Katelyn Laws

@appstate '18 | @AmericanU MPP '20 |@RareAdvocates Associate Director | (she, her, hers) | Opinions are my own

[RDLA @RareAdvocates]

“This is a pivotal point in time where government leaders, advocacy organizations, healthcare community, scientific community and industry come together and take an epic leap forward to improve the lives of so many people in the rare disease community.” - Duane Clark @sanofi

[RDLA @RareAdvocates]

“Rare diseases are not a rare problem. Millions are affected, and many do not know they have a rare disease." @RepGusBilirakis Rare Disease Caucus Co-Chair #CaucusBriefing

[RDLA @RareAdvocates]

"I am incredibly optimistic that this study will be used by leaders to make meaningful policy changes to shorten the diagnostic odyssey for patients and families — that will be life changing for millions of families.” Sarah Marshall @UDNconnect

[Katelyn Laws @KatelynALaws]

Rare disease nonprofit organizations: Be sure to check out our Rare Giving program! We are offering sponsorships for both events and tools/resources. Applications will close on October 27th.

[RDLA @RareAdvocates]

Did you know that we have a program that can provide financial support to organizations in the rare disease advocacy and public policy space? If you're interested in this opportunity, don't forget to check out Rare Giving!

Apply here: https://t.co/UERE098lve

[Katelyn Laws @KatelynALaws]

ATTENTION OHIO ADVOCATES:

[RDLA @RareAdvocates]

Ohio Ohio Ohio, we're coming your way!

We need YOU and every resident of #Ohio who is impacted by rare disease to join us for Rare Disease State Advocacy Day on October 17th, and make your voice heard.

To register and learn more visit: https://t.co/a9L4VSEh0l

[RDLA @RareAdvocates]

Are you ready to take your advocacy journey to the next level?

Rare Advocacy Learning is a free, six-week seminar series that provides in-depth education and advocacy training, developing a pathway toward year-round advocacy engagement.

Apply here https://t.co/Cj80sR6beN

[Katelyn Laws @KatelynALaws]

Invite your newly elected Members of Congress to be champions for the rare disease community and join the Rare Disease Congressional Caucus!

[RDLA @RareAdvocates]

As a rare disease advocate you are a very important part of the legislative process. You can make a difference by making your voice heard by your Senators and Representatives.

Please take action and contact your Members of Congress: https://t.co/zutdRQ3LgZ

[Katelyn Laws @KatelynALaws]

@RareDiseaseDad @GlobalGenes @RareAdvocates @EveryLifeOrg Thank you for these kind words. I really appreciate it, Adam! Hopefully we will have another chance to meet in person soon!

[Katelyn Laws @KatelynALaws]

It was an honor to speak to attendees at @GlobalGenes RARE Patient Advocacy Summit about beginning their rare disease advocacy journey. If you're interested in getting involved, visit https://t.co/vdiDNGjL4h or reach out to me at [email protected]! #RDLA #raredisease

[EveryLife Foundation @EveryLifeOrg]

Our panel of #RareDisease advocates talking about their #advocacy journey as parents, young adults and patients. @ramirezholmes, Ali SP and Laura Romano join @KatelynALaws

[Katelyn Laws @KatelynALaws]

@EMoriartyWade @GlobalGenes I wish we had had the chance to meet as well! If you will be at Rare Disease Week in Washington D.C, I would love to connect!
https://t.co/laJpQIJK5k

[Katelyn Laws @KatelynALaws]

Panelists include:
Jenifer Ngo Waldrop, Rare Disease Diversity Coalition
Nicholas Manetto, Faegre Drinker Consulting
Cheryl Jaeger, Williams & Jenson PLLC

To register, click the link below:
https://t.co/tgB8IiY5NH

[Katelyn Laws @KatelynALaws]

Join us for the last RDLA webinar of 2022! During this webinar, advocates will hear from a panel of policy experts on what to expect for rare disease policy priorities in the lame duck session and the new Congress in 2023.

[Paul Bronks @SlenderSherbet]

This hamster is all of us just trying to get to the end of 2022.

[Katelyn Laws @KatelynALaws]

@SaritaEdwards I see that Rare on the Road shirt!! Love it

[RDLA @RareAdvocates]

ICYM: Check out this year's #RareVoiceAwards2022 finalists and register to attend in person on December 14th: https://t.co/kHNeuIfw0v
https://t.co/ZUFSgXrVcI

[Katelyn Laws @KatelynALaws]

If you're interested in learning more about how you can help get end-of-year rare disease policy priorities across the finish line, join us on November 15th for the November RDLA Webinar! To register or learn more, click the link below.
https://t.co/gyMLkjh4sA

[BikeIndex DC @stolenbikesdc]

STOLEN - Brown Lectric eBikes XP Lite in Northwest Washington https://t.co/zHR5lg4OEY

[Katelyn Laws @KatelynALaws]

#stolenbike #lostbike #foundbike #washintondc #ebike

[Katelyn Laws @KatelynALaws]

DMV FRIENDS: Please help me find my stolen e-bike! The e-bike was stolen Wednesday, October 12th on the corner of 11th & F St NW in downtown D.C. Whoever stole it does not have a key so they must be using it manually.
https://t.co/keYbV5h5SM

[RDLA @RareAdvocates]

The @EveryLifeOrg is offering a limited number of travel reimbursements for advocates attending Rare Disease Week on Capitol Hill 2023 in Washington D.C. #raredc2023

To learn more and apply visit: https://t.co/dHvbbQ3L6J