Dr Julie Vallortigara

Scientist / Life Coach / Patient Advocate / Artist
Passions: helping people, music, horses, live performances!

[UCL Innovation and Enterprise @UCLEnterprise]

Professor Paola Giunti (Head of the Ataxia Centre, UCL Queen Square Institute of Neurology) and her team at UCLH have collaborated with pharmaceutical company Biogen to progress the first ever treatment for a rare genetic disease called Friedreich’s ataxia.

[Dr Julie Vallortigara @JulieGarra]

I have signed up for an exciting adventure to the top of the Kelpies!
I'm fundraising for NHS Lothian Charity. Check out my @JustGiving page and please donate if you can. Thank you! #JustGiving https://t.co/xyvbmLoEiH

[Dr Julie Vallortigara @JulieGarra]

Some highlights #ICAR2024 as we come to an end of this very successful meeting!
600+ participants, over 470 posters, many more talks on #preclinical and #clinical studies for future #ataxia #treatment
@AtaxiaCentreUCL @icar_ataxia well done @AtaxiaUK @CureFA_org @NAF_Ataxia

[Dr Julie Vallortigara @JulieGarra]

For the last day at #ICAR2024 Dr Suran presented his #research on #telomeres length in #Friedreich's #ataxia as part of a session on #Biomarkers and #clinical outcomes
@AtaxiaCentreUCL @icar_ataxia @UCLIoN @trickyDNA @giunti_paola

[Dr Julie Vallortigara @JulieGarra]

I had a great time last night with colleagues and collaborators #ICAR2024
Attending this conference brought back happy memories when I was working at @AtaxiaUK
We organised the first large #ataxia #research Congress with #patients groups in 2015!
Since then it keeps growing!!

[Dr Julie Vallortigara @JulieGarra]

We had a great evening at #ICAR2024 conference diner! Our colleague Suran @trickyDNA brought his proper camera so we have good pics of the team! Thank you Suran!!
@AtaxiaCentreUCL @giunti_paola @HecGarciaMoreno

[Dr Julie Vallortigara @JulieGarra]

What a treat last night at #ICAR2024 conference diner on the Thames! Great atmosphere and fun time on the dance floor!
@AtaxiaCentreUCL @icar_ataxia

[Lisa Bunn PhD @LisaBunnPT]

Enjoying hearing about Sarah Milne’s exercise RCT for ataxia at #ICAR2024 @AtaxiaUK @AtaxiaCentreUCL @ataxia_global @NAF_Ataxia @ActionforAT @CureFA_org @MonashChildrens

[Dr Julie Vallortigara @JulieGarra]

Interesting wprkshop session on digital and fluid #biomarkers for #ataxia #clinicaltrials at #ICAR2024
Prof Paola Giunti presented the @AtaxiaCentreUCL work on #SCA3 biomarkers Nfl, t-tau using #ESMI and @MayoClinic cohorts
@icar_ataxia @giunti_paola @HecGarciaMoreno @UCLIoN

[Dr Julie Vallortigara @JulieGarra]

Prof Paola Giunti chaired the first session today #ICAR2024 on Omaveloxone
"it was very exciting to discuss the transient side effect and real world experience on the treatment using the very first drug licensed for #Friedreich's #ataxia at ICAR in London!"
@giunti_paola @biogen

[Lisa Bunn PhD @LisaBunnPT]

@JulieGarra @AtaxiaUK @MuniraKhan89 You too! It was brilliant wasn’t it?! So much support for the poster presentations, lots of discussion and networking.

Great to see old friends and colleagues and meet new people in the field too. Hoping there will be lots of scope for collaboration in future rehab research 🤩

[Lisa Bunn PhD @LisaBunnPT]

We welcome visitors at 430 poster st the International Congress of Ataxia Research #ICAR2024 @icar_ataxia today.

Here’s a preview! @CosmicKidsYoga

Thanks to all ATeam collaborator coauthors https://t.co/R6ilst294w

[Dr Julie Vallortigara @JulieGarra]

We are back at #ICAR2024 for day 2.
Session on #Biomarkers and #Clinical outcome measures with Dr Hector Garcia Moreno @HecGarciaMoreno presenting his study of Nfl, t-tau, GFAP and UCHL1 in #SCA3 #machadojosephdisease
@icar_ataxia @giunti_paola @AtaxiaCentreUCL @UCLIoN

[Ataxia UK @AtaxiaUK]

The Ataxia UK team has officially arrived at ICAR 2024 and the first day is now behind us.

#AtaxiaUK #ICAR2024 #AtaxiaAwareness #AtaxiaResearch #Research

[Ataxia Centre - UCL Institute of Neurology @AtaxiaCentreUCL]

Our #ataxia #research work is well presented at #ICAR2024 with posters and talks.
First poster session yesterday was busy for our team!
@HecGarciaMoreno @giunti_paola @trickyDNA @shpresa81449145
Looking forward to today's talks and poster session!
@icar_ataxia @UCLIoN

[Ataxia Centre - UCL Institute of Neurology @AtaxiaCentreUCL]

Our clinician researcher Hector Garcia Moreno @HecGarciaMoreno has brought many posters at #ICAR2024 on xeroderma pigmentosa and various SCAs including #SCA3
He has a flash talk today at 3PM in the session on #biomarkers and #clinical outcome measures
@UCLIoN @giunti_paola

[Ataxia Centre - UCL Institute of Neurology @AtaxiaCentreUCL]

It was great to meet you in person Tomazos! Looking forward to future opportunities to collaborate again.
@giunti_paola

[Ataxia Centre - UCL Institute of Neurology @AtaxiaCentreUCL]

It was great to speak with you @larimarthrx @giunti_paola

[Dr Julie Vallortigara @JulieGarra]

Catching up with collaborators and networking at the poster session #ICAR2024 #ataxia #research
Great atmosphere yesterday at the conference with plenty of exciting research being presented!
Looking forward to day 2!!
@icar_ataxia @UCLIoN @PTCTherapeutics

[Dr Julie Vallortigara @JulieGarra]

Busy posters session yesterday at #ICAR2024 presenting #VoT project on #patients #care pathways and #cost associated in #EU countries: specialist #ataxia centre with better #outcomes at similar cost compared with non specialist services! @AtaxiaUK @UCLIoN @EU_Brain @Euroataxia