Julie Comperchio

#Raredisease #Biotech Exec #Raredisease #Momvocate #speaker #health-equality activist #medical implicit bias fixer #LC MomX3 Proud #CSU Mom #GoRams

[Julie Comperchio @JulesC2022]

#RareDiseaseDay He’s my WHY♥️Why I fiercely #Advocate,Pursue #researchers,Persistently engage #clinicians & Actively track down #Pioneers in #precisionmedicine All for my 17 yo son, Jack.Who has a #muscledisease of “unknown etiology.” 14+yrs on the Undiagnosed Odyssey #forhim🦓💪🏼

[Barstool Colorado @CUBarstool]

The CU/CSU game averaged 𝟗.𝟑 𝐌𝐈𝐋𝐋𝐈𝐎𝐍 𝐕𝐈𝐄𝐖𝐄𝐑𝐒 on Saturday 🤯

- Making it the most watched game so far this season

- The 5th most watched game EVER on ESPN

[Dr. Brian Goldman @NightShiftMD]

I’m finally recovering from my first bout of #Covid. Twelve days of fatigue and malaise plus constant cough and coryza. And that’s WITH Paxlovid. I’ve had lots of colds and this was not a cold. Given the prevalence of #LongCovid I’m grateful to have returned to baseline.

[Joseph Fasano @Joseph_Fasano_]

I wrote these words when I was first hospitalized for my mental illness 23 years ago, and the kid who wrote this is still helping me now.

[Brian Wallach @bsw5020]

If I have learned anything over the last six years it is that I will fall short a lot but that will never keep me from getting up and trying again.

Good night moon.

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

Missing is one of the most common, most disabling and most undiagnosed and untreated neurologic manifestations of PASC/#LongCovid:

📢 #Dysautonomia - which is present in about 70% of patients with LongCovid.
‼️ Read our consensus guidance statement on post-Covid autonomic dysfunction and how to diagnose and treat it here: 👇
https://t.co/by7oGi4O7U

@MedscapeNeuro #MedTwitter #NeuroTwitter @Dysautonomia

[Putrino Lab @PutrinoLab]

I am humbled to announce that thanks to a generous grant from @cohengive our #LongCOVID center (opening early 2024) will work to understand the differences and similarities between LC and #Lyme, #MECFS and other infection-associated chronic illnesses. 1/
https://t.co/MODtF7Vz5Y

[imdatfeminist 🐆 @imdatfeminist]

The first time you feel like you’re begging for someone’s attention, you need to look in the mirror and beg YOURSELF to see that you deserve so much better. Life’s too short to waste on people who don’t see your value.

[Manuel Ruiz @manruipa]

🔥🧬 NEW PAPER PUBLISHED! Is there a link between EBV (Epstein-Barr Virus) and conditions such as myalgic encephalomyelitis and Long COVID? 🤔🌍 Dive into this thread and discover how EBV could be behind the symptoms of both pathologies and what therapeutic strategies exist: ⬇️🔍

[Billy Hanlon @bhanlon15]

New approach to testing for long Covid

A standardized eye examination might reveal in future whether people are suffering from long Covid syndrome or post-Covid. A team at Technical University of Munich (TUM) was able to demonstrate a clear connection..
https://t.co/EMLfSPgMQj

[Sandra Abrevaya @sabrevaya]

Today was a beautiful day. Our girls brought me coffee in bed, kicked my toosh in chess at 9am and secretly decorated the house. And my hot hubby winked at me.

I’m so thankful to be turning 43 today and so grateful to you all for being there for me. ❤️❤️

[Eric Topol @EricTopol]

“A new type of vaccine… has shown in the lab setting that it can completely reverse autoimmune diseases like multiple sclerosis and type 1 diabetes—all without shutting down the rest of the immune system.”
Leveraging the liver!
see Ground Truths link in my profile
X-suppressed

[T. Ryan Gregory 🇨🇦 @TRyanGregory]

I'm not going to comment further on long COVID vs. long mystery pneumonia. Whatever it is, I'll just leave this here.

[Dr. Jen Wolkin | ADHD + Trauma Therapist @drjenwolkin]

Trauma did NOT make you stronger.

It traumatized you, broke your heart, dysregulated your nervous system, gave you PTSD, sleepless nights, trust issues, connection difficulty, almost killed you, and stole your will to live.

YOU made + make yourself stronger…by surviving.

[HealthyCarnivores @HealthyCarnivor]

Birmingham-based biotech startup launches IPO, expands base in Alabama #BioTech #startup via https://t.co/hmIoXfIspy https://t.co/YqcnpQdv02

[Nate Postlethwait @nate_postlethwt]

Highly sensitive can also be linked to highly intuitive and let me tell you there’s a reason people don’t like that. Sensitivity is often criticized, but it’s the intuitive part that scares people who have stuff to hide.

[Alissa Zingman MD MPH - ZebraMD @DocZing]

#medtwitter Please think of #EDS #MCAS #POTS before deciding a patient's symptoms are psychiatric. I have several patients irrevocably harmed as a result of not being believed, and this incredible woman was practically gaslit to death. https://t.co/yW7INfn6CU

[Professor Lara Bloom @LaraBloom]

This is not ok. It has to stop. #ehlersdanlossyndrome #EDS #HSD #ChronicIllness

https://t.co/n5gkza0bjY

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

You know what I like the most? Hearing today from my patient with #LongCovid that they're 70% better now than they were before they started working with me.

P.S. Yes, we require wearing N95 #masks at #Dysautonomia clinic!

#PatientCare #MedTwitter #POTS #MaskUp 😷🧠🩺

[Dr. Glaucomflecken @DGlaucomflecken]

If there’s one thing I wish everybody knew about US healthcare, it would be the existence of pharmacy benefit managers. They are just as responsible for soaring drug prices as pharma, yet most people are oblivious to their actions. Truly incredible middlemanning effort by PBMs.