Los Angeles ASF Walk

Join us for the 2022 Angelman Syndrome Foundation Walk on Saturday, May 21st - location TBD

[Los Angeles ASF Walk @LAASFWalk]

https://t.co/wNW0ZEfQKM #AngelmanSyndrome

[AngelmanSyndromeFdn @angelman]

🔊🔊 Sound on.
Episode 2 of the Angelman Syndrome Foundation Podcast is available! Amanda and Liz Jalazo, MD discuss the LADDER Learning Network and how to get a plan for clinical care for your loved one.
Available on Apple Podcasts, Google Podcasts and Spotify.

[AngelmanSyndromeFdn @angelman]

Whether you are new on your Angelman journey or not, all are welcome. Join us 9/20 at 8pm EST. Find out what to do after diagnosis, learn about resources available to you, genetics of AS, research concepts, as well as Q&A time.

Register to join: https://t.co/i4i7Vc74g9

[AngelmanSyndromeFdn @angelman]

Big THANKS to the 2nd Annual Cornhole Cup in Albany, OR. We’re so grateful to Wendy Wines and her unbelievable energy! An awesome event that is a great time and spreads awareness of AS!

[AngelmanSyndromeFdn @angelman]

If you recently received an Angelman syndrome diagnosis, join us Tuesday, September 20 at 8pm EST. Find out what to do next, learn about resources available to you, genetics of AS, research concepts and advances you should be aware of, as well as Q&A time.
https://t.co/i4i7Vc6wqB

[AngelmanSyndromeFdn @angelman]

What an amazing gift from @OvidRx! Data from the NEPTUNE trial will be added to the LADDER Database.
“The most important gift that industry can give to the community is data to help us understand AS better and expedite the possibility of a therapeutic treatment.” Amanda Moore

[AngelmanSyndromeFdn @angelman]

Huge Thanks to Stetson’s Chip Away @ AS Golf Tournament! The Ely Family has held this tournament annually and we are so grateful!

“There will never be a way to articulate just how grateful we are for all the love and support we feel this day each year.” Matt & Kathryn Ely

[AngelmanSyndromeFdn @angelman]

ASF Family Conference session recordings are now available on our website.
https://t.co/PiDh6mWX0a

[AngelmanSyndromeFdn @angelman]

Huge thanks to the Sargent Family for hosting Maddie’s Mission Foundation Block Party! Their event raised money for the future ASF Clinic.

Thinking of hosting an event in your area to benefit AS research, clinics or family support? Contact Kitty Murphy at [email protected].

[AngelmanSyndromeFdn @angelman]

An article was published in Human Genetics titled, From first report to clinical trials: a bibliometric overview and visualization of the development of Angelman syndrome research.

See it here: https://t.co/ReEQRjYIgL

[FAST @cureangelman]

Have you heard? Parents and grandparents of individuals living with #Angelmansyndrome can apply for a ticket giveaway, and parents can apply for an event scholarship! Get all the details on our 2022 Global Science Summit & Gala and apply for the giveaway: https://t.co/Ahxp8ibUZ6

[AngelmanSyndromeFdn @angelman]

THE RESULTS ARE IN!  Your opinions helped raise $28,214 for programs like the ASF Family Fund, Counseling, Behavior Consultations and many more! Thank you so much to everyone who participated and continues to believe in our mission!

[AngelmanSyndromeFdn @angelman]

Interested in volunteering at or coordinating an ASF Walk?  Have questions and need some information before jumping in? Join us TOMORROW, Tuesday, August 16th at 8 pm EST.

Sign up here: https://t.co/hdFyxTkjLm

[AngelmanSyndromeFdn @angelman]

LIVE STREAM from the ASF Conference later today. Tuesday, August 2 at 1:15 CST, watch the Pharmaceutical/Biotech Industry Update session live via Zoom. Access the session here: https://t.co/OB3SbW9E4L

[Dup15q Alliance @dup15q]

Did you know the Epilepsy Foundation offers FREE Seizure Safe School Course for school nurses and personnel available on demand?

Seizure Training for School Personnel is designed for people who work with children and youth in school settings. 

https://t.co/qiJuwoJ9Oc

[AngelmanSyndromeFdn @angelman]

Sign-up to receive important reminders and announcements from the ASF via TEXT.  You can receive reminders for Angel Guardian meetings, updates for the 2022 Family Conference and more! See all options and sign-up today!

https://t.co/v6SngrkK2i