Founder Lobular Breast Cancer Alliance. Writer. Former political hack. Living w/ #lobular#breastcancer & #ovariancancer. Cancer Research Advocate. Tweets mine
Dear #cancer researchers ... How are you engaging w/ patients & patient advocates at your institutions? Are they a last minute box to be checked on your grant proposals? Or are they partners in your research? #PatientEngagement#PatientAdvocacyMovesScience ๐๐๐
Great video @LobularBCA. I have seen #lobular cancers missed on screening mammography be detected on MRI, CEM, MBI and US. Although access may be limited, supplemental screening for #ILC may be key, especially for those with #densebreast tissue.
https://t.co/KdAIbZJ3qy
๐ก#breastcancer and the #PTEN hamartoma tumor syndrome (PHTS, previously #Cowden): screening with MRI led to the detection of cancer in 7 women/39 enrolled. All early-stage, all ductal (no #lobular). Median FU: 4 years. No benefit of adding mammography. https://t.co/vHn0B9ujpN
Fantastic presentations and great posters by trainees - everyone put great effort into it. ๐. Collectively more evidence for #lobular being a distinct breast cancer that deserves more studies. And need to move findings into clinical trials! @neil_carleton_ @Adrianvlee
Following quite a spectacular Patient Advocate led Session this morning we have an even more Spectacular Key Note Speaker #DAY2 Sabine Linn is now speaking
'Toward Precision Medicine for ILC'
#ILCSymposium#Utrecht