Professor Paola Giunti (Head of the Ataxia Centre, UCL Queen Square Institute of Neurology) and her team at UCLH have collaborated with pharmaceutical company Biogen to progress the first ever treatment for a rare genetic disease called Friedreich’s ataxia.
I have signed up for an exciting adventure to the top of the Kelpies!
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I had a great time last night with colleagues and collaborators #ICAR2024
Attending this conference brought back happy memories when I was working at @AtaxiaUK
We organised the first large #ataxia#research Congress with #patients groups in 2015!
Since then it keeps growing!!
Prof Paola Giunti chaired the first session today #ICAR2024 on Omaveloxone
"it was very exciting to discuss the transient side effect and real world experience on the treatment using the very first drug licensed for #Friedreich's #ataxia at ICAR in London!"
@giunti_paola@biogen
@JulieGarra@AtaxiaUK@MuniraKhan89 You too! It was brilliant wasn’t it?! So much support for the poster presentations, lots of discussion and networking.
Great to see old friends and colleagues and meet new people in the field too. Hoping there will be lots of scope for collaboration in future rehab research 🤩
We welcome visitors at 430 poster st the International Congress of Ataxia Research #ICAR2024@icar_ataxia today.
Here’s a preview! @CosmicKidsYoga
Thanks to all ATeam collaborator coauthors https://t.co/R6ilst294w
Catching up with collaborators and networking at the poster session #ICAR2024#ataxia#research
Great atmosphere yesterday at the conference with plenty of exciting research being presented!
Looking forward to day 2!!
@icar_ataxia@UCLIoN@PTCTherapeutics