Perthes.org

Committed to raising awareness and ongoing advocacy for Perthes Disease.

[CDC @CDCgov]

This #MemorialDay, CDC honors and remembers the men and women who gave their lives in service to our country.

[Perthes.org @LCPerthes]

#GivingTuesday may be over, but end of year giving is just beginning! So, we have more content lined up for you! Listen to Dr. Scott Rosenfeld discuss best practices to set your child up for a successful transition from pediatric to adult ortho care:
https://t.co/6u6yUtV2ia

[Perthes.org @LCPerthes]

We are not done with #GivingTuesday just yet! There is still time left to donate at: https://t.co/3pPbPVutRz

[Perthes.org @LCPerthes]

How many ways can a hip be preserved? LIsten to Dr. Woody Sankar talk about hip preservation after Perthes is past the final stage and considered healed. https://t.co/9ZJ78vu3Aq

[Perthes.org @LCPerthes]

So, why does the femoral head collapse? Tune into listen to Dr. Benjamin Martin of Children's National: https://t.co/qopP6O0z5S

#GivingTuesday #PerthesDisease

[Perthes.org @LCPerthes]

As part of our ongoing #GivingTuesday series, tune in to Dr Jennifer Laine of Gillette Children's discussion about "What Causes Perthes?". Please also consider a charitable donation to our registered 501c3 #GivingTuesday ----> https://t.co/sWHztsjbtz

[Perthes.org @LCPerthes]

On #GivingTuesday, we want to give something to YOU! From the 3rd Annual Perthes Conference, Dr. Harry Kim of Scottish Rite Hospital for Children, discusses findings and future studies the International Perthes Study Group is researching. --> https://t.co/6nCQUP05bU

[Perthes.org @LCPerthes]

Do you know who inspires us? Michelle Rector of Run 50x60 for Perthes! Her 24th (!!) marathon is along Route 66 and we can get her nominated for her hard work & inspiration! Do it today!! https://t.co/0VkySlQHTL

#perthesdisease #perthesdiseaseawareness #route66marathon #route66

[Perthes.org @LCPerthes]

This was our shirt for the Conference this year. Whatcha think?!

[Perthes.org @LCPerthes]

3rd Annual Conference is underway!

[Perthes.org @LCPerthes]

Some martial arts for our Perthes kids! 🥋

[Perthes.org @LCPerthes]

Go to https://t.co/BpEAQ6bKbG to join us live!

[AFL Barwon @AFLBarwon]

Henry‘s had a tough 12mths after being diagnosed with Perthes disease, but that hasn’t stopped this amazing kid from continuing his footy with @LaraFootball @aflauskick. We are so proud that he walked on stage to present the medal, something that he was determined to do!

[Perthes.org @LCPerthes]

How important are anti inflammatory foods? What about nutrition and weight management (esp as it relates to pain) while fighting a rare disease? Caitlin Allday, RDN, will be presenting about all these topics and more! @caitlinallday_rdn

https://t.co/7NOKTXq6BC

[Perthes.org @LCPerthes]

How are adults doing with the effects of Perthes Disease as a child? If you are one of those adults and have yet to join the study, please do! Recruitment is over the course of year, but don't delay! https://t.co/VZpdFfuRrG

[Perthes.org @LCPerthes]

Rachel Goldstein, MD, MPH is the Director of the Hip Preservation Program at Children's Hospital Los Angeles, an IPSG member and a Board member of PKF. Dr. Goldstein will be on the panel to answer your questions in Dallas! https://t.co/ygAJHtq8Ic

[Perthes.org @LCPerthes]

Webinar Alert - Tomorrow! **

More gene therapy knowledge from NORD! After decades of research and development, gene therapy is becoming a clinical reality in the US. With the first gene therapies already approved and many more in the pipeline - https://t.co/5PVYo4Vu1j

[Perthes.org @LCPerthes]

We have a ticket that has been gifted to next weeks Confernece! Email [email protected] to claim it today!

[Perthes.org @LCPerthes]

Joining the Perthes Conference is Dr. Jennifer Laine of Gillette Children's Specialty Healthcare. Dr. Laine is also the Associate Medical Director of Research and attends conferences around the globe to talk about Perthes! https://t.co/mChos4y4As

[Perthes.org @LCPerthes]

We are just 13 days away from gathering in Dallas! Reach out for more info stat on travel grants for the 3rd Annual Perthes Conference.

Email: [email protected]