JudeME

Navigating life with multiple chronic illnesses, telling it how it is. #MECFS #Dysautonomia #fibromyalgia #POTs #hEDS & #MCAS. Keep positive & be Creative

[JudeME @JustJudeWithME]

@Laconic_doc Take a year out, get some work experience and travel then reapply for medicine

[JudeME @JustJudeWithME]

And just like that apparently the nhs consultants can refuse a referral from the GP. Left in limbo in pain #brokennhs #SaveOurNHS

[JudeME @JustJudeWithME]

Sorry I've been very absent, Lots going on still. Feeling at a complete loss, totally let down by the GP today. Never thought I'd say these words 'had enough of living like this' just seems to be getting worse with no help or support from the nhs. All they can offer is waitlists

[JudeME @JustJudeWithME]

@RainbowStephan Yep know the feeling of things being the final straw. It's so frustrating not being understood and DRs don't see the whole picture just single diagnosis at a time. Sending huge hugs your way x

[JudeME @JustJudeWithME]

@RainbowStephan Thanks lovely x I've had diarrhoea & pain for over a year now, had cameras both ends & they can't find the reason so they just leaving that one to rot. I really hope you get some answers. I'm on two surgical list now, one is a year waitlist and the other for my back I've no idea.

[JudeME @JustJudeWithME]

@ros_tinkler Can't wait for warmer weather. We've lit the log burner tonight as so cold. Think I'll go back to hibernation if it snows

[JudeME @JustJudeWithME]

@dazed_befuddled Aww thanks 💙 x sending love and hugs 🤗 right backatya

[JudeME @JustJudeWithME]

@Talmandaniel 🤗 💙 thanks Daniel x hope you are doing alright

[JudeME @JustJudeWithME]

@ros_tinkler Thank you for the hugs x much needed and appreciated xx sending gentle hugs right backatya and hope you are doing ok at the moment x

[JudeME @JustJudeWithME]

@kpearny Thanks x hope things are alright with you?

[JudeME @JustJudeWithME]

@mookpixie Yup way to much. Told the DR if I was an animal I'd be put to sleep. It didn't go down well 😥 hope your coping alright x

[JudeME @JustJudeWithME]

@cfs_jo Thanks Jo x hope you are holding up alright x

[JudeME @JustJudeWithME]

@RainbowStephan Sending hugs right backatya 😘🤗🤗🤗

[JudeME @JustJudeWithME]

@RainbowStephan Oh no 😢 some absolutely horrid bugs around at the moment. Hope it starts to shift soon x

[JudeME @JustJudeWithME]

@jdpereira Or you can cut into thin strips and coat them in cornflour, egg then panko breadcrumbs and fry or bake them. Serve with a Katsu curry sauce and rice

[JudeME @JustJudeWithME]

@jdpereira Squeeze the water out of the tofu, then coat in cornflour. Then lightly fry in sesame oil so it's crunchy and crispy. I then toss in teriyaki sauce and sprinkle sesame seeds on top. But you can eat them without the sauce or add a sauce of your own taste. Yummy 😋

[JudeME @JustJudeWithME]

@MarkMooch Nights sweats suck! Have you tried sleeping in sports T-shirts and shorts. Shorts wear wicks the sweat away so you don't wake up cold & shivering. Won't stop the sweats but does at least help you feel less yuk. Electric blanket also helps dry sheets and warm you up quickly

[JudeME @JustJudeWithME]

@RainbowStephan 👏🏻 👏🏻 👏🏻 Congratulations & well done. You must be so proud.

[JudeME @JustJudeWithME]

@kpearny OMG so sorry only just seen this. Ok alright thanks x how you doing?

[JudeME @JustJudeWithME]

@mookpixie Thanks for checking up on me @mookpixie x really appreciate it.
Muddling through as usual. Both my parents are not well so having to use precious spoons to try help them, so not really on here or look on timeline as too triggering atm. Do checkin on DM's tho. Hope you ok?