Excited to be speaking at 4th Operationalize Expanded Access Programs Summit running January 30 – March 19-21 in Boston!
You can click the link to find out more about the full 3-day agenda - https://t.co/FRm5uG39nf
@Delta says wheelchairs need to be ready for loading 45min before a flight (or lies told to kick me off my earlier flight) but here we sit waiting on ground crew 1:15hrs delayed. #lies#shameful#disappointeddisabled
disappointment so quickly is as crippling as #als itself. #DeltaAirlines you need to make right by this #alswarrior because the wrath of #ouralscommunity knows no bounds - we’re dying and we’re the strongest collective movement you’ve ever met.
This is my friend @Kate4218 and this is right before @Delta SCREWED her over! She was connecting through @JFKairport and waiting on her wheelchair to go to the next gate when the gate agent informed her that since she wasn’t at the departure gate 45 minutes early her seats were
We recently spoke with Kate Nycz about her experience with #ALS and getting involved in the ALS community after her diagnosis. We’re honored to highlight ALS stories like Kate’s and continue supporting the ALS community. #TogetherWeFight
Looking forward 2 tonight's #ALS#LG4DAY game @ #FenwayPark! The @RedSox are off tomorrow so their commemorative #LouGehrigDay game will be played tonight against the @Reds. We were given 5 tix for 1 #ALSfamily to attend & are looking forward to this special night. #StrikeOutALS
Tonight at 6:45 pm I get to do something I never ever dreamed I would do.
I will roll out onto Wrigley Field with my family and my friend @SteveGleason to watch my brother and Steve's son throw out the first pitches for #LouGehrigDay.
Life, you are insane in every way.
In honor of Lou Gehrig Day, here's my baseball story:
At 25, I was warming up for a softball game when I first noticed the tremor and weakness in my left hand. Playing catch, rounds in the batting cage, and the game I had always loved were no longer activities I could do.
Ahead of Lou Gehrig's Day tomorrow, we are honored to welcome representatives from several organizations who have played a major role in raising awareness and funds to fight ALS.
Went wine tasting today and the asshole worker yelled at me that I was walking in the employee entrance (at the end of the ramp from the handicap spot). Then said well if you have a bum leg it’s fine I guess…#imnotdrunkihaveALS#Ableismasshole#ignorance