Driving health care forward with a chorus of patient voices | MPH Candidate, @HarvardHPM | Frmr Co-Host, Live Yes! with Arthritis Pod| Tweets are my own.
Let's call this story about families & their fight for a MD cure essential reading.
Finding solutions to ensure that innovation doesn't require relentless pursuit by patients battling a tragic diagnosis & loss should be top priority for the HC industry.
https://t.co/80vAiTD22F
“Pairing facts with empathy is the best way to disempower trolls.”
@celinegounder weaves together a beautiful tribute to her late husband Grant Wahl with a poignant reflection on the ongoing damage caused by disinformation and opportunists.
https://t.co/OB0EJqyHWE
"In the latest twist in the long-running dispute between the drug industry & insurers over which group is more to blame for rising costs to patients - patients are, again, caught in the middle"
Cheers to @AnnaSut74487861 for sharing her family's story!
https://t.co/EIIgTfNdSX
The opposite of schadenfreude is "freudenfreude" — the bliss you feel when someone else succeeds, even if it doesn't directly involve you. The benefits are plentiful but don't always come easily. Here's how to experience more freudenfreude.https://t.co/R2IuNhqtgg
Cheers to @MassGovernor for signing #steptherapyreform into law today! For years, @ArthritisFdn advocates in MA have been fighting against #failfirst barriers to care. Proud to see MA join a growing list of states to codify these critical protections into law.
Big day ahead talking about @NIHPainResearch as a part of the Interagency Pain Research Coordinating Committee. Patient voices in conversations like these are critical to driving toward more human-centered, holistic care.
👉Listen to the webcast👉
https://t.co/RucgdtRyzC
It was a pleasure to co-Chair @PCORI's national Clinical Effectiveness & Decision Science Advisory Panel today, led by @JulieAEller.
If you ever want to take a more active role as a health stakeholder (patient, family caregiver, community advocate), PCORI is great to work with!
A great agenda ahead for @PCORI's Clinical Effectiveness & Decision Science Advisory Panel today. Looking forward to facilitating the meeting with our new co-chair @michael_hoerger!
Tune in to the public meeting, here: https://t.co/AuBYyPB9iA
The ACR is aware of the emerging concerns surrounding access to needed treatments such as #MTX after the recent decision in Dobbs v. Jackson Women’s Health Organization.
Excited to facilitate @PCORI's Clinical Effectiveness & Decision Science Spring Advisory Panel meeting this afternoon!
Listen to the discussion live at:
https://t.co/OyoqFqbyqz
Excited to see this paper go live! Our team worked to report out on the @ArthritisFdn's INSIGHTs program, reflecting on the critical role emotional support plays in patient empowerment.
👉Check it out: https://t.co/b8DO61QXmp
Outstanding recap of "prior authorization" past and present, and reforms, by @philseo. My group of 27 providers employs about 20 people who work full time on on PAs for patients. Hoping to enact commonsense guardrails in DC with @MedSocDC this year!
https://t.co/Y3PG5dTZXo