Katherine Raven

She/her 👩🏼 Head of marketing and comms @DravetUK 👩‍💻@CIPR_Global Fellow ✍🏻Mum of Esme & Bobby 👶🏻 🐶Views my own

[Katherine Raven @KatRaven15]

Proud to share this film on #DravetAwarenessDay which I’ve been working on the last few weeks with the brilliant team @faltrego Please give it a watch and a share to help us spread awareness! 💜#LittleMomentsMatter

[Dravet Syndrome UK @DravetUK]

It's #DravetAwarenessDay. Can you share our film to reach more people in need of our support?

#LittleMomentsMatter shares what 3 families love about their children, what they don't love about #DravetSyndrome & how DSUK has supported them.

@ParkLaneStables @MeathCharity

[Katherine Raven @KatRaven15]

@AntonyTiernan @NHSBT @GiveBloodNHS @NHSOrganDonor Many congrats Ant, well deserved! 👏🏼👏🏼👏🏼

[Katherine Raven @KatRaven15]

Voted with Bobby 🐶🐾🗳️✅ #DogsAtPollingStations

[Katherine Raven @KatRaven15]

@nikkijfox @RTS_East @BBCLookEast @BBCNewsnight Many congrats Nikki 🙌🏻

[Katherine Raven @KatRaven15]

@JamesSharp87 Happy Birthday, hope you’re having a fab day! xx

[Dravet Syndrome UK @DravetUK]

We're still touched by the magic of an absolutely incredible #DSUKFamilyWeekend, with those who know exactly what it's like to live with #DravetSyndrome. Thanks to our fundraisers, supporters, partners & everyone who helps raise awareness. We couldn't run the weekend without you!

[Katherine Raven @KatRaven15]

Looking forward to visiting @MeathCharity today to do some filming with the team from @faltrego to produce a special film for #DravetSyndromeAwarenessDay for our #LittleMomentsMatter campaign 💜 @DravetUK

[Katherine Raven @KatRaven15]

@JamesSharp87 @CIPR_Global Many congrats James, that’s a fantastic achievement! 👏🏼👏🏼👏🏼

[Katherine Raven @KatRaven15]

Every day in May I will be running or walking at least 2km (but aiming to do 5km which I have done on most days so far!) to raise vital funds & awareness for the wonderful charity I work @DravetUK! Any donations gratefully received: https://t.co/KyF72jXKux #EveryDayInMay4Dravet

[Dravet Syndrome UK @DravetUK]

We recently partnered with @L_M_Clayton @UCLIoN @epilepsysociety to research feeding difficulties & gastrostomy in #DravetSyndrome. In this short film, Dr Clayton discusses the results of the study. There's more info & link to full study publication here: https://t.co/5RR8tT90pq

[Dravet Syndrome UK @DravetUK]

"It was seizure after seizure & in a 3-4 yr period, my son Liam was in intensive care 8 times."
Liam Hinphey, shared the impact of #DravetSyndrome in a truly powerful & honest account on the GAA Social podcast this week.
https://t.co/0zfGFamXwU
@Hinph6 @BBCSPORTNI @thomasniblock

[Katherine Raven @KatRaven15]

@KirkMillisWard @IOWNHS Wishing you lots of luck Kirk and much success in your next career move. You and your team have achieved fantastic things for @IOWNHS 🙌🏻

[Dravet Syndrome UK @DravetUK]

Have you ever wondered how families living with #DravetSyndrome benefit from the #DSUKFamilyWeekend? If so, you can get all the feels from this short clip, where Penney's parents Jo & Ross, who attended for the first time last year, talk it through for us.
https://t.co/iIdz6tZUiS

[Katherine Raven @KatRaven15]

@TrishNewton58 Enjoy your well deserved retirement Trish! Xx

[Dravet Syndrome UK @DravetUK]

For #PurpleDay we share Josie-Mae's story, to join thousands worldwide increasing awareness of #epilepsy! https://t.co/HenSi2Zxdg

RT to raise awareness of treatment-resistant epilepsies & challenges faced by those living with #DravetSyndrome & their families, each & every day.

[Katherine Raven @KatRaven15]

@CharityComms Really looking forward to it, see you soon! 🙌🏻

[Katherine Raven @KatRaven15]

Looking forward to attending @CharityComms virtual Strategic Marketing conference today and tomorrow to hear about best practice and the latest trends. #CCMarketing24 #CharityComms

[CharityComms @CharityComms]

It’s time to turn your marketing ideas into action!

Our Strategic Marketing Conference is back, bridging the gap between theory and practice. We’ll help you apply sector-leading insights to strengthen your marketing activity.

Book today: https://t.co/04lXc0RvxW #CCMarketing24

[Katherine Raven @KatRaven15]

I recently started working for a wonderful charity called @DravetUK This short film gives a small snapshot of what it’s like to live with Dravet Syndrome and how it affects adults with the condition and their families in different ways. #RareDiseaseDay2024 #DravetSyndrome

[Dravet Syndrome UK @DravetUK]

Emily & Mum Lisa, and Ben & Mum Liz, explain what it’s like to live as an adult with #DravetSyndrome. While the first signs usually occur in the first year of a child’s life, #Dravet is a life-long condition.
Help us raise awareness for #RareDiseaseDay by sharing their stories👉

[Dravet Syndrome UK @DravetUK]

Today is Rare Disease Day - a day for coming together to raise awareness of all rare conditions. Dravet Syndrome UK advocates for one of the many rare and complex diseases affecting families worldwide. #RareDiseaseDay #DravetSyndrome #DravetAwareness #StrongerTogether 1/2

[Katherine Raven @KatRaven15]

Enjoyed attending @FertilityNUK’s 20th anniversary reception @HouseofCommons tonight in my role as Trustee. An inspiring evening celebrating the charity’s achievements & hearing from Grace & her son Alistair who was the first boy born through IVF (& 2nd baby) #Forward4Fertility