Kayleigh Harper

[Kayleigh Harper @KayleighAnne29]

I did something out of my comfort zone!I went to speak to patients and Staff @ the new Phoenix Rehabilitation unit in RDaSH about child hood trauma, lived experience and how I decided to learn how to ride a motorbike as my personal therapy. It was such an honour to be asked.

[Kayleigh Harper @KayleighAnne29]

Sky dive completed ✔️ thanks for all the donations 🫶🏻✈️🪂https://t.co/Wb5iYfRZ7s

[Kayleigh Harper @KayleighAnne29]

I’ve walked / jogged 98miles extra this month - only 2 miles to go before Sunday! My sky dive has been moved to tomorrow morning at 8am due to the weather forecast on Sunday. Getting nervous now 😬
Thank you for all the support and donations ❤️ https://t.co/Wb5iYfRZ7s

[Kayleigh Harper @KayleighAnne29]

Throughout May I’m walking/jogging/running 100 miles and finishing with a tandem skydive on 31st! I’m fundraising for the Lymphangiomatosis & Gorhams Disease Alliance. Check out my @JustGiving page and please donate if you can. Thank you! #JustGiving https://t.co/olQjMUEZpT

[Kayleigh Harper @KayleighAnne29]

I’m taking the jump! On 31st May I will be doing a tandem skydive to fundraise for the Lymphangiomatosis & Gorhams Disease Alliance Inc (LGDA). Check out my @JustGiving page and please donate if you can. Thank you! #JustGiving https://t.co/olQjMUEZpT

[Kayleigh Harper @KayleighAnne29]

Revisiting my long lost skills with my mini 🥰

[Kayleigh Harper @KayleighAnne29]

I never thought I would be asked to present to a group of research academics but today I did just that, and what an amazing experience this was. I’m looking forward to the start of some great collaboration in research and innovation!

[Kayleigh Harper @KayleighAnne29]

Had an amazing time today at the SY C&YP Alliance Conference! What a great example of working in partnership with Children and young people at the very heart of it all ❤️

[Lymphatic Malformation Alliance @LM_Alliance]

Caregiving is demanding—and your health matters too.

Check out our latest blog on recognizing caregiver stress and finding balance. Includes a link to trusted self-assessment tools.

🔗 https://t.co/WyzPVvB8Eo

#CLAawareness #LymphaticMalformations #MentalHealthAwareness

[Kayleigh Harper @KayleighAnne29]

Great turn out at the Sheffield Children’s Hospital Charity Egg Run!

[Lymphatic Malformation Alliance @LM_Alliance]

Apply for the Alfie Milne Young Investigator Award to advance your research in #complexlymphaticanomalies! Deadline for LOI: May 30, 2025, by 11:59 PM EST. Don't miss this opportunity—share to spread the word! https://t.co/omDvo33la6

#lymphaticmalformations #lymphaticresearch

[RDaSH NHS FT @rdash_nhs]

Change management professionals came together earlier today from across the county to share good practice and to work towards avoiding duplication, tackle consistency and ultimately target health inequalities to transform patient care across #SouthYorkshire #Rotherhamiswonderful #doncasterisgreat #nhs #symhlda

[Lymphatic Malformation Alliance @LM_Alliance]

Update from UCL-GOSH CLA Research: Leading the way in #CLA care with new genetic tests & targeted therapies. 🧬✨ Collaboration with NHS & experts ensures top care for UK patients.

#HealthInnovation #CLAawareness #MedicalResearch

Learn more: https://t.co/hJA0fcOz8C

[Jess Anderson @JessyDouble]

The @theQCommunity #QExchange is now open. If you are a Q community member please consider voting for us - https://t.co/svvUWhAkwr. Each day we will be tweeting a reason why you should vote for us 1/2

[Kayleigh Harper @KayleighAnne29]

An incredible day at ‘Breaking Cycles’ 2024 SY CYP Alliance Conference. I laughed, learnt, cried, danced and even wrote poetry! now to do the doing, together with our future generation ❤️ “don’t do it to us, do it with us” #SYCYPAlliance

[Kayleigh Harper @KayleighAnne29]

This is how we do hospital appointments 😂😍🏥👑🇬🇧

[Kayleigh Harper @KayleighAnne29]

Had a lovely morning @pfgdoncaster with @glynbutcher and members. And then an afternoon of engagement, raising interesting conversations about adult ADHD referral forms and pathways. Take away from today: why do we over complicate things? #Keepitsimple

[Kayleigh Harper @KayleighAnne29]

It’s mental health awareness week! We talk about physical health all year long, I bet If we all took time to understand mental health our physical health would be a whole lot better.

learn about personality disorders today and raise awareness https://t.co/REeu7IgNCc

[NHS South Yorkshire @NHSSYICB]

NHS South Yorkshire ICB and the City of Doncaster Council are hosting a community Death Café during Dying Matters Awareness Week. Everyone is welcome to join us for open conversations around dying and death because #TheWayWeTalkAboutDyingMatters

#DMAW24

[Kayleigh Harper @KayleighAnne29]

@glynbutcher @stuman119 @rdash_nhs @TobyLewis_NHS @Steve__Forsyth @rylatt_paula You were both amazing and Stu so incredibly brave and inspiring! Thank you for sharing your story ❤️