Kathryn Haering

[Kathryn Haering @Kitkat1329]

@liamsLCjourney To get what I needed I had to combine specialists: I got ivermectin from The Long Covid clinic run by The Menopause Consultancy, Mast cell stabiliser Sodium Cromolyn and LDN from Dickson pharmacy and Mestinon from Dr Sanjay Gupta a POTS specialist.

[Kathryn Haering @Kitkat1329]

@samsomatt @liamsLCjourney I had a good experience with them, but I've had to mix a number of doctors to get what I need, which are certain medications.

[Kathryn Haering @Kitkat1329]

@useless_priest It made me feel absolutely terrible!

[Kathryn Haering @Kitkat1329]

@ThePOTSPostman It helps me too!

[Kathryn Haering @Kitkat1329]

@JackHadfield14 My mother has a severe brain micro hemorrhaging disease. Her comorbid dystonia is also distractible, but she gets treatment for dystonia. My dystonia is diagnosed as FND though even though I have a gene for dystonia and my grandmother also had symptoms...

[Kathryn Haering @Kitkat1329]

@finnishgunners The crazy thing is that you could very easily be prescribed anticonvulsant medication for mood lability from a psychiatrist. If you have an FND diagnosis and seizures though, they wouldn't give them to you. It's farcical🤦‍♀️

[Kathryn Haering @Kitkat1329]

@JackHadfield14 Wonderful news! I have multiple mtDNA deletions and Long Covid has caused severe disability. I hope it doesn't take too many years to get this drug out!

[Kathryn Haering @Kitkat1329]

@RenzPolster @JackHadfield14 I was diagnosed with ME/CFS and Long Covid, but when a mitochondrial team investigated they found multiple mitochondrial DNA deletions. Some people don't have as many deletions as others so they either don't suffer for so long or have a milder version.

[Kathryn Haering @Kitkat1329]

@againstthe71256 @Nick_Wellings I was told by the top neuromuscular doctor at UCLH in London that Parkinson's patients also often have FND symptoms. It's just one of the 'medically unexplained symptoms' due to no biomarker badges and the ghost of Freud haunting us all still.

[Kathryn Haering @Kitkat1329]

@sunsopeningband Thank you for being a voice for a very poorly group of patients who wouldn't have energy to fight their corner on this. Being brave is rare

[Kathryn Haering @Kitkat1329]

@benh_mecfs I am so with you. Just saw some psychobabble from a psychologist who thinks ME/CFS patients need to 'reframe' their illness beliefs... I thought we were past the ignorance, but clearly not.

[Kathryn Haering @Kitkat1329]

@sanilrege @psycheureka Please stop this.

[Kathryn Haering @Kitkat1329]

@DanMissailidis My genetic blood tests showed no issues, yet my muscle tissue showed multiple mitochondrial DNA deletions.

[Kathryn Haering @Kitkat1329]

@DrAseemMalhotra @reformparty_uk Unfortunately this was more of a hit piece. She isn't a journalist, rather a propaganda puppet trained to follow talking points and cut you off at times that make it impossible for you to get your point across.

[Kathryn Haering @Kitkat1329]

@angryhacademic There are also natural antifungal you could try if there are no medical ones that are safe...

[Kathryn Haering @Kitkat1329]

@angryhacademic It's shocking, but happens do often, I wonder what role doctor's actually play aside from being zombie drug pushers... I'm really glad you checked

[Kathryn Haering @Kitkat1329]

@angryhacademic Are these all of your medications? Doctors and pharmacists have continually prescribed me meds that interact with other ones I'm on. I've learnt not to trust them and to check myself.

[Kathryn Haering @Kitkat1329]

@DafoeWhitney Hiya, I react badly with breathing issues to any agents that affect my muscles and seem to depress my diaphragm muscles too. Melatonin was one of them I tried a few times, but also depressed my breathing a bit.

[Kathryn Haering @Kitkat1329]

@Renmakesmusic Got a feeling methylene blue will turn up in one of your tunes soon... will be looking out for it