Serena Joyner

Community engagement for community resilience | Climate | Energy | Recently worked at @HCNSW to increase the voice of health consumers in shaping services.

[Zalika Rizmal @Zalika_R]

Today is full of terrible news. If you need to, please reach out:
Lifeline 13 11 14
Lifeline Text 0477 13 11 14
Kids Helpline 1800 551 800
MensLine Australia 1300 789 978
Suicide Call Back 1300 659 467
Beyond Blue 1300 22 46 36
Headspace 1800 650 890
QLife 1800 184 527

[Dr Liz Allen @DrDemography]

Thank you, journos, for your stellar work in delivering important communications on COVID-19. Your hard work is deeply appreciated. I can imagine the toll it’s taking on you and your families. You’re heroes.

[Serena Joyner @JoynerSerena]

There are 2 fantastic jobs going at @HCNSW - one of them used to be mine!

With the opportunity to work from anywhere in NSW.

https://t.co/tPK1hc3FnR

[Health Consumers NSW @HCNSW]

SURVEY: Have you been involved in research as a consumer rep? Or are you a researcher involving #healthconsumerreps? Together with @SHPartners we are working on training and tools to get more community involved in research. Helps us get it right: https://t.co/2jJpEQ1XUf

[Serena Joyner @JoynerSerena]

Please share widely!
#PatientExperience #healthconsumers @LailaHallam @aj_brown68 @HCNSW @carriehayter

[Health Consumers NSW @HCNSW]

Telehealth consultations: What do you think? Did you know the new telehealth arrangements are are temporary?

For some #telehealth has been brilliant, others have had problems ... What do you think about the changes? Should they become permanent?

https://t.co/8kfv9rhteO

[Serena Joyner @JoynerSerena]

How to balance infection control with family presence? Removing family presence introduces new risks (not to mention distress). Briefing today at 1pm on a Guide developed by patient and family advocates - https://t.co/rTLtAkAYeV @LailaHallam @HCNSW @aj_brown68

[Serena Joyner @JoynerSerena]

The Wrap newsletter for August - packed with news and stories including from @Asher_Wolf
With a very busy team at @HCNSW with @LailaHallam
Special feature - what patients and families want from visiting policy in a COVID-19-normal world
https://t.co/IHjRDpy7L7

[Serena Joyner @JoynerSerena]

Beautiful, honest and invaluable advice - to those living with #LongCovid #LongHaulers - and anyone living with chronic illness

[Serena Joyner @JoynerSerena]

@mojopono Thank you - sorry for the week delay in noticing this. Yes I have heard about significant problems in both NSW and VIC in communicating COVID information to ESL communities. Does this mean that ESL lessons have also largely stopped?

[Serena Joyner @JoynerSerena]

A fascinating day facilitating this workshop on Trust & Transparency in Pharma funding of health consumer orgs. Hosted by @CPC_usyd with support from @HCNSW and @CHFofAustralia. Read a quick summary by @Asher_Wolf ...

[Serena Joyner @JoynerSerena]

@Asher_Wolf @Sydney_Uni @HCNSW @CPC_usyd @SerenasSoapbox @raymoynihan It was a pleasure to meet you Asher 😊 Your presentation was a stunning reminder of how the woeful governance and terrible ethics of one consumer organisation can be so destructive to a patient group. EDS patients deserve so much better.

[Serena Joyner @JoynerSerena]

@MrEscombe @DocJordy He’s a bit of a rock star 💫

[Serena Joyner @JoynerSerena]

Apologies for fuzzy photo 😬

[Serena Joyner @JoynerSerena]

NSW Health “Leading Better Value Care”. Great Vision.... but am I missing something? Consumer engagement does not appear in enablers....?? Surely consumers are critical to this program? @hcnsw #PExS2019

[Laila Hallam @LailaHallam]

Great News! And about time!

- Patients have a right to self-report side-effects;
- Devices and implants should be tracked
- Health providers reporting side effects to TGA for central evaluation is obvious.

Why has it taken so long?

https://t.co/0dk7UW11RJ via @ABCNews

[Brad Hazzard @BradHazzard]

Gr8 meeting with ⁦@HCNSW⁩ talking about the value of consumer input! ⁦@NSWHealth⁩

[Health Consumers NSW @HCNSW]

Our Chair John Garbutt, Deputy Chair Mary Potter and ⁦@aj_brown68⁩ Meeting with ⁦@BradHazzard⁩ about all things consumer #healthconsumer

[David Gilbert @DavidGilbert43]

I am also seeing practitioners finding it hard to move beyond a patient-centred mindset that comes to enact patient engagement as merely for 'feedback'. It's much harder for staff to step into 'partnership mind' than patients. Because patients know they are people. Staff forget.