Senior Research Fellow at the Cicely Saunders Institute of Palliative Care, King’s College London | Paediatric & end-of-life care; grief and bereavement
Each day this week, we'll be highlighting a type of eating disorder - today we're talking about ARFID. If you recognise these signs in yourself, or someone you love, contact our Helpline today 💜 #EatingDisordersAwarenessWeek#ARFID#EDAW2025#AnyoneAnytime
@Tog4ShortLives Thank you very much for having me, I’m really looking forward to sharing the findings of, and recommendations from, our study on end-of-life care for children. It’ll be great to hear from other researchers and professionals about what’s needed for the future to improve care.
If you’ve had/have a baby in NICU join the Humber Dads for a catch up and a coffee.
The groups are run by Matthew, Rhys and Jon whose children have all spent time in Hull NICU. Any questions get in touch, or add Humber Dads on Facebook 👍🏻
Next group 4/12/23 @ 7pm
We're hoping families who've experienced haematopoetic stem cell (bone marrow) transplant, or had follow-up scans after treatment, or worried about infection or mucositis can come to @CandlelightersT Sat 30th Nov - we're hosting researchers who need your input! (Travel covered)
We're looking for someone to help us improve the development of interventions to support families with a child with cancer - could this be the PhD you're looking for? @nicolaod_ @HullYorkMed https://t.co/moLozdEH2O
Going back to school can be a daunting time when it comes to ARFID. Here's some ways that school could be a little easier for a child struggling with ARFID.
Parents, if you have any advice on back to school with ARFID, comment below!
#ARFID#ARFIDAwareness#ARFIDAwarenessUK
Delighted to share this - a real team effort: Evaluating PPI activities within a paediatric palliative care research centre: Route map to impactful and meaningful engagement: @UoYppcrg@JuHackett, Jo Taylor, @AJPapworth , Gabriella Walker, @lornafraser10 https://t.co/hSB4HwxQIN
@EmilyTammam@davidabbottbris@LucyGoBag Ah it probably was. I’m glad you found the talk interesting and hope you do with the paper too. More than happy to have a chat anytime about it?
This is so beautifully written and a must read for all. Not just all who work in #ppc but all of us. Thank you for sharing Neve and your story @EmilyTammam
Oddly, for me, I have very few words! Gratitude to @lisamarkwell and @Telegraph to be given a platform to share Neve and our story. Sadness not to be able to tell Neve. A mix of bittersweet emotions. https://t.co/JJoehT960q My hope is that reading my words can help
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