Julie Kramer

Philadelphia sports and beating cancer. You know, the usual.

[Julie Kramer @JulieKramer4]

The Philadelphia Eagles start their season this Sunday. Oh, and I got my results back and I’m still cancer free.

[Synovial Sarcoma Foundation @CureSynovial]

The recording is now live! 🎥

Thank you to everyone in our community who joined us for this incredibly meaningful and informative webinar—we’re so grateful to have you be part of these conversations.
A special thank you to @sarcomaalliance, for hosting and helping make this discussion possible, as well as to @BrandiLBenson, patient advocate, Dr. Sandra D'Angelo of @MSKcancercenter for sharing her medical expertise, and synovial sarcoma survivor @juliekramer4 for her powerful personal story.

If you weren’t able to attend live (or want to revisit the conversation), you can now watch the full recording here:

https://t.co/eQuXOsLsoi

These webinars are an opportunity to learn, connect, and stay informed on the latest efforts shaping our community—and we have more to come. We hope you’ll take a moment to watch and continue being part of this important work.

If you’d like to stay up to date on upcoming events, be sure to subscribe to our newsletter.

#SynovialSarcoma #SarcomaCommunity #PatientAdvocacy #RareDisease #CancerResearch

[Julie Kramer @JulieKramer4]

Bryce Harper.

[Synovial Sarcoma Foundation @CureSynovial]

The Synovial Sarcoma Foundation is hosting a live webinar on Thursday, February 19th at 6:15 PM EST, and we’d love for our community to join us.

🎙 Speakers include:

Dr. Ted Laetsch – Oncologist at CHOP & Medical Director of SSF

Dr. Rachel Hurley – Researcher at CHOP

Julie Kramer – Stage 4 synovial sarcoma survivor & Community Engagement + Partnerships Manager at SSF

This webinar will highlight SSF’s initiatives, share progress in synovial sarcoma research, feature a patient story, and wrap up with a live Q&A.

🗓 Save the date and join us for an evening of insight, connection, and hope.

Link to register: https://t.co/vISf7tJt2W

#synovialsarcoma #sarcomaawareness #patientadvocacy #rarecancer #talktestingsarcoma

[Julie Kramer @JulieKramer4]

The Dodgers are ruining baseball

[Julie Kramer @JulieKramer4]

This is textbook Philadelphia sports tonight

[Julie Kramer @JulieKramer4]

@jordiebarstool Trolling is the only thing that made sense there

[Julie Kramer @JulieKramer4]

Lotta loss these last few days. This is by far the hardest one.

At 12:14pm this afternoon, we laid our dog, Chooch, to rest.

Through my entire cancer journey to now, this dog has been by my side. I’m so grateful for the times we had.

@Phillies, win it for Chooch, will ya?

[Julie Kramer @JulieKramer4]

This feels like the adult version of the kid that reminds the teacher about homework

[Action News on 6abc @6abc]

Tickets were priced at $10, but some fans said they would have paid much more. https://t.co/xksFsW7DH4

[Julie Kramer @JulieKramer4]

JT is a beast

[Julie Kramer @JulieKramer4]

A ball was just hit into foul territory near me and everyone started chanting “that’s my ball” 💀 I love Philly

[Julie Kramer @JulieKramer4]

JALEN (and I cannot stress this enough) HURTS

[Julie Kramer @JulieKramer4]

CRASHING. OUT.

[Julie Kramer @JulieKramer4]

Well Alvarado did his job. Why couldn’t our bats?

[Julie Kramer @JulieKramer4]

Yup. Something just like that

[Julie Kramer @JulieKramer4]

I hate how I feel like I already know what’s going to happen

[Julie Kramer @JulieKramer4]

I’m getting bench clearing vibes rn

[Julie Kramer @JulieKramer4]

Pathetic offensive performance there. How do you not get Sosa home, ctfo

[Julie Kramer @JulieKramer4]

I truly have absolutely not an inkling of an idea as to why the Phillies continue to put Romano in. Why? Why? Absolutely why?

[Philly Sports Sufferer @mccrystal_alex]

LMAO THE LITTLE LEAGUERS FROM PENNSYLVANIA WERE CLOWNING PETE ALONSO

[Julie Kramer @JulieKramer4]

Duran turned CBP into a nightclub real quick LFG