I was discharged from adult spinal services as they said there was nothing more they could do for my chronic pain and I had to ask to be referred to pain management in which I’m still waiting in agony to see someone. Another waitlist for me again to be left in more pain!!
After 4 spinal surgeries and diagnoses of arthritis you’d think I’d be an urgent case to see pain management but no left to wait for services as per usual! Iphysically struggle daily with pain and discomfort but my pain falls on deaf ears as they don’t want to help me #scoliosis
When will it be enough? What will it take for this government and health service to acknowledge the catastrophic failings of care for our children?
When will it finally get better?
Chloe deserved so much better,
Harvey deserved so much better,
Dollceanna deserved so much better,
Cathal deserved so much better,
Tamara deserved so much better,
The children and families still here and still fighting deserve so much better.
@CarrollJennifer@SimonHarrisTD@MichealMartinTD is this the kind of Ireland you are proud of? So much for cherishing all the children of the nation equally.
#JusticeForChloe #JusticeForHarvey #StepUpOrStepDown
Our son is wait-listed since Nov 2024.
CHI refused to fund our child’s surgery in the UK with a respected spinal surgeon.
Instead we face repeated administrative barriers just to try access funding.
Children should not have to wait like this.
Mismanagement & waste.
Children with scoliosis left to wait in agony for their operations. Distraught parents left to pour their hearts out in the media. Broken promise after broken promise from government.
Brave parents have fought tooth and nail for a public inquiry into Children’s Health Ireland. That inquiry must have their total confidence. No railroading. No whitewashing. Just the full truth, accountability and real change.
Ní mór don iniúchadh poiblí ar Sláinte Leanaí Éireann muinín na dtuismitheoirí a bheith aige. Caithfidh sé a bheith dírithe agus múnlaithe ag taithí agus ag riachtanais na leanaí agus na dteaghlaigh atá buailte leis seo. Le haghaidh athrú fíor.
Day in my life as a 22 year old living with chronic pain caused by being left on waiting lists for scoliosis surgery nearly 12 years ago and the effects still remain with me today.
The battle doesn’t end with the surgery its lifelong implications from waiting lists!
#scoliosis
Chronic pain lives with me everyday and I live on pain medication to get me through my day!
These delays have caused me so much stress and pain that I don’t live a normal life!
Timely access to care is key to stop lifelong issues occurring.
#scoliosis#waitinglists
@KiraCarberry featured in RTÉ Prime Time Investigates documentary Living on the List.
She did have #scoliosis surgery.
But she waited too long.
Because of those delays, her condition progressed. The outcome was reduced. The chance for a better correction was lost.
Today, she lives with chronic pain.
And when she became an adult, she was left waiting again.
The harm did not stop at 18.
It followed her.
Kira deserved timely care as a child.
She deserves full access to the highest quality care now.
Access to appropriate, evidence based care is a basic standard.
@CarrollJennifer@SimonHarrisTD@MichealMartinTD
As news breaks this morning of more failures in CHI here is the clinical director telling us the springs was an isolated incident 👇👇👇https://t.co/zIqULit95i
Tonight at 7.00 pm 🕯️
Please light a candle for Harvey Morrison Sherratt 💙
Today would have been Harvey’s 10th birthday 🎂
#waveoflight#JusticeForHarvey
A small light, for a much-loved child ✨
Holding @GillSherratt23@Stephen63224725 & family gently in our thoughts 🤍
Dear Harvey, your light will shine on forever 💔 today you should have turned 10, but your life was cut cruelly short.
The fight for #JusticeForHarvey very much continues. We recently received the autopsy report to find cause of death, and an inquest in to the circumstances and the abundance of failures is coming. We will share it all when we can as we strongly feel it needs to be on the public record. The cause of death has only added to our anger and our need for justice and accountability has never been stronger.
I am confident that Harvey’s light will guide us every step of the way.
#WaveOfLight #LightUpForHarvey
A statutory public inquiry into paediatric care is coming.
This meeting explains what it is, what it can do, and how your voice fits into it.
If your child faced unsafe delays, cancelled surgery, lack of access, or poor governance, this matters, as failures in timely paediatric care can lead to disease progression, avoidable complications, reduced treatment options, and in some cases lifelong health and functional impacts.
📍 Saturday 10 January 2026
📍 Ashling Hotel, Dublin (beside Heuston Station)
🕚 Registration 11:15am | Finishes 3:30pm
🔒 In-person only
Hosted by
@scolionetwork@SBH_PAG
with Malcomson Law, specialists in health law and patient representation.
Healthcare Emergency This photo should be on the front page of every paper in the country.This has gone way beyond neglect.
Children have Died 🚨
Childrens futures destroyed🚨
Mental torture for Parents and siblings🚨
General Public Horrified🚨
Paediatric healthcare collapse🚨
Today is a big day in the scoliosis and spina bifida communities.
@CarrollJennifer will bring a memo to Government recommending a statutory public model of inquiry - a tribunal of inquiry.
For the children who spent their childhoods in pain, waiting, hoping, and too often being forgotten, this is a long-overdue step towards truth, justice, and the protection they always deserved.
For our two lovely boys ❤️ our inspiration - young men now, both still waiting on surgery. This fight has always been for them, and our pride in them is beyond words. @chelleylong@ClarCahill
As the vote goes to cabinet today for the inquiry in to care of children with Spina Bifida and scoliosis, I want this image etched in their mind.
A simple closed door.
Harvey’s bedroom door.
A door I cannot clean because those marks at the bottom are from him bursting through it in his wheelchair.
Bursting through, full of joy, full of life.
This door should be open.
Sounds of laughter should still be echoing from that room,
But it remains closed.
#JusticeForHarvey
Today, Government has agreed in principle to establish a full Statutory Inquiry - a Tribunal of Investigation - into the failings in paediatric spinal and/or Spina Bifida care.
On days like this, it’s important to stop and remember why this matters.
Not the politics.
Not the statements.
But the children.
The families.
I spent the journey home speaking with a parent whose child is no longer alive. A child failed by a system that should have protected them. A family living with a loss that can never be repaired.
This is why we fight. @SBH_PAG
This is why accountability matters.
This is why truth matters.
For every child still waiting.
For every family still carrying trauma.
For every voice that was ignored.
Agreement in principle is only the start. We need the full Tribunal, and we need it to deliver truth, justice, and real change. Nothing less will do. @CarrollJennifer@SimonHarrisTD@CHI_Ireland@CcoHse@BernardGloster
Darragh is 12 months waiting on his scoliosis surgery today.
A surgery we were told should happen before Easter 25 “for best outcome”.
No options for outsourcing offered.
Pre ops completed Jan-Feb 25. All out of date now. Waste of money. Harm to our child. @CHI_Ireland