@BrainAblaze Let’s just say, I need a tattoo that says, “I don’t remember”, and when someone asks me a question, instead of saying, “read my lips”, I just need to say, “read my arm!!”
@BrainAblaze I enjoy talking to my online support group every other Sunday nite. We’re very close, know about each other’s situations, have no problems opening up to each other, we all help and give as much advice as possible, and we have a few good laughs in between.
@BrainAblaze I can read fine, but with me, I never understand what I’m reading. I can’t even read a newspaper article without extreme confusion. Even with e-books, I can’t keep my concentration up, and I have no idea what’s going on with the stories.
@BrainAblaze Yes. I just began a clinical trial 3 weeks ago, and hopefully it’ll be as successful with me as they say it’s been with the other patients who have enrolled in it the past year and a half. So far, it’s been 3 weeks seizure free, & I usually have 1+ a week, & I’ve had none.
@BrainAblaze My mom’s always w/me at my appointments. She asks questions I’d never think to ask & tells my doctor everything that’s happened w/my seizures since the last visit, and anything else that’s been going on differently w/me that she’s noticed. My doctor encourages her being there.
@BrainAblaze So many people I know never believe me, b/c they’ve never seen me have a seizure, and they always accuse me of a fake illness & “robbing the government” of SSD.