The LGD Alliance Europe is dedicated to patient support, advocacy and research to find treatments and cures for lymphangiomatosis and Gorham's disease.
DISH
A friendly reminder! Our monthly
The DISH (Drop in and Share) support group will meet on Saturday, August 13 at 10:00 am Eastern Time! Join here: https://t.co/2wN5bXeOCo
@LGDA_EU
Looking forward to this conference on Vascular Anomalies in Brussels from 31 Jan to 3 Feb 2023, organized by the @VACure1 network! Deadline for abstract submission 15 Nov 2022.
https://t.co/giPk05C98G
Join Taylor and Liz, moderators for LGDA’s support groups, on their @NotSoRarePodcast as they share their experiences.
·https://t.co/YthR3atV8f · https://t.co/CoRZyylSVn...
@LGDA_EU
@NotSoRarePodcast
https://t.co/n64YBUFP7J Sophie Ferry explains how research funded by Million Dollar Bike Ride has changed her life.
Please help team LGDA, LMI and LGDA Europe raise funds for life changing research for those living with complex lymphatic anomalies @LGDAlliance@LGDA_EU
Dr. Michael Dellinger to present "New Diagnostic Tools and
Treatment for Central Lymphatic Abnormalities". A webinar series on complex lymphatic anomalies. Watch the recorded webinar. (link to
https://t.co/Sg2SRbrnxG)
@LGDA_EU#rarediseases#czinitiative#RareAsOne#CZIscience
Bikers Wanted! Plan on attending UPenn’s 2022 Million Dollar Bike Ride on June 11th. Don’t forget to register at https://t.co/HhABiFWIi7
Can’t attend in person, there is a virtual spin class on June 6th at 7:00 pm.
@LGDA_EU#MBDR2022
Today is #LGDAwarenessDay! Join our celebration! Become a member and make a small monthly contribution that will enable us to keep working to support, educate and give hope to patients with CLA's and their families. Become a member here: https://t.co/aGmE9PGLPw
The Orphan Disease Center’s MDBR Young Investigator grant is a $25,000 award that supports early career researchers pursuing research ideas related to lymphatic anomalies.
https://t.co/tPBTLfB0N3
#MDBR2022#UPENN#research#rarediseases@LGDA_EU
You can also support Team CLA Warriors in the 2022 Million Dollar Bike Ride event. Want to know how? Download the Team CLA Warriors toolkit here:
https://t.co/iC43CbaBwC
Share your experiences finding medical care for vascular anomalies in a study being conducted by
Bryan Sisk, MD and Anna Kerr, PhD.
Must be over 18 years of age or older. Open to US and non-US participants. Questions – Contact
(link https://t.co/PQLFt1NW1r)
@LGDA_EU
We are gearing up to better treatments and cures: The LGDA Europe is joining forces with LGDA USA and LMI to support Team CLA Warriors in the 2022 Million Dollar Bike Ride event. Get involved and be part of the MDBR here: https://t.co/Vv3PY5pBpQ
Special Topic Support Group
May 28 at 11:00 am Eastern Time
Sponsored by the Young Adults and Millennial Support Groups. This special support
session is dedicated to family planning and reproductive health.
Register Today! https://t.co/EVCss2irvV
@LGDA_EU#rarediseases
Share your experiences finding medical care for vascular anomalies in a study being conducted by @Sisk_MD and @DrAnnaKerr
Must be over 18 years of age or older. Open to US and non-US participants.
https://t.co/PQLFt1wl9T
@LGDA_EU#rarediseases#WUSTL
We're proud of the work our patient advocates are doing for the patient community, and we're looking forward to hearing about the #ISSVA conference. @hevas_nl@CMTCOVM@LGDA_EU
Come, ask questions, and share your experiences! Join us for our DISH monthly support group on Saturday, May 14 at 10:00 am ET. Open to our global CLA community of both patients and parents.
https://t.co/2aiALuy9HN
@LGDA_EU#rarediseases#supportgroups