The Lambert-Eaton LEMS Family Association @LEMSFamily - Twitter Profile

The Lambert-Eaton LEMS Family Association @LEMSFamily

about 3 years ago

Our thanks go out to Desiree, Director of Patient Advocacy for the nonprofit, attending Rare Disease Day On the Hill events and representing the interests of LEMS patients everywhere!

LEMSFamily's tweet photo. Our thanks go out to Desiree, Director of Patient Advocacy for the nonprofit, attending Rare Disease Day On the Hill events and representing the interests of LEMS patients everywhere! https://t.co/kOPXqL56rb

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The Lambert-Eaton LEMS Family Association @LEMSFamily

about 3 years ago

Thanks to Team LEMS for volunteering to get the word out at the MDA Clinical & Science Conference in Dallas this week. L to R, Grace, Lori, Tracy, and June. Thank you all!

LEMSFamily's tweet photo. Thanks to Team LEMS for volunteering to get the word out at the MDA Clinical & Science Conference in Dallas this week. L to R, Grace, Lori, Tracy, and June. Thank you all! https://t.co/5gsUbYE7JK

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The Lambert-Eaton LEMS Family Association @LEMSFamily

about 3 years ago

Team LEMS Today at the MDA Clinical & Science Conference in Dallas. Meeting everyone and talking about LEMS! L to R Grace, Lori, June, Tracy, Price.

LEMSFamily's tweet photo. Team LEMS Today at the MDA Clinical & Science Conference in Dallas. Meeting everyone and talking about LEMS! L to R Grace, Lori, June, Tracy, Price. https://t.co/B0lSOunku9

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The Lambert-Eaton LEMS Family Association @LEMSFamily

about 3 years ago

We were incredibly excited to have our name and logo appear in Times Square along with all these other wonderful organizations on Rare Disease Day. It's all about spreading the word!

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Who to follow

Lambert-Eaton News

@lemsnews

Your source for Lambert-Eaton news, support, & real stories from the community. Let’s raise Lambert-Eaton awareness together!🎗️

Travere Therapeutics

@TravereRare

Our mission is to identify, develop and deliver life-changing therapies to people living with rare disease. #InRareForLife https://t.co/uEe4xuJzww

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The Lambert-Eaton LEMS Family Association @LEMSFamily

over 3 years ago

We're continuing to work in Washington, DC for Rare Disease Day! Desiree is working two additional days to advocate for LEMS patients.

LEMSFamily's tweet photo. We're continuing to work in Washington, DC for Rare Disease Day! Desiree is working two additional days to advocate for LEMS patients. https://t.co/QReXwCimgK

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The Lambert-Eaton LEMS Family Association @LEMSFamily

over 3 years ago

Packing bags and getting ready to travel to Times Square in NYC for Rare Disease Day. We will be there representing LEMS and all rare diseases at the NASDAQ stock exchange closing bell ceremony, recognizing Rare Disease Day on Tuesday.