A historic moment for the MOGAD community!
Positive Phase III results from the METEOROID clinical trial mark the first successful MOGAD treatment study—made possible by the participants and their families.
As the pre-eminent global nonprofit for #MOGAD, The MOG Project calls this a “historic day” and applauds “Hoffmann-LaRoche/Genentech’s landmark achievement and their investment in finding new, safe, and effective treatments for MOGAD.”
Learn more: https://t.co/MFyIiJZVpr
Our school has done it again! 😃
On the news for the 100th time! Oliver Farag is my beautiful Y4 student, as well as my previous student, his sister Isabelle. Such a great school to be in. Go #SAPS! #PrimaryEducation@7NewsSydney
Vinod URGENTLY needs a STEM CELL TRANSPLANT DONOR for an aggressive form of cancer that will help give him the BEST CHANCE to come back home, hold his kids/wife & somewhat put this phase behind him & return back to normality. If you’re >18+ consider registering using the links below! @darshi_r #ThisIsBloodCancer #FightForACure #NoOneFightsALONE 🩸
To support the cause most dear to me. Finding a stem cell transplant donor for someone from a minority ethnic group can be difficult as they are underrepresented on international World Marrow Donor Association registries. If you are >18 years old, consider registering:
Transformed my 4 month old son’s hand & finger painting into a hot air balloon inspired by his favourite book ‘The World Needs Who YOU Were Made to Be!’ Combination of art, sensory & reading. 📖🎨🖌️
If you’re a woman >18 with #MOGAD or #NMOSD, we would like you to complete this survey to better understand family planning, pregnancy &/or postpartum in MOGAD & NMOSD!
Survey in English: https://t.co/Rq11O1Sfvy
Our international team: @EthelScl, @mlevy18, @chenmayo, @EoinFlanagan14, @ESotirchos, @darshi_r, @dr_fiona_c, @JustJen_K, Julia & Bernardita et al.. have combined to explore this HOT TOPIC & its importance.
Spanish: https://t.co/0QNjybbaTM
Only 1 week left to go until our FIRST ever ANZ #MOGAD patient Q&As support group meeting with our 3 experts; @darshi_r, @Benjamin_Trewin & @dr_fiona_c with hosts @JustJen_K & Kathy!
Rego link: https://t.co/MdRTGFObhM
October 14th, at 6pm AEST 🇦🇺🇳🇿👁️🧠
*This will not be recorded to protect patient privacy*
Delighted to share @andreuvilaseca7 et al study highlighting episodes of painful transient vision loss in #MOGAD ➡️ He came up with the interesting mixed Greek/Latin term of amaurosis fugax dolorosa ➡️ This may be an early clue to #MOGAD diagnosis 👇https://t.co/2ZVkyAbwyB
Ts, how are you making sure you hear from all your Ss – even the quiet ones?
This discussion routine, from educator @XpatEducator, can set them ALL up for success:
We’re keen to see an international study which follows relapsing #MOGAD patient’s MRIs from disease onset to relapses so we can get a better understanding of what happens to these patients paired with MRIs. Do they have atrophy? Neuropathy? Lesions completely disappeared? Lesions still active? 🤷🏻♀️