منظمة متلازمة لي-فيروميني

منظمة متلازمة لي-فيروميني للأورام الوراثية موجهة للمصابين وعائلاتهم @LFSAssociation - فرع المملكة العربية السعودية

[منظمة متلازمة لي-فيروميني @LFSA_Arabic]

الآن منشورة منظمة لي فيرميني للأورام الوراثية متوفرة بالعربي! https://t.co/1PraekO6zV

[منظمة متلازمة لي-فيروميني @LFSA_Arabic]

@CelebsArabic ءش

[د. أم الخير أبو الخير @DrOmAlkhair]

التغذية السليمة عنصر أساسي للوقاية من أنواع عديدة من السرطان ، وهنا تحدثت عن شيء منها :

[MHCC_SA @mhcc_sa]

Dr. Kevin Zbuk from @McMasterU discuss
CHIP associated P53 mutations has a small risk of hematological neoplasm and cardiac diseases. #MHCC #GCchat
د. كيفن يناقش وجود احتمالية ضئيلة لسرطان الدم للمصابين بمتلازمة لي فيرميني ولذلك يجب زيارة مختص بالأورام الوراثية أو مستشار وراثي!

[LFS Association @LFSAssociation]

Presenting our Fall Youth newsletter! Be sure to check out the interviews and info about our second Youth Connect, happening Saturday, September 18th! Our presenter, Camella Rising, wants to hear more about what you want to learn. Fill out the survey: https://t.co/zFmDps89ev.

[LFS Association @LFSAssociation]

• Is there any preferred vaccine for any particular variants of LFS?
• Are booster shots recommended for those with LFS, cancer patients undergoing treatment, cancer patients not undergoing treatment?
• Do those with LFS, yet otherwise very healthy, need to be vaccinated?

[LFS Association @LFSAssociation]

Some questions that will be answered include:
• Have there been any reactions from the vaccine on those with LFS, or those who are mosaic?
• Are there any studies or data that support it is safe for an LFS patient to get the vaccine?

[LFS Association @LFSAssociation]

Join us today (8/24) at 1pm EST to learn about the COVID-19 vaccines & LFS! Drs. Schiffman and Maxwell will be hosting a webinar for #lifraumenisyndrome families to share insights on the COVID‑19 vaccines and concerns within the LFS community.

Register: https://t.co/yE6nHOlGZE

[LFS Association @LFSAssociation]

The latest edition of the LFSA Youth Newsletter is out! Our Youth and Young Adult program chair Cameron Block publishes a Youth Newsletter every quarter to keep Youth Participants informed about what is happening with the LFSA. Check it out at https://t.co/jqC8rERu1J

[LFS Association @LFSAssociation]

Learn more about some of his research and our French chapter at https://t.co/AF09GURIeA. #LFSAwarenessMonth

[LFS Association @LFSAssociation]

We are thrilled to announce a new event for our Youth & Young Adult Program: LFSA Youth Connect! This is a quarterly virtual event for our LFS youth/young adult participants to learn from and engage with a medical expert in the LFS field and make new friends with other LFS youth.

[LFS Association @LFSAssociation]

The LFSA-Saudi Arabia booth at the Saudi Cancer Association Survivor Day in 2019! @LFSA_Arabic #LFSAwarenessMonth

مشاركتنا في اليوم العالمي للمتعافين الذي تم تنظيمه من قبل الجمعية السعودية للسرطان

[LFS Association @LFSAssociation]

LFSA-Saudi Chapter serves individuals from Saudi Arabia and the Arab world to spread awareness about cancerous tumors associated with Li Fraumeni Syndrome. They are led by genetic counselor Lamia Fahad Alsubaie (who chose the date of our p53 awareness day!) @LFSA_Arabic

[LFS Association @LFSAssociation]

This week, we highlight the incredible work of our international chapters! Each chapter is led by a medical professional, chapter chair, & Youth Program chair. Tune in this week as we share about the LFSA around the world! #LFSAwarenessMonth @LFSA_ANZ @LFSA_Arabic @lfsa_canada

[منظمة متلازمة لي-فيروميني @LFSA_Arabic]

إن تشخيص متلازمة أورام وراثية سرطانية مثل متلازمة لي-فيرميني هو تشخيص صعب على كلا من المريض والطبيب على حد سواء.
لذلك ندعو العاملين بالمجال الطبي ومرضاهم لزيارة صفحة منظمة لي-فيرميني https://t.co/VHzN4r5FOl
#يوم_التوعية_بمتلازمة_لي_فيرميني

[LFS Association @LFSAssociation]

This inaugural awareness event is dedicated to the founding fathers, Drs. Frederick Li and Joseph Fraumeni. This week, we will be highlighting their story and some of the historical events and medical advancements that lead to our knowledge of #LFS today. @theNCI #LFSAwareness

[Jenn Perry @EquiholicJenn]

@LFSAssociation @theNCI So thankful for work of our incredible founding fathers!

[LFS Association @LFSAssociation]

Ever wondered about the history of LFS? Check out our timeline to learn more about its discovery! #LFSAwareness #LiFraumeniSyndrome #LFSAwarenessMonth #CancerGenetics
@NCIEpiTraining @theNCI @DanaFarber @drgglozano @AchatzIsabel @SickKidsNews

[LFS Association @LFSAssociation]

Too few people know about Li-Fraumeni Syndrome, which predisposes people to a range of often rare and early on-set cancers. Learn how patients and families can find more and better opportunities to connect, share knowledge, and access solutions. Visit https://t.co/IwAI7kWeF9!