Julian L'Enfant

British/Canadian; Ed. Dvlper/Adjunct Prof. @ Saint Mary's University; CELTA Tutor/Assessor; Doctoral Researcher; MEd Plurilingual Ed; Husband and Dad.

[Julian L'Enfant @Julian_LEnfant]

I’ve been teaching with @MicrosoftTeams for over 4 years, bringing in learners as guests into a team without problems. My current Ss can access class Team, channel files, etc. but cannot access breakout rooms. Tried multiple ways. S/time Ss can access, s/times not. Any solutions?

[Julian L'Enfant @Julian_LEnfant]

Save Millie's life - Royal Lancaster Infirmary must STOP causing Millie harm - Sign the Petition! https://t.co/PX3jaNbsrp via @CdnChange

[Sabrina Poirier (On Hiatus) 🇨🇦 @Sabrina_Poirier]

Hey #LongCOVID friends:

What is the most up to date protocol for dealing with a COVID infection, to try to support the immune system? (For friends, not me)

REST + Hydration
Paxlovid, if possible
Antihistamines
Mast cell stabilizers
Vitamins D, C
Zinc, magnesium

What else?

[Julian L'Enfant @Julian_LEnfant]

I just unlocked Amaterasu's Necklace in the Chronic Illness Survey Adventure! Can you help us achieve balance by sharing this message? We need to be sure we get enough people with #MECFS, #POTS, #MCAS, #hEDS, #LongCOVID, & healthy controls. https://t.co/ZJRTwxpQMY

[Carrie Anna McGinn @Carrie_McGinn]

Don't miss this great #MEAwarenessDay event! 💙

[Julian L'Enfant @Julian_LEnfant]

Thank you to everyone who attended my session on the @Eaquals Academic Management Competency Framework @LangCanada #LCConf2023. I really appreciated the opportunity to discuss academic mgmt. Devt, & how this framework can support academic managers in their context. @smuhalifax

[Sabrina Poirier (On Hiatus) 🇨🇦 @Sabrina_Poirier]

#MECFS never gets easier to accept.

Every Fall/Winter my health declines significantly. In the Spring/Summer, my health improves a bit.

Each year though, my overall baseline declines.

It feels like dying slowly and painfully. Never knowing when your body will just quit.

1/

[Ed Yong is not here @edyong209]

Update: the audio version is now up. https://t.co/TxURal8wCK

[Ed Yong is not here @edyong209]

And as with the earlier brain fog piece, I've recorded an audio version for anyone whose brain fog makes reading difficult. It'll be added to the piece sometime later this morning. 13/ https://t.co/TxURal8wCK

[Ed Yong is not here @edyong209]

Thanks so much to all the patients, clinicians, and advocates who spoke to me for this story. I hope it was worth whatever spoons you used up. 12/ https://t.co/TxURal8wCK

[Ed Yong is not here @edyong209]

Much about ME/CFS is uncertain, but the “mystery illness” framing makes for a convenient excuse. There’s a lot *to know* about testing for & treating it; ME/CFS specialists & patients are wellsprings of knowledge, esp. for long COVID. 11/ https://t.co/TxURal8wCK

[Ed Yong is not here @edyong209]

*Everyone* I’ve spoken to in the ME/CFS community saw long COVID coming well before most of the scientists & medical professionals I know. That alone should prompt some serious reflection. The community has so much wisdom & knowledge to offer. 10/ https://t.co/TxURal8wCK

[Ed Yong is not here @edyong209]

This piece looks at why ME/CFS has been so dismissed for so long, why it’s crucial for everyone to redress that legacy, and the people who are working their hardest to do so. I encourage everyone—healthcare workers, especially—to read it. 9/ https://t.co/TxURal8wCK

[Ed Yong is not here @edyong209]

But long COVID also presents an opp to rectify the decades of neglect & prejudice that people with ME/CFS & other complex chronic post-viral illnesses have faced. More recognition, respect, research, treatments are necessary, but maybe now possible. 8/ https://t.co/TxURal8wCK

[Ed Yong is not here @edyong209]

ME/CFS specialists are now torn between patients whose needs they already couldn’t meet, new long-haulers who also need their help, & clinicians who’d benefit from their knowledge. Which means some ME/CFS patients risk losing the little care they had. 7/ https://t.co/TxURal8wCK

[Ed Yong is not here @edyong209]

The immense overlap between ME/CFS and long covid means that the former’s patients & clinicians have so much to teach the latter’s. But this need to educate people new to complex chronic illnesses is draining their time even further. 6/ https://t.co/TxURal8wCK

[Ed Yong is not here @edyong209]

ME/CFS is mostly caused by infections & many long COVID cases are effectively ME/CFS by another name. The exact number is hard to define, but even with v. conservative estimates, the number of ME/CFS patients has more than doubled in the last 3 years. 5/

https://t.co/TxURal8wCK

[Ed Yong is not here @edyong209]

Worse still, the ME/CFS specialists are ageing out. Most are at retirement age or near it. A US coalition of the big players includes just 21 names, of whom 3 are retired & 1 is dead. Most work in the coasts. There are zero in the Midwest. 4/

https://t.co/TxURal8wCK

[Ed Yong is not here @edyong209]

At the highest estimates, Americans with ME/CFS outnumber the populations of 15 individual states. But there aren’t enough ME/CFS specialists to fill a Major League baseball roster. Most patients never get a diagnosis, let alone any kind of care. 3/ https://t.co/TxURal8wCK

[Ed Yong is not here @edyong209]

ME/CFS involves a panoply of debilitating symptoms that affect almost every organ system. People are intensely sick for years or decades. They spend much of that time getting stigmatized, dismissed, misdiagnosed. 2/ https://t.co/TxURal8wCK