Introduction thread!
My name is Kelsey. I'm 24 & live in California. I'm mainly on Twitter for #NEISvoid, disability, mental health, Jewish & queer stuff. I developed POTS in 2018 after having recurring lung infections. Immediately after, found out I had severe Pectus Excavatum
@emkenobi No, Dems did it correctly splitting between 2 people whole Reps did just the 1. This avoided Reps getting both wins for the general election. But everyone voting for the 1 Dem will win vs the 1 Rep.
'your disability doesn't define you, it's not your personality'
Er it kinda does. It affects every aspect of my life from the clothes I wear, the job I do, the food I eat, my sleep, hobbies, travel, education..
Why do they always want us to hide it?
no no you don’t understand you being unaccomplished at 27 is reasonable as you are young and have your entire life ahead of you but ME being unaccomplished at 27 means it’s completely over for me and i will never be anything
Not many talk about passive suicidal ideation and chronic illness. Being actively suicidal is actively thinking and preparing. Many of us with chronic illness have constant passive ideation. We aren’t planning, but we’re always thinking about no longer being here to suffer.
@CarlosBranco@cozycapricorn@lilleethaa I get the weirdest symptoms or rare side effects so it's a pain trying to get treated properly. With enough practice you can manipulate well enough to make them think it's their idea. It's sad to do but I get very good care due to it so no regrets. And I'm usually right.
@CarlosBranco@cozycapricorn@lilleethaa It does if you can shoehorn it in casually enough!
"Yea idk, I was a bit concerned but my best friend is a med student & he insisted it was urgent so I'm here".
I've had it work twice, once for a very atypical-presenting issue & once for a condition that was later diagnosed!
My chronic illnesses affect:
*The food I eat
*The clothes I wear
*The makeup and hygiene products I use
*My ability to stand
*My ability to breathe (if exposed to allergens)
*How often I go to the bathroom
*How I react to medications, supplements, etc
*My ability to work (I can’t)
*My focus (brain fog)
*My sleep
*My pain levels
*Ability to socialize
*Ability to exercise
*Ability to go out and do things (like shop)
*Ability to travel
*My vision
*My teeth
*My skin
*My immune system
*My body’s ability to heal wounds
*My ability to drive
*Etc
So ya, I talk about it. Not everyone has to or wants to talk about their health issues and that’s ok. But some people literally can’t hide their chronic illnesses or disabilities and they shouldn’t have to. It’s nothing to be ashamed of.
(Also worthy of noting: this is a place I’ve found to talk to others who understand. I talk about it much more openly here than anywhere else.)
Spot the difference
Pic 1- left *red* barstools, all lights are half circles, poster face not smiling, different drinks on shelves
Pic 2- left *green* barstools, top lights ball-shaped, poster smiling, also orange napkin coaster missing, extra lights on sides/back of bar
@1995babushka I am in the US! No problem, just figured it was worth a try because they have definitely expanded the generic options. But that's a bummer it's still an issue. 😭
I hope you can find an alternative, corlanor is such a necessity to me and so many others 😔