Katy2011

I am Autistic, ADHD and Dyspraxic. I have suffered with Anorexia Nervosa for almost 20 years. #mentalhealthmatters

[Katy2011 @K4TY06]

@AgnesAyton @UKParliament @gaudianiclinic @johnharris1969 @Rebeccasmt @dignityindying I’ve honestly had enough of fighting after almost 20 years of this insidious disease. At 35 y/o I have no quality of life and haven’t had for years and years. There is no help that works. I can understand why someone would support assisted dying for severe anorexia nervosa.

[National Survivor User Network @NSUNnews]

We learnt today, via comments made by Work and Pensions Secretary Liz Kendall to the BBC, that the government plans to trial job coaches visiting ‘seriously ill patients’ on mental health wards.

(Thread - 1/4)
https://t.co/BbE2r0DaZk

[Katy2011 @K4TY06]

They have far too much to hide! I am with you all the way @HopeVirgo and will not stop until they are clinically held to account and routinely inspected. @NHSE @DHSCgovuk it’s time you listened to the voices who are speaking out!

[Hope Virgo @HopeVirgo]

If there is nothing to hide within eating disorder services, I don’t know why the complaints procedure cannot be reviewed when we all know the current one isn’t fit for purpose.

[Hope Virgo @HopeVirgo]

If there is nothing to hide within eating disorder services, I don’t know why the complaints procedure cannot be reviewed when we all know the current one isn’t fit for purpose.

[Hope Virgo @HopeVirgo]

The emails I am receiving after this call out are harrowing - how people with eating disorders are being treated is neglectful, harmful, dangerous and causing deaths. And the fact that @NHSEngland don’t think there is a problem and this isn’t a “national issue” is disgusting

[Hope Virgo @HopeVirgo]

This is something that I raise time and time again with @NHSEngland … their response 1. There is a complaints procedure to follow and 2. Local issues are not national ones …

2 disgraceful responses!

[James Downs @jamesldowns]

🧵This thread gives some of the impossible paradoxes I have experienced when asking for help with an eating disorder. Can anyone add any others?

[Katy2011 @K4TY06]

The lack of clinical accountability of community Eating Disorder Services is a national scandal. It is aiding the cover-up of unnecessary deaths of Eating Disorder patients which are not recorded as such. @HopeVirgo

[Hope Virgo @HopeVirgo]

A powerful morning hearing evidence from cares for the APPG on eating disorders @Wera_Hobhouse - a huge thank you to everyone who shared their experiences ❤️

[Dr Sandeep Bansal @iDrSunny]

But the NHS HAS been broken lol.

And it’s being continuously broken.

Why are NHS management so worried about accepting that? Oh that’s right because they enabled it

👏🏽… 👏🏽… 👏🏽

[Katy2011 @K4TY06]

It’s time that community Eating Disorder services came under the same sort of scrutiny as other parts of the NHS and public sector. The majority of community ED services have NEVER been inspected!! @HopeVirgo

[Hope Virgo @HopeVirgo]

It would be amazing to get to 1000 on day 1!

https://t.co/x625GE3Qmq

[Katy2011 @K4TY06]

It’s time that community Eating Disorder services came under the same sort of scrutiny as other parts of the NHS and public sector. The majority of community ED services have NEVER been inspected!!

[Hope Virgo @HopeVirgo]

It would be amazing to get to 1000 on day 1!

https://t.co/x625GE3Qmq

[Hope Virgo @HopeVirgo]

It would be amazing to get to 1000 on day 1!

https://t.co/x625GE3Qmq

[Hope Virgo @HopeVirgo]

For too long, those affected by eating disorders have faced neglect & injustice, leading to avoidable deaths. This is why I am asking you to join me &sign the petition calling for a Confidential Inquiry into eating disorder deaths - https://t.co/MVAa4W084N

[Katy2011 @K4TY06]

@iDrSunny This has happened at Sheffield Eating Disorder service too. A inexperienced Psychiatrist was been appointed with zero prior ED experience. It is dangerous!

[🌻 Joules 🌻 @allaboutjoules]

@HopeVirgo @NHSEngland There is no accountability. Complaints always side with the Trust because it’s the Trust investigating the complaint. They cover for each other and make sure notes make it clear that it’s not them! I would love to know who makes the final judgement.

[Hope Virgo @HopeVirgo]

Last week @NHSEngland said they had a complaints procedure for eating disorder services … I said it didn’t work… they said it was “the procedure they had developed” .. I argued back .. they stuck with the party line of “procedure”

So can someone explain the below to me ..

[Katy2011 @K4TY06]

@SHSCFT

[Shaun Lintern @ShaunLintern]

What are your thoughts on this from a Sunday Times reader? It has a tempting appeal, but if the awful culture exists now without the serious consequences proposed, how bad could it get if we did this?

[Katy2011 @K4TY06]

@Katie_Bee86 @HopeVirgo Very similar experience with @SHSCFT and Sheffield ED service here over the last 18 months. Acknowledgement of failures, meeting after meeting to discuss issues, money wasted, yet absolutely ZERO accountability and ZERO alternatives to treatment.