One of the worst things society has ever done is discussing infectious disease in binary terms:
“you either die or you survive”
This implies survival = full recovery.
Surviving viral illness can often mean never returning to baseline health.
And people need to remember this.
Yep, that’s me in the first image. You may not see the millions stuck at home struggling with #LongCOVID but we are still here, and unfortunately the numbers impacted grows each day.
5 years ago I caught COVID and never recovered. I am fatigued, weak, in pain 24/7. My brain is mush. I only leave the house to see doctors and that alone is a huge struggle. My quality of life is lower than that of a cancer patient. We need treatment NOW #LongCovidAwarenessDay
Fellow journalists, here's something you may not know: 6 years later, the pandemic has still not been declared over by the WHO.
Probably worth remembering when you read/type the inaccurate phrase "during COVID" or "post-pandemic" throughout the day today and in future stories.
@CureLongCovid@AaahSkulls I can hold my breath for an insanely long time with 0 impulse to inhale. Also diagnosed with central sleep apnea after several nocturnal seizures from not breathing. Helpful to finally see an article explaining this.
Everyone repeat after me: complex and post viral illnesses are NOT caused by wrong thinking or attitudes, and thus cannot be cured by right thinking or attitudes.
These are NEUROIMMUNE (and often autoimmune) diseases, with real pathology, requiring real medical treatment!
Appreciate @fox4kc@MattWDAF for sharing my art and story. My struggle with #LongCovid continues, but I remain optimistic and continue to find joy. 🖼️ 🖌️
https://t.co/KyFVwLd6uY
Crucial paper published Friday that deserves much more attention in the #LongCOVID world: https://t.co/baSXgWXo80.
TLDR: 13/15 immunocompromised patients who had chronic COVID infections (>200 days) cleared the virus in under 2 weeks when given combo antivirals/monoclonals
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This is worth watching as it is so hard to understand what children and families are going through. And unbelievable as it may sound, there are victims who live in even more constrained states.
Today our response was published in British Journal of Sports Medicine, addressing the recent scientific statement by the American Heart Association in Circulation on exercise intolerance in Long COVID.
🔗 https://t.co/3sLEzf3CI9
with @PutrinoLab@KasperJanssen