The recording is now live! 🎥
Thank you to everyone in our community who joined us for this incredibly meaningful and informative webinar—we’re so grateful to have you be part of these conversations.
A special thank you to @sarcomaalliance, for hosting and helping make this discussion possible, as well as to @BrandiLBenson, patient advocate, Dr. Sandra D'Angelo of @MSKcancercenter for sharing her medical expertise, and synovial sarcoma survivor @juliekramer4 for her powerful personal story.
If you weren’t able to attend live (or want to revisit the conversation), you can now watch the full recording here:
https://t.co/eQuXOsLsoi
These webinars are an opportunity to learn, connect, and stay informed on the latest efforts shaping our community—and we have more to come. We hope you’ll take a moment to watch and continue being part of this important work.
If you’d like to stay up to date on upcoming events, be sure to subscribe to our newsletter.
#SynovialSarcoma #SarcomaCommunity #PatientAdvocacy #RareDisease #CancerResearch
The Synovial Sarcoma Foundation is hosting a live webinar on Thursday, February 19th at 6:15 PM EST, and we’d love for our community to join us.
🎙 Speakers include:
Dr. Ted Laetsch – Oncologist at CHOP & Medical Director of SSF
Dr. Rachel Hurley – Researcher at CHOP
Julie Kramer – Stage 4 synovial sarcoma survivor & Community Engagement + Partnerships Manager at SSF
This webinar will highlight SSF’s initiatives, share progress in synovial sarcoma research, feature a patient story, and wrap up with a live Q&A.
🗓 Save the date and join us for an evening of insight, connection, and hope.
Link to register: https://t.co/vISf7tJt2W
#synovialsarcoma #sarcomaawareness #patientadvocacy #rarecancer #talktestingsarcoma
Lotta loss these last few days. This is by far the hardest one.
At 12:14pm this afternoon, we laid our dog, Chooch, to rest.
Through my entire cancer journey to now, this dog has been by my side. I’m so grateful for the times we had.
@Phillies, win it for Chooch, will ya?