Kimber Heiling

Fit mom. Rare Disease Mom. Advocate Mom.

[Kimber Heiling @KimberHeiling]

You’d think a pandemic would be cause enough for hotels to put antibacterial hand soap in all the rooms. Keep your face and body bar and give us foaming hand soap.

[Stephen King @StephenKing]

I'll be reading the start of my new book on YouTube, starting tonight at 7 PM. Hope you will check it out.
https://t.co/3s5m22eZ4Z

[Stephen King @StephenKing]

The trailer for LISEY'S STORY drops tomorrow. I love it, and hope you all do.

[Former Cybertruck Owner @TeslaTruckClub]

Never understood @elonmusk hate:
-Came to US with nothing
-Worked through school
-Started successfull businesses

Tesla:
-Made in America
-Veterans program
-LGBT support

SpaceX:
-Reusable rockets
-Astronauts/satellites to space at fraction of cost
-High speed internet for all

[Kimber Heiling @KimberHeiling]

Rare Disease Day!

We love to see people help spread awareness for those in the rare disease community. Today we ask everyone to join their voices with ours to reach more people and bring awareness to the millions of people needing cures and treatment for their rare disease.

[Barack Obama @BarackObama]

When Jackie Robinson faced down slurs, spiked cleats, and pitches aimed at his head—and stole home anyway—he didn't only change baseball. He changed the world and paved the way for others, including me. On his birthday, we’re called not only to honor that legacy but build on it.

[Kimber Heiling @KimberHeiling]

@LouBrutus Cypress Hill and Snoop Dogg

[Pete Buttigieg @PeteButtigieg]

Today should be a national holiday.

[Kimber Heiling @KimberHeiling]

#BlackLivesMatter #BlackOutTuesdsy

[Kimber Heiling @KimberHeiling]

Dear @Twitter , Please put the #ToddlerinChief on a timeout.

[Kimber Heiling @KimberHeiling]

Lilah was 13 months and 3 days old when she was diagnosed with MPS-VI. We had xrays and an echocardiogram sent to a geneticist who then diagnosed her from a picture of her face (then confirmed with urine an
#MPSAwarenessDay
#MPSAwarenessDay2020
#ChaseTheSigns
#ChasingtheSigns

[Josh Gad @joshgad]

https://t.co/q1JgRfkHz4

[Josh Gad @joshgad]

Let’s read! https://t.co/dmHWtH6PAS

[Kimber Heiling @KimberHeiling]

Tomorrow is rare disease day. Lilah is one of approximately 100 people in the US with Mucopolysaccharidosis Maroteaux-Lamy. When life gave her lemons, this sweetheart started making lemonade. #mpsvi #lilahslemonade #Mucopolysaccharidosis #rarediseaseday2020

[Hozier @Hozier]

As posturing heats up alongside the primaries, I just want to make clear to young folks voting for the first time in the US; the policies Warren and Sanders advocate for are not considered radical at all here in Europe. They are what we expect the state to provide its citizens 🖤

[Kimber Heiling @KimberHeiling]

Rare Disease Day is February 29, 2020! Our Rare Action Network will be hosting a celebration in Franklin, WI. Lilah’s Lemonade will be there! Stop by, grab a glass of homemade lemonade and learn about Lilah’s rare disease!

[Kimber Heiling @KimberHeiling]

Huge thank you to @itsjojosiwa for taking the time to make a video response to Lilah! She sure feels special. She will cherish this video forever!

[Kimber Heiling @KimberHeiling]

Our MPS-VI group at National MPS Society Family Conference 2019!

[Kimber Heiling @KimberHeiling]

@tonesandimusic this is 5 year old Lilah loving life at family conference for her rare disease. She loves Dance Monkey! #mucopolysaccharidosis #someoneiloveneedsacure

[National MPS Society @MPSSociety]

Today we honor our #Veterans and say a big “THANK YOU” for your service to our country. We appreciate your sacrifice and recognize those who have and continue to serve. Please share photos in the comments of the veterans in our MPS and ML community. #VeteransDay