Lewy Body Society

We raise awareness, fund research and provide support. Lewy body dementia is the most common type of dementia you have never heard of.

[Lewy Body Society @lbsorg]

The Lewy Body Society is no longer active on this platform. We will not be posting or monitoring messages and comments.

Stay up-to-date with us on LinkedIn, Bluesky, Facebook and Instagram or our website https://t.co/g6v8Pci4Q2.

Links to our other social sites are in the thread below  👇

[Lewy Body Society @lbsorg]

https://t.co/SlTw5TGUKT

[Lewy Body Society @lbsorg]

The Lewy Body Society is no longer active on this platform. We will not be posting or monitoring messages and comments.

Stay up-to-date with us on LinkedIn, Bluesky, Facebook and Instagram or our website https://t.co/g6v8Pci4Q2.

Links to our other social sites are in the thread below  👇

[Lewy Body Society @lbsorg]

https://t.co/OAdqQWXX8w

[Lewy Body Society @lbsorg]

https://t.co/nfmFFpWlpA

[Lewy Body Society @lbsorg]

https://t.co/DZgbW5nJPl

[David Watts @wattsdp]

50th birthday today. Good day off. Done loads. But - I made sure I went to see a Main man in John Mills to show him we made the local paper @rotherhamtiser about @MainMaltby’s awareness and fundraising for @lbsorg. https://t.co/wZZyGTX3Xx

[Lewy Body Society @lbsorg]

More connections at the International Lewy Body Dementia Conference #Amsterdam.

Thank you to Rachel Thompson, Alison Killen and Allison Bentley - our Community of Practice.

And Sylvia White and Maggie - who both have lived experience of Lewy Body Dementia.

#ILBDC2025

[Lewy Body Society @lbsorg]

@LBDPIA #ILBDC

[Lewy Body Society @lbsorg]

Delighted to see our commercial out in the wild for the first time!

It had its global premiere at the International Lewy Body Dementia Conference in Amsterdam today.

Thanks to the students from @UniCreativeArts, @PinewoodStudios, @Sony and @cookeoptics.

#ILBDC2025 #Lewybodydementia #Amsterdam

[Dr Clarissa Giebel 🇪🇺 🇩🇪 @ClarissaGiebel]

Want to join our research group? If you are a carer for someone with #dementia or live with #dementia, and live in the North West of England, join our #Equadem network as 1 of 2 Public Advisor Researchers for 4 years!
https://t.co/4mIFAhKXxM

[Lewy Body Society @lbsorg]

Our Lewy List is calling on the Government to recognise our four priorities:

➡️The right for all people living with dementia to be treated with dignity and respect
➡️The right to early and accurate diagnosis
➡️The right for Lewy body dementia to be recognised as a distinct form of dementia with unique symptoms and challenges, different from Alzheimer’s
➡️The right not to be denied care home admittance on account of a Lewy body dementia diagnosis

Please do sign: https://t.co/K8tGjp1AFX

#Lewybodydementia #dementia

[Lewy Body Society @lbsorg]

@MEAssociation Thank you for the support!

[Lewy Body Society @lbsorg]

Lovely to see our colleague Dr Maria Cecilia Fernandez from @LewyBodyArg at the International Lewy Body Dementia Conference in Amsterdam today.

We are exhibiting posters today on the 18 years of Lewy Body Society impact by our CEO Jacqui Cannon and our founder Ashley Bayston's Lewy Body International: A coalition of Lewy body voices and action.

Come over and see us!

#Lewybodydementia #ILBDC2025 #Amsterdam @lewybodyint

[Lewy Body Society @lbsorg]

@SportEducation @a2mcl @LewyBodyArg @lewybodyny @LewyBodyIRL @LBDAssoc Congratulations on your new baby!

[Lewy Body Society @lbsorg]

Prof Ian McKeith, LBD superstar legend and great friend to LBS, on the progress of knowledge in the field over the past 30 years.

His Lifetime Achievement Award is well deserved.

#ILBDC2025 #LewyBodyDementia #dementia

[Lewy Body Society @lbsorg]

Prof Evelien Lemstra of VUMC opens the International Lewy Body Dementia Conference.

#ILDMC2025 #lewybodydementia

[Lewy Body Society @lbsorg]

Good morning from the International Lewy Body Dementia Conference 2025 in Amsterdam.

Our founder Ashley Bayston and CEO Jacqui Cannon are raring to go.

Great to see so many of our friends here.

#ilbdc2025 #lewybodydementia
#dementia

[Lewy Body Society @lbsorg]

@SportEducation @LewyBodyIRL @LewyLady @LBDAssoc @a2mcl @jc_cannon13 @chris40781 @LewyBodyArg Love it!

[Lewy Body Ireland @LewyBodyIRL]

What do you know about Lewy Body Dementia?

This #WorldLewyBodyDay find out more about a common - but under-discussed - disease

https://t.co/I0XqxnaU8k

[Lewy Body Society @lbsorg]

As the second World Lewy Body Day draws to a close for us in the UK, we are handing over to our sister organisations around the world.

Thank you to everyone who has supported us and amplified our message.

Together we will work to improve lives for people living with Lewy body dementia and their families.

Please lend your support by signing, if you haven't already and if you have then share, our Lewy List petition to demand four basic rights: https://t.co/K8tGjp28vv

#WorldLewyBodyDay #LewyList #Lewybodydementia #Dementia