Katy Beeden 💙

[The RPSG @TheRPSG]

.....Very informative patient speaker, and a great evidence-based perspective #ESPN2024 - part of Plenary.

Excellent.

#Nephrology #PaediatricNephrology

[Katy Beeden 💙 @KatyBeeden]

@emmabeeden @GreatOrmondSt @CYPMefirst @NSPCC Same photo taken July 3013! What an amazing ambassador you have been for @GreatOrmondSt 💜 Proud of you every day.

[Theatre Fan @ShaunTossell]

⭐ COOL RIDER - 10TH ANNIVERSARY CONCERT - LONDON PALLADIUM ⭐

THIS WAS W-I-L-D! ! ! 🤪

Tonight felt like Rocky Horror on steroids 😅

The atmosphere was electric, you could feel the excitement in the air ✨

The audience sang along to EVERY SONG 😂

We laughed at the more ridiculous moments, the gentle poking of fun, and cheered and whooped all through out 🥳

The cast were bloody superb, led by the incredible Aaron Sidwell and Ashleigh Gray, all of them understood the assignment... Special mention of Debbie Kurup who ate every moment and Kitty Scott-Claus who was HI-LARI-OUS lol 🌟

It was also really special to see original Grease 2 leading man Maxwell Caulfield along for the ride, you could tell he really appreciated all the love, with a touching thank you to the audience 🥹

Honestly, I had an absolute ball at the theatre tonight 👏👏👏

A massive congratulations and thank you to @chrisdclegg & all involved for making this happen, it was a real special one.....Let's not wait another 10 years eh?! 😉 lol X x x

[Emma @emmabeeden]

This poster is very harmful. I saw something similar in Yr 6 and thought I would fail everything. I sit here now with 9 GCSEs, 3 A Levels, a first class degree and a masters

Even without these qualifications I wasn’t a failure for being unable to attend school due to my health.

[Jasio Sierakowski @jasiocollins]

PLEASE HELP & R/T

Many will know my little Daisy had a kidney transplant recently, that ultimately saved her life.
Our battle continues. Amber, the 3rd born of our triplet daughters has been on dialysis over 4 years.
The last couple of weeks have knocked us sideways. 🧵 cont…

[Jasio Sierakowski @jasiocollins]

Im stuck in hospital with a very sad and poorly 10year old who needs a kidney. She’s been on dialysis 4 years. We are desperate. She’s my beautiful little girl and I can’t watch her suffer any more like this. She has to have a live donor. Can anyone help her please 💜💜💜

[The BMA @TheBMA]

"Self-care must take place alongside, not instead of, medical care."

For #SelfCareWeek Emma Beeden, a member of our Patient Liaison Group blogs on how to enable and support people to self care. https://t.co/VhK6uq4Vcn

[Emma @emmabeeden]

I don’t have the words to describe how incredible @TLBTmusical is!

I love musicals and never thought I would see a show about disability acceptance with disabled actors and characters with real lives, relationships and personalities!

A must see for all! @henryfraser0

[Kidney Care UK @kidneycareuk.bsky.social @kidneycareuk]

🗓️Tomorrow is #OrganDonationWeek, here's how you can get involved:
✅LEARN about #KidneyTransplants: https://t.co/p9WWV9CzE9
✅ SHARE & read stories: https://t.co/HCLLThOLRw
✅ PARTICIPATE in events & visit @NHSOrganDonor!
✅ REGISTER your decision: https://t.co/7RvSUnvPTt

[Stephen Drew🔸🇪🇺 🇺🇦 @StephenDrew72]

It is so good of the @DailyMailUK to help us with a list of the 100 most decent, kind, open minded, caring, positive, inclusive British people of age. Well done to everyone on this list. You are the very best of British. Our true patriots who love our country and our people.

[GoshRenal @GoshRenal]

@GoshRenal have had an amazing first day at the @WHBTG 12 medals in total 🥈🥉🥇 well done team 👏🏻👏🏻

[Emma @emmabeeden]

Looking forward to starting @epfyouthgroup @eupatientsforum Summer Training for Young Patient Advocates 2023 in Riga! This year the theme is medication shortages. 🇪🇺📢 🩺

[Emma @emmabeeden]

Are you a current or former member of a health based youth forum? If yes I would love to interview you for my masters research on youth voice and participation rights in the NHS.

For more information email [email protected]

Please share with anyone who might be interested!

[Emma @emmabeeden]

I can’t explain how much it means to see the wonderful @TheSineadBurke on the cover of @BritishVogue! As a woman with dwarfism our bodies are so often ridiculed, sexualised and laughed at but to see someone who looks like me looking beautiful and powerful in Vogue is fabulous!

[Snowdon Trust @SnowdonTrust]

Emma's experiences growing up with disabilities has led to her interest in children's rights, which she is now pursuing as a #Masters. Her #Scholarship has allowed her to live near her university and continue with her voluntary work https://t.co/r96eUjNGVy
#DisabledStudents

[Katy Beeden 💙 @KatyBeeden]

@emalotlyn Had exactly the same problem and sadly had to leave ours behind in the end. Such a shame as it was a great day. #crufts2023

[NIHR Children and Families Policy Research Unit @UCL_CPRU]

Secondary school students with long-term health problems can miss out on learning, school trips, and friendships. @UCL_CPRU want to hear from teachers how to best support students and what are the challenges: https://t.co/I9vBmWa10r

[Pricked Musical - A new musical comedy @PrickedMusical]

A decade in the darkness... encapsulated in song! Enjoy!🕙🌑🎶
https://t.co/v02YtqyFny
#musicals #theatre #newwriting #shows #showsong #tune #showtune #producer #adecadeinatower #MT

[Carol Vorderman @carolvorders]

NO Jeremy Clarkson. Not on any level, in any circumstance, is it ok to write this stuff about any woman & absolutely NO to "everyone who's my age thinks the same"
No no no. We absolutely do NOT think the same.
Listen to the noise Jeremy. The crowds are chanting "shame on YOU"