ME Association

We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.

[ME Association @MEAssociation]

ME Connect is our free, confidential support service offering a safe, understanding space where you're truly listened to. Whether you need someone to talk to, emotional support or simply a compassionate ear, we're here for you.

Get in touch today:
0808 801 0484
[email protected]

Opening hours:
Monday-Friday: 10am-5pm
Thursday: late night until 9pm
Saturday: 10am-12noon

#MECFS #pwME #LongCovid

[ME Association @MEAssociation]

Update: ME Association investment in @mecfsbiobank exceeds £1M

Read the latest updates and minutes from the UK ME/CFS Biobank Steering Group's September meeting, chaired by Dr Charles Shepherd, MEA Hon Medical Adviser.

https://t.co/h03poes6Ze

#MECFS

[ME Association @MEAssociation]

Reminder - Clocks change tonight!

British Summer Time (BST), also known as Daylight Saving Time (DST), will come to an end this weekend as the clocks go back an hour. 

This change will happen on Sunday 25 October at 02:00 BST, and will mean everyone gains an extra hour.

"Sunset will move forward an hour as well and initially you may notice the sun coming up earlier too."

Read more: https://t.co/rzzzwI3kfE

#MECFS #pwME #LongCovid

[ME Association @MEAssociation]

3/3 For those who may have missed the full A to Z of ME/CFS, all links can be found here:

https://t.co/h47TakSGi4

#MECFS #LongCovid #PoTS #DysautonomiaAwarenessMonth

[ME Association @MEAssociation]

1/3 October is Dysautonomia Awareness Month.

In 2025, we shared an A to Z of common symptoms, experiences, and comorbidities of ME/CFS.

P is for Postural Orthostatic Tachycardia Syndrome (PoTS).

[ME Association @MEAssociation]

2/3 PoTS is a fairly common comorbidity of ME/CFS, especially in younger age groups.
The key symptom is a significant rise in heart rate (tachycardia) upon sitting or standing from a reclined position.

To understand more about PoTS, download our free booklet:

https://t.co/GuOF225WX6

[Beth Dobbin @BethDobbin]

BBC Sport approached @number10gov for a response to my letter to @andyburnham . The @DHSCgovuk responded and unfortunately this statement isn’t anything we didn’t already know. There are also fundamental inaccuracies within it.

Please also bear with me; I’ve had an extremely large amount of messages and I’m operating with a very limited capacity. @Ed_Miliband @tessamunt @JoPlattLeigh @KatieFalkingham @BBCSport @BBCNews @UKLabour @ThereForME_UK @YvetteCooperMP

[ME Association @MEAssociation]

Research: The controversial microclot theory and the use of anticoagulant medication to treat Long Covid

Dr Charles Shepherd comments: "This is an important new research study from Oxford which casts further doubt on the idea that small blood clots – microclots – are involved in the causation of Long Covid..."

Read more on the blog: https://t.co/hrQ7EEQ32Y

#LongCovid

[ME Association @MEAssociation]

Yvette and Andrew Jackson were interviewed at their farm by ITV Border News, where they talked about the impact ME/CFS has had on their lives, and Yvettes new appointment joining the UK ME/CFS Biobank.

Their segment aired on the 22nd of October, and included an interview with Dr Charles Shepherd, MEA Hon Medical Adviser. Watch the segment on the blog! Timestamp 05:30 – 09:30.

https://t.co/DoL3ptkt8K

#MECFS #pwME #MyalgicE #MECFSBiobank #CureME

[ME Association @MEAssociation]

Daily Mail article (PAYWALLED): https://t.co/eZnIatTjHF

[ME Association @MEAssociation]

Dr Charles Shepherd was interviewed as part of a Daily Mail article, and we share on the blog some notes on the key points Dr Shepherd made during the interviewabout the supplement Oxaloacetate which you may find useful.

Read more: https://t.co/Pqd02Iv79Z

#MECFS

[ME Association @MEAssociation]

2/2 An update on recruitment, ethical approval and Public Advisory Group opportunities is coming before the end of the year.

Watch on YouTube: https://t.co/0iXBmtrIdY

More info: https://t.co/CXIWf36RkY

#MECFS #MyalgicEncephalomyelitis #LongCovid #RamsayResearchFund #RosettaStone

[ME Association @MEAssociation]

1/2 PRIME Symposium: Professor Danny Altmann Q&A

Professor Danny Altmann discusses the latest Long Covid research, why scientists must “do better”, and why ME/CFS and Long Covid should be studied together.

He also explains the importance of the Rosetta Stone study, backed by the ME Association’s largest-ever grant of £1.175M to Imperial College.

[ME Association @MEAssociation]

65 days until Christmas! Buy your ME Association Christmas Cards today (Free UK Delivery)

Choose from 3 lovely designs - £4.50 for a pack of 10

The wording inside the card reads: ‘Season’s Greetings and Best Wishes for the New Year’.

6 inches x 6 inches (15cm x 15cm)

https://t.co/k9wBa5T0Il

#MECFS #LongCovid #MEAssociation #ChristmasCards #CharityChristmasCards

[Beth Dobbin @BethDobbin]

We’ve been blown away by the response to my interview with @BBCSport & @KatieFalkingham , thank you so much to everyone who has taken the time to read and engage with it ❤️ millions of views across multiple platforms really is immense.

We have since written to @andyburnham , calling on the @UKLabour government to fund research into this horrific illness. I know there’s so much more we could say, but with limited capacity, we’ve tried to focus on the lack of funding, resources in the NHS and how much it’s actually costing the government.

As you can see on the slides, it has been drastically underfunded compared to other illnesses and it is currently costing the UK Government far more than it would cost to fund research. ME is most often a post-viral illness. Therefore, since the start of the Covid pandemic, we’ve seen cases increase drastically and they will continue to increase. We need funding into research urgently. With estimates of people with ME being around 1.35 million, this is a lot of lives destroyed.

I’ve had thousands of messages on multiple platforms since sharing my story so please bear with me ❤️

Thanks to @ThereForME_UK and @wecrunchme for the stats.

[ME Association @MEAssociation]

Sharing for information: Independent: Dr Amir Khan explains Miranda Hart’s ME symptoms as Celebrity Traitors star reveals impact of chronic illness

N.B. The ME Association are not recommending that people with ME/CFS should undertake this sort of quite strenuous physical exercise until they have had a sustained period of good health that is consistent with improvement/recovery. Also, to note, tiredness doesn't explain the profound fatigue experienced by people with ME/CFS. 

"Doctor Amir Khan explained more about the condition during ITV’s Lorraine show on Tuesday (20 October). He said: “ME is a chronic, serous condition that affects lots of parts of the body, including tiredness, the immune system, the brain function. It is really widespread."

https://t.co/TY0e3teQBb

#MECFS #MyalgicEncephalomyelitis #LongCovid #CelebrityTraitors #MirandaHart #DoctorAmirKhan #Lorraine #ITV

[ME Association @MEAssociation]

We pleased to announce the appointment of Yvette Jackson to the Biobank CureME Steering Group. The @mecfsbiobank, the first of its kind in Europe, is an open worldwide resource for clinical and biomedical research into ME/CFS. 

Read more: https://t.co/DoL3ptkt8K

#MECFS #MyalgicEncephalomyelitis

[ME Association @MEAssociation]

Dr Charles Shepherd and Beth Dobbin, Olympic sprinter, interviewed on BBC Radio Sheffield

Dr Charles Shepherd and Olympic sprinter, Beth Dobbin who now has severe ME, were interviewed by BBC Radio Sheffield live on air on the 19th October.

MEA blog: https://t.co/9dbydXAtcO

The interview starts at around 2.11.40 - (break 2.21.00 -2.25.40) - then continues at 2.35.50 on Paulette Edwards show

https://t.co/kJEpivjP6h

#MECFS #MyalgicEncephalomyelitis #BethDobbin #BBCSportNews

[ME Association @MEAssociation]

2/2 that may be of interest include MP Tessa Munt (Lib Dem) - chair of the APPG on ME - asked questions on SNOMED-CT Coding & the Government's Final Delivery Plan on ME/CFS plus MP Max Wilkinson (Lib Dem) asked about research: Sequence ME for Long Covid & ME/CFS.

#MECFS #MyalgicEncephalomyelitis #SevereME #UKParliament #Sept2026

[ME Association @MEAssociation]

1/2 Parliamentary Questions (PQs) on ME/CFS & Long Covid: Aug/Sept 2026

We've listed all the parliamentary questions asked during this period in the following link:

https://t.co/A3muLjkvxC

[ME Association @MEAssociation]

OMEGA Event: Latest ME/CFS Research from Professor Karl Morten and colleagues!

Tickets: https://t.co/xtfyTlZhZ7

#MECFS #pwME #MyalgicE #Research