Kleine-Levin Syndrome Foundation

501c3 Non-Profit. Our goals are to raise awareness, support scientific research, to find effective treatment and ultimately a cure for Kleine-Levin Syndrome.

[Kleine-Levin Syndrome Foundation @KLS_Foundation]

💙Caregivers: Preparing for an IEP or 504 meeting?

Use @KLS_Foundation's K–12 Education Guide to help you advocate with confidence.

Questions? Our board members are caregivers or KLS patients — we’ve been there.

🔗https://t.co/rhavYem316

#KLS #RareDisease #CaregiverSupport

[Kleine-Levin Syndrome Foundation @KLS_Foundation]

will answer questions about:
• IEPs and 504 plans
• Returning to school after an episode
• Keeping patients socially engaged

Sunday, May 5th
3:00PM ET/12:00PM PT

Register here: https://t.co/mnpB7MQ5hO

[Kleine-Levin Syndrome Foundation @KLS_Foundation]

KLS Education Support Group

KLS Foundation Board Member and Medical Awareness Liaison Gaylene Grossman, VP of Fundraising Jenny Goldstein Grossman, and KLS caregiver and education support professional Jen Lopes

[Kleine-Levin Syndrome Foundation @KLS_Foundation]

Wishing all who celebrate a Happy & Healthy #Passover!

[Kleine-Levin Syndrome Foundation @KLS_Foundation]

Have you signed up for the KLS Forum at the #BeyondSleepy conference May 31-June 2? The KLS Foundation will be there – more details coming soon!

https://t.co/czxahjplCr

[Kleine-Levin Syndrome Foundation @KLS_Foundation]

You can see everything we’ve collected on the “KLS Stories” tab on our website.

https://t.co/Z19zO2hmke

[Kleine-Levin Syndrome Foundation @KLS_Foundation]

Have you listened to the “This American Life” podcast featuring KLS stories yet?

If you found or were featured in a media story, please DM us or email [email protected] with a link and we’ll post it on https://t.co/Pr9g3QOEV2!

[Kleine-Levin Syndrome Foundation @KLS_Foundation]

• IEPs and 504 plans
• Returning to school after an episode
• Keeping patients socially engaged

Register here: https://t.co/mnpB7MQ5hO

[Kleine-Levin Syndrome Foundation @KLS_Foundation]

KLS Foundation Board Member and Medical Awareness Liaison Gaylene Grossman, VP of Fundraising Jenny Grossman, and KLS caregiver and education support professional Jen Lopes will answer questions about:

[Kleine-Levin Syndrome Foundation @KLS_Foundation]

You can still volunteer! DM us and we’ll put you in touch with the Stanford lab.

[Kleine-Levin Syndrome Foundation @KLS_Foundation]

of Neurology at Harvard Medical School.

Some of you may have met her already – Dr. Maski presented the updated diagnostic criteria for KLS at the last #BeyondSleepy conference in June 2023.

Welcome to the @KLSFoundation MAB, Dr. Maski!

[Kleine-Levin Syndrome Foundation @KLS_Foundation]

INTRODUCING: KLS Foundation Medical Advisory Board member Dr. Kiran Maski!

Dr. Maski (MD, MPH) specializes in sleep disorders, including KLS, narcolepsy, and insomnia and is part of the Department of Neurology at Boston Children’s Hospital. She is also an Associate Professor

[Kleine-Levin Syndrome Foundation @KLS_Foundation]

For prospective and current college students: You can apply for up to $5,000 from the RARE Scholarship Fund. More info on eligibility requirements below. Last day to apply is April 22!

https://t.co/0l6ssPmVRH

[Kleine-Levin Syndrome Foundation @KLS_Foundation]

The Kleine Levin Syndrome (KLS) Foundation Board wishes everyone celebrating #Easter a Happy Healthy Holiday.

[Kleine-Levin Syndrome Foundation @KLS_Foundation]

ANNOUNCEMENT: The KLS Foundation will host the KLS Forum at the #BeyondSleepy conference May 31-June 2!

More details to come! We are excited to see you in Houston!

https://t.co/czxahjplCr

[Kleine-Levin Syndrome Foundation @KLS_Foundation]

In health and partnership,
The KLS Foundation Board
Steve, Dani, Jenny, Gaylene, Caron, Arielle, and Dick

The paper can be accessed here.
https://t.co/tfkdsRfJ3t

[Kleine-Levin Syndrome Foundation @KLS_Foundation]

A new scientific paper has just been published about a potential treatment for Kleine-Levin Syndrome (KLS). The report is based on the experience of two KLS patients and suggests that the drug ramelteon may prevent or reduce the occurrence of KLS episodes.

[Kleine-Levin Syndrome Foundation @KLS_Foundation]

two doctors familiar with ramelteon treatment in KLS.

[Kleine-Levin Syndrome Foundation @KLS_Foundation]

@WarmGingerTea Please visit https://t.co/Yd58zq1Q2V
for more information.

[Kleine-Levin Syndrome Foundation @KLS_Foundation]

ANNOUNCEMENT: The #KLS Foundation will host the KLS Forum at the #BeyondSleepy conference May 31-June 2!

More details to come! We are excited to see you in Houston!

https://t.co/czxahjplCr