I don’t delete posts when my team doesn’t play well. You can comment this didn’t age well all you want. I ride with my team. Still got faith. All you fair weather fans get at me. I ride with mine winning big or losing.
Courage is speaking out and fighting for something when it would be easier to stay silent. Along my ALS journey I’ve met so many courageous people. At the top of that list is @RebeccaJLuker. Rebecca, stay strong, keep fighting and keep shining.
PLEASE @US_FDA@SteveFDA@Cylebo@BrainstormCell SAVE ALL PEOPLE W/ #ALS- 3rd phase results soon! DONT LET EVERYONE DOWN! Our hearts cant take any more loss. 150+yrs of no hope, YOU can give HOPE. It is time! #NurOwn
Lately the weight of living with a terminal, incurable and unrelenting condition feels unbearable. It's not the discomfort, there's little of that, it's not the fear of death, we must all endure this inevitability. It has more to do with feeling, well useless.
The first sip of coffee stops the legs from shaking due to ALS.
The second sip kicks the brain into gear, forces a deep breath and an appreciation for being here.
The third sip reminds me I have a lot to do and to get to it.
Here’s to an amazing day.
ALS-THE FORGOTTEN DISEASE
This is ALS. Richard just before his Death.
ALSA you need a BRAND??
How about this Image BRANDED on you like a Cow using a Red Hot Branding Iron.
You Do Nothing but Fundraising.
I watched my Richard DIE. I now watch our Son suffer from PTSD.
"ALS is currently terminal. It does not have to be terminal. We're on the precipice of change. I will be part of making that change real and ending ALS." - @bsw5020
Alongside Brian and @JeffFortenberry we will make change real. You in?
@JournalStarNews
https://t.co/83pauKUgwH
Thank you to everyone who signed the petition! Because of you, we are one step closer to getting #AMX0035 to people living with #ALS. Please spread the word and share this link with three of your friends: https://t.co/fSjdSF7AWr
I need a lawyer I was assaulted by my home health aide and she was arrested so the agency dropped my services I’m in DC, Medicaid did nothing, The ALSA did nothing, my caseworker did nothing I’m dying and can’t get any help because I have #ALS it’s sad please someone help me