#MEAction Network

A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing

[#MEAction Network @MEActNet]

MEAction is launching its largest #MillionsMissing campaign yet – “Pace to the Capitol!”

For the next 7 months, MEAction is bringing ME out of the shadows and into public places across America as we pace to the U.S. Capitol! https://t.co/PVRCagTcbX

https://t.co/MssE13Ls51

[#MEAction Network @MEActNet]

Join us for a roundtable of caregivers discussion facilitated by Denise Lopez- Majano in honor of National Family Caregiver Month that will be held on Nov. 1 at 3 pm ET: “Things We Caregivers Wish We Had Known.” https://t.co/NnloJyh6sI

#Caregiver #FamilyCaregiver #pwME #carer

[#MEAction Network @MEActNet]

Join our Pace to the Capitol! We can’t Race, but we can Pace.

Register today to help change policy, culture and research funding for ME and Long COVID. https://t.co/PVRCagTcbX

Our most ambitious #MIllionsMissing yet!

#pwME #PaceToTheCapitol #pwLC #MEawarenessHour

[#MEActionNC @MEActionNC]

🍁 Happy Fall & Halloween 🎃 Y’all!

@MEActNet NC State Chapter Support Group is upon us. Wed, OCT 21, 12:30 pm ET US. Join us now for open, paced conversation on highs &lows of living with or with someone with ME/CFS or Long Covid. Next post in 🧵has link to join info.

[#MEAction Network @MEActNet]

Two weeks until election day! Have you voted or made your plan to vote?

In September, MEAction participated in the non-partisan Disability Voting Rights Week to help our community be prepared to vote. Check out these resources: https://t.co/avx2DfrD0a
#pwME #Vote #CripTheVote

[#MEAction Network @MEActNet]

And, we need YOU – our community and allies – to show up from your beds, in your communities and in D.C. to make our months-long campaign a success! Register now: https://t.co/PVRCagTcbX

#PaceToTheCapitol #MyalgicEncephalomyelitis #MECFS #LongCovid

[#MEAction Network @MEActNet]

MEAction is launching its largest #MillionsMissing campaign yet – “Pace to the Capitol!”

For the next 7 months, MEAction is bringing ME out of the shadows and into public places across America as we pace to the U.S. Capitol! https://t.co/PVRCagTcbX

https://t.co/MssE13Ls51

[#MEAction Network @MEActNet]

Our campaign will culminate with a powerful display at the U.S. Capitol on May 12.
This campaign is about so much more than just beds. MEAction is working on a number of UNPRECEDENTED opportunities this year & we are using our Pace to the Capitol campaign to make ME VERY VISIBLE.

[#MEAction Network @MEActNet]

You are invited to the MEAction Artist Salon on Nov. 22nd at 3 pm ET. https://t.co/iHm8ynELMg

The salon is a creative, virtual gathering where everyone in our community is invited to attend live and share their art with the wider community. All types of artwork are welcome!

[Solve ME/CFS Initiative @PlzSolveCFS]

The CDC's proposed 2028 survey could leave millions of people with ME/CFS and Long Covid uncounted. Solve is speaking up. You can, too. Submit your comments by October 19!

Check out the link below for details:
https://t.co/cqil0a1GjT

#MECFS #CDC #HealthAdvocacy #LongCovid

[#MEAction Network @MEActNet]

RECOVER-TLC’s 3rd annual workshop is coming up this November 4-5, 2026. Registration is open. A draft agenda has just been shared. In-person and online attendance options. All the info you need can be found here: https://t.co/c5xlpD0a7y

#pwME #LongCovid #NIH

[#MEAction Network @MEActNet]

Caregiver volunteer Denise Lopez-Majano wants to help spread kindness - 70 acts of kindness by her 70th bday on Dec. 7! The 1st act she suggests is to be kind to yourself! Please share if you committed an act of kindness in comments beneath article! https://t.co/CRCxocPBZX

[Massachusetts ME/CFS & FM Association @MassMECFS]

1/4. Annual Mtg - this weekend
This Sunday! Please join us for our Annual Meeting "Being Seen", October 18 at 1pm ET

Full details and register here:
https://t.co/P4MDZGz8i1

[#MEAction Network @MEActNet]

Please join us on November 15th at 4 pm ET for a special talk with Kim Moy of Caregiver Wisdom - "Being on the Same Team: Strengthening Relationships Through Chronic Illness." It is for BOTH the #caregiver & the #pwME/ #pwLC/ etc. . https://t.co/XlNxoIjtSX
#FamilyCaregiver

[#MEAction Network @MEActNet]

Have you signed up for our Halloween art workshop yet? It will be October 29th at noon ET- all online & free to join! https://t.co/XLLbEjSxXf

Orion Romero, a #pwME, educator, artist, & MEAction volunteer, will be hosting! Thank you, Orion!

Join in & have fun! Register now!

[#MEAction Network @MEActNet]

MEAction's next #caregiver support call is Oct. 17 at 1:30 pm ET.

We welcome caregivers of people w/ chronic diseases such as #MyalgicEncephalomyelitis (ME), #LongCOVID, #MCAS, etc!

To join the calls, please email [email protected] at we will get you set up!

[Bateman Horne Center @BatemanHorne]

Join “Coffee” with a Clinician: Assessment & Management of Cognitive Impairment.

Explore cognitive symptoms and practical strategies.

Wednesday, October 14 | 10:00 am MDT

Register: https://t.co/Sl31siln5A

If Zoom reaches capacity, watch live on our YouTube channel.

[#MEAction Network @MEActNet]

The ME/CFS Exchange Webinar Series launches Thursday- Oct. 8th!
First in the series will focus on post-acute infection symptoms.
1 pm to 3 pm ET via Zoom.
Registration required: https://t.co/YqAILqJu7v

Hosted by NINDS in partnership with MECFSnet.

#NIH #PwME #MECFS

[AAPD @AAPD]

Voter registration deadlines are quickly approaching! 11 states have voter registration deadlines today. Check your registration status or complete your registration at https://t.co/W8l36Y7FWr.

[#MEAction Network @MEActNet]

Two new webinars from Denise Lopez- Majano & Kim Moy!

"Things We Caregivers Wish We Had Known" w/ Denise on Nov. 1 at 3pm ET.

“Being on the Same Team: Strengthening Relationships Through Chronic Illness” w/ Kim on Nov. 15 at 3 pm ET.

Registration coming soon!