Keep Sam Smiling

I’m Katy, mum to Sam aged 14 who has Morquio Syndrome, we’ve successfully campaigned to ensure the first ever treatment called Vimizim is funded by the NHS.

[Keep Sam Smiling @KeepSamSmiling]

Sponsorship opportunity ❤️. Charity Ball for @MPSSocietyUK in Harrogate on 7th Oct.

Do you run a small business or know someone who does, who might sponsor a table for £20?

We’ll thank & acknowledge you & share leaflets / business cards on the night.

Thank you x x

[Keep Sam Smiling @KeepSamSmiling]

Last 4 weeks of ticket sales! Please help us with a final push!

We’ve an incredible evening planned. From walk around magician to surprise entertainment, from Photo Booth to 1980s style video games, disco, dancing, 3 course meal and fizz, as well as raffle and silent auction 🙏

[Keep Sam Smiling @KeepSamSmiling]

💙💙💙💙💙. Come and support us and the wonderful @MPSSocietyUK x x

[MPS Society UK, here for those with rare diseases @MPSSocietyUK]

Get dressed up for a night to remember at Katy Brown’s MPS Charity Ball at the Crown Hotel, Harrogate to raise money for the MPS Society. It promises to be a wonderful event & we are so grateful for the family’s support. Email [email protected] for tickets. 💙

[Keep Sam Smiling @KeepSamSmiling]

@VancityReynolds @RMcElhenney our son Sam has Morquio, a v rare genetic condition. We’re organising a charity ball for @MPSSocietyUK. We’re not Wrexham fans (sorry) but Barnsley so get the grass roots ecstasy & agony & ❤️ what you’re doing. Might you donate an auction prize? 🙏x

[Keep Sam Smiling @KeepSamSmiling]

@ZoeTheBall @sarajcox @vernonkay @Rylan can you help my family and this event by retweeting to spread the word? This wonderful charity is a lifeline to us and many others across the UK 🙏

[Keep Sam Smiling @KeepSamSmiling]

Pls retweet & help us to publicise our family organised event to raise money for a wonderful small charity. You may not have heard of @MPSSocietyUK, unless you’re affected by MPS & related diseases. But they’re a lifeline if you are. Tickets available at [email protected]

[Keep Sam Smiling @KeepSamSmiling]

Pls retweet & help us to publicise our family organised event to raise money for a wonderful small charity. You may not have heard of @MPSSocietyUK, unless you’re affected by MPS & related diseases. But they’re a lifeline if you are. Tickets available at [email protected]

[Keep Sam Smiling @KeepSamSmiling]

4 months tomorrow it will be party time! Don’t miss out, get your tickets now by emailing us at [email protected] 💙. Really appreciate everyone’s support xx

[MPS Society UK, here for those with rare diseases @MPSSocietyUK]

MPS diagnoses are often delayed as symptoms & severity vary, & many specialists either aren’t aware of MPS or aren’t able to piece symptoms together. The @IMPSN’s mission is to speed up identification of key MPS symptoms & raise awareness of the urgency of reaching a diagnosis.

[Keep Sam Smiling @KeepSamSmiling]

MPS Awareness Day 2023 . Super proud of Sam & the amazing young man he is becoming ❤️. I’m emotionally all over the place with MPS at the moment as things are not easy so I’m going to go less for words & more for this👇. Doing all we can to increase MPS Awareness. Pls support x

[Keep Sam Smiling @KeepSamSmiling]

Come and join us 🙏❤️

[MPS Society UK, here for those with rare diseases @MPSSocietyUK]

One of our lovely Trustees, Katy Brown is holding a Charity Ball on Sat 7 October in the Crown Hotel, Harrogate to raise money for the MPS Society. It promises to be a wonderful event & we are so grateful for the family’s support. Email [email protected] for tickets.

[Keep Sam Smiling @KeepSamSmiling]

Our family is working so hard to make this ball a huge success but to create real impact, we need the kindness and generosity of others. Can you or someone you know help us with raffle prizes, sponsorship or even a celeb connection? 🙏❤️🙏

Always grateful and always hopeful x

[Keep Sam Smiling @KeepSamSmiling]

@sarajcox our family are organising a ball in Oct to raise money for a fab cause close to my ❤️. MPS diseases are rare genetic conditions, our son Sam has one. I’d love to find someone exciting / more interesting than me to join us & draw the raffle. Could R2 friends help? 🙏 x

[Keep Sam Smiling @KeepSamSmiling]

Organising a ball as a family is really hard work but lots of fun too! Can you help us spread the word? The more tickets we sell, the more successful it is & the more we raise for @MPSSocietyUK Pls retweet & email [email protected] for tickets x x

https://t.co/wbCeur7EoT

[Shirine Khoury-Haq @skhouryhaq]

It’s Deaf Awareness Week, focussing on inclusion of 12m UK adults who are deaf or have hearing loss. In partnership with our @CoopRepresent network, our deaf colleagues hosted a Q&A and an intro to BSL. We are proud to support our deaf colleagues in their careers @coopuk 💙

[Keep Sam Smiling @KeepSamSmiling]

@skoshyork thank you so much for another incredible lunch yesterday (the blood orange tart - wow!) and thank you too for donating a raffle prize to support our charity ball to raise money for @MPSSocietyUK - it means the world to us x x

[Keep Sam Smiling @KeepSamSmiling]

@sarajcox My grandma said my hair looked like straw. She insisted she meant the colour and not the texture 😂

[Keep Sam Smiling @KeepSamSmiling]

@sarapascoe Hi Sara - amazing :) and funny you mention Harrogate, I’d sent you an email via your website hoping you might be able to support us with a charity ball we’re organising, in Harrogate in Oct 🙏

See below a video we made with the kids x

https://t.co/wbCeur7EoT

[Keep Sam Smiling @KeepSamSmiling]

Please watch and share our video 😊 and come and join us for a brilliant night to raise money for a wonderful charity @MPSSocietyUK x x

https://t.co/wbCeur7EoT

[Keep Sam Smiling @KeepSamSmiling]

@sarapascoe hello 😊, last week I sent you a message via your website hoping you might be able to help us with our charity ball, also wanted to share a little video we made this morning to publicise the event ❤️

https://t.co/wbCeur7EoT