Dr says I need to reduce my workload. We're down 4 people in the office so it's impossible... I can already feel the crash coming on... Tired is an understatement and now the anxiety is joining in. Fun times. #cfsmeproblems
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@northernassist my colleague booked tickets online, but the ticket machine did not dispense all tickets. Spoken to team at the station who are completely unwilling to help, instead advised purchase of another first class ticket.
@northernassist Thanks, the tickets were booked and paid online, but just collected from the ticket machine using the bank card from the booking. Would option 6 still cover this?
@northernassist She also went to Leeds station in person and spoke to a supervisor, but the supervisor said there is no evidence of a faulty machine so would not help further. We have copies and screenshots of the online purchase.
@northernassist Thanks for your reply - the ticket machine was located at Batley station. My colleague has already called the customer experience line and spoken to web sales, but they have been unable to assist so we are unsure how to rectify the situation...
@kazzikammy I'm so glad my pain is relatively low compared to fibro! The fatigue is very bad today - towards the end of the working week I struggle and spend all weekend resting to do it all again the following week. And then people tell you it's not real... If only they knew! xx
@kazzikammy CFS is chronic fatigue syndrome, which is the common name for ME (myalgic encephalomyelitis). It's in the same group of conditions as fibro, but my main symptoms are fatigue, brain fog and post exertional malaise.
@SkyNews It’s a crap thing to have
Even worse the fact people don’t believe you when you say you have it, even when it’s reduced to leaving you in a wheelchair you still get people saying your making it up or your lazy 😡🤬
#fibromialgia
Divisive? I'm lucky I don't suffer from #Fibromyalgia, but I do suffer from #cfs. Neither or which are "so-called" and definitely not "yuppie flu". These diseases are real and need more research, not claiming it's all in people's heads!! https://t.co/o7v2rtPfhh
Pleased to find out I don't have sleep apnoea today, but need to do another sleep study with a leg sensor. Hoping this comes back ok so I can get on with learning pacing! #MEcfs
@carrie_pawley Gah, I've only just seen this! It definitely wasn't worth it haha 😂😂 I'd love to be able to drop to part time, but the finances unfortunately won't allow it. Hopefully one day!
Attending my last anxiety session - it's really helped me so much over the last 3 months. Glad to have learned how to manage the condition, but a bit sad it's my last session!
@kazzikammy It's good they're giving you extra support. I had to resort to painkillers yesterday but hoping to get through today without. Fingers crossed! xx