I was meant to be
starting college and making a new start for myself after my hard time at school.
Sitting in hospitals and taking 50 tablets a day was not normal, but I adjusted to it
being a part of my life. I remember receiving my disabled badge and trying to justify
in my head what I did to deserve this. I felt like a loner and did not have much contact
with the outside world. The only contact would occasionally be a trip into town.
Doing this was a struggle physically and mentally. I would get tired easily and could
not walk far because of this. I felt miserable seeing other girls living their lives and
being ‘normal’. I was jealous of others; I wanted hair, good health and normality.
The contents of my handbag a few months earlier were a hairbrush, chewing gum and
a mirror. The contents of my handbag now are a set of hearing aids, disabled badge,
medication and a pair of glasses.
Charlotte 18.2.97 - 24.2.16 picture 3/5/2013 (still @ school) 77 days later C diagnosed with a brain tumour aged 16
Many thanks for all your support and helping me raise awareness of brain cancer please RT follow TY

[Josh Sims @JoshSims_1989]

@davepeely @TrumpTurnberry 192

[Chris Toseland @ChrisToseland]

I don’t usually post personal news but Clinicians have told us to pull every lever.

Our daughter has with #dipg Brain cancer. There is no cure and typically 9m life expectancy.

If anyone knows of trials then please get in contact! #braincancer #childrenscancer @CR_UK

[PGA Tour @PGATour]

"I hope that people look at my story and don't give up."

15 months after accomplishing his dream and inspiring us all @Bermuda_Champ, Brian Morris has passed away.

[Danny @doglab]

It takes 3.2 seconds to RT and help find her missing mum Nicola Bulley who was last seen walking her dog near a Lancashire river she was last seen on the morning of Jan 27 walking her dog on a towpath by the River Wyre off Garstang Road please call 116 000 with any information

[Dan Walker @mrdanwalker]

What a moment. @Rob7Burrow and his family are truly incredible and I don’t think it’s possible for me to love Sir Kevin Sinfield anymore than I currently do

[Josh Sims @JoshSims_1989]

@Freddie18657792 @wallaseygolf @PhizGolf @johnmac150 Where’s the other half of your swing gone?

[Josh Sims @JoshSims_1989]

@SamanthaTwenty @DuncHod79 @DaiichiSankyoUS @A_O_T_G_

[Josh Sims @JoshSims_1989]

@davepeely @CheshireUnion Love it 192

[Alexander's Journey @alexs_journey]

Resending this msg. For some special people in particular for their support & care for Alex. @Writer_DG @WilliamShatner @boderek @StephenWalters @SamHeughan @BaileeMadison @HamillHimself @EricIdle @BoyGeorge @markking https://t.co/Cn1f4sKmJl 💪🏻🦿#AlexsGoFundMe #AlexandersJourney

[Josh Sims @JoshSims_1989]

@JohnMDynamic Class. Start it. Please

[Josh Sims @JoshSims_1989]

@PrinceSP1994 Ronaldo is the problem…

[Josh Sims @JoshSims_1989]

@PrinceSP1994 We. Are. Shite.

[Gary Young @GaryYou35735926]

I’ve been diagnosed with incurable stomach cancer at only 35, can all my followers retweet this so i can hopefully get my hero Ricky Gervais to send me a quick message of support, thanks.