LDA Research

International Medical Market Fieldwork and Consultancy

[LDA Research @LDAResearch]

🎧 Season 2 of Rare Together is here! 🎧

Don't miss out on the inspiring stories from Taylor and Wendy, as well as other guests featured in this brand-new series!

Listen here: https://t.co/NjqpEMUF1a

[LDA Research @LDAResearch]

All six episodes of Season 2 of Rare Together are out NOW! ✅

Each episode explores the impact of different rare diseases, and we are honoured to share our participants' stories with you.

If you need to catch up, please visit our podcast page here: https://t.co/NjqpEMUF1a

[LDA Research @LDAResearch]

In today's world, a great medical device needs more than functionality—it must be thoroughly market-tested. Our blog explores how medical market research testing drives innovation and improves healthcare solutions. 📝

Read more about this here: https://t.co/YJG20p68E6

[LDA Research @LDAResearch]

Episode 6 of Rare Together is out! 🎧✅

Tune in for Milla and Milly's stories. Milla shares her journey with Leber's Congenital Amaurosis (LCA) and Autism/ADHD. Milly discusses Sporadic Hemiplegic Migraines, POTS, and more.

Listen here: https://t.co/NjqpEMUF1a

[LDA Research @LDAResearch]

New episode alert! 🚨

Milla shares her journey with Leber's Congenital Amaurosis (LCA), while Milly discusses her battle with various conditions. 🇸🇪🇬🇧
Topics include neurodivergence, navigating diagnoses, and more. 🗣️💬

Listen here: https://t.co/NjqpEMUF1a

[LDA Research @LDAResearch]

Those affected with rare diseases often have to overcome many obstacles to access the care/treatments they need, one of these being locational setbacks.

We explored this in-depth in Ep 6 of Rare Together with Milla & Milly, which is out NOW!

Listen here: https://t.co/NjqpEMUF1a

[LDA Research @LDAResearch]

Check out Episode 6 of Rare Together! 🎙️

Meet Milla from Sweden, who will share her journey with Congenital Amaurosis (LCA), and Milly from the UK, who will discuss her experiences with various rare conditions.

Listen now: https://t.co/NjqpEMUF1a

[LDA Research @LDAResearch]

Providing care for a loved one with a rare disease can make self-care challenging.

In Episode 5 of Rare Together, Joyce and Jane discuss Schwachman-Diamond syndrome, and Jane emphasises the importance of self-care for optimal support. 🗣️🎙️

Listen here: https://t.co/NjqpEMUF1a

[LDA Research @LDAResearch]

Episode 5 of Rare Together is here! ✅

Hear Joyce and her mother, Jane, discuss Schwachman-Diamond Syndrome. Joyce shares insights on managing SDS at school, while Jane delves into parenting concerns and the importance of genetic testing.

Listen here: https://t.co/NjqpEMUF1a

[LDA Research @LDAResearch]

How do you care for your child when you suspect they might have a rare disease? 💭

We explored this in Ep 5 of Rare Together with Joyce and her mother, Jane, who joined us to talk about their experiences with Schwachman-Diamond syndrome.

Listen here:
https://t.co/NjqpEMUF1a

[LDA Research @LDAResearch]

Episode 5 of Rare Together is OUT NOW! 🎧

Joyce and her mother, Jane, share their journey with Schwachman-Diamond syndrome with us. From managing her symptoms at school to navigating life with a rare disease, tune in to hear their story.

Listen here.👇
https://t.co/NjqpEMUF1a

[LDA Research @LDAResearch]

Episode 5 of Rare Together is out tomorrow! 🎧⏳

15-year-old Joyce was diagnosed with Schwachman-Diamond syndrome (SDS), and her mother, Jane, joined in to talk about their experiences.

Tune in tomorrow on YouTube, Spotify, or Apple Podcasts. 👇
https://t.co/NjqpEMUF1a

[LDA Research @LDAResearch]

Life with rare diseases has challenges but brings unexpected positives.

In Episode 4 of Rare Together, Dawn and David share their journeys. David's diagnosis brought a new perspective to life, while Dawn has a newfound appreciation for life.

Listen here: https://t.co/NjqpEMUF1a

[LDA Research @LDAResearch]

In case you missed it, Episode 4 of Rare Together has just been released! 💡

Dawn from Canada and David from the USA join us to discuss how their rare diseases have impacted their lives and their ripple effect on loved ones. 🇨🇦🇺🇸

Listen here. 👇
https://t.co/NjqpEMUF1a

[LDA Research @LDAResearch]

Episode 4 of Rare Together is here! 🎧

Tune in now to hear how Dawn and David manage their rare diseases, including their experiences of having to educate HCPs about them and the strategies that have helped them navigate this process.

Listen here. 👇
https://t.co/NjqpEMUF1a

[LDA Research @LDAResearch]

Rare Together Episode 4 is out TOMORROW! 🎙️

We talked to Dawn with Hypogammaglobulinemia, Hemiplegic Migraines, and Pituitary Adenoma, and David with Acromegaly, Diabetes Insipidus, and Adrenal Insufficiency.

Catch up on previous episodes. 👇
https://t.co/NjqpEMUF1a

[LDA Research @LDAResearch]

In case you missed it, Episode 3 of Rare Together is OUT!📱🎧

We chatted with Hannah, a computer scientist from Germany who was diagnosed with FLNA deficiency. 🇩🇪

Tune in to hear her inspiring story!

Listen now! 👇
https://t.co/NjqpEMUF1a

[LDA Research @LDAResearch]

Have you caught Episode 3 of Rare Together yet? 🎧

Join us as we chat with Hannah from Germany about her journey with FLNA Deficiency, a rare genetic disease impacting her organs, muscles, joints, and mobility.

Listen now! 👇
https://t.co/NjqpEMUF1a

[LDA Research @LDAResearch]

Episode 3 of Rare Together is OUT NOW! 🎙️

Hannah, diagnosed with FLNA Deficiency in 2022, shares her journey with us. Navigating repeated explanations of her rare disease to healthcare professionals, among many other topics.

Listen here.👇
https://t.co/NjqpEMUF1a

[LDA Research @LDAResearch]

Ep 3 of Rare Together is out now!

Meet Hannah, a talented Computer Scientist from Germany, diagnosed with FLNA Deficiency in 2022. She shares her journey with this rare disease, impacting her organs, joints, muscles, and mobility. 🇩🇪💻

Listen here. 👇
https://t.co/NjqpEMUF1a