Vestibular Illness Advice & Support

Author | BSC Psych (Hons), PTA | Ambassador for Vestibular Disorders Association @vestibularveda

[Vestibular Illness Advice & Support @LabyrinthitisR]

To all my followers - I have been quiet for the last couple of months due to a shocking & unexpected change in my diagnosis. I have been unsure how to deal with it but I am back and ready to raise awareness about the damage of misdiagnosis. Read my story: https://t.co/bZPzArVbgw

[Vestibular Illness Advice & Support @LabyrinthitisR]

@Lulu_Helle Thanks Lulu! Issues at your own birth..forceps delivery etc

[Vestibular Illness Advice & Support @LabyrinthitisR]

Migraine sufferers! How many of you ever had a significant blow to the head/ neck/ back or had a difficult birth?

[Rebecca Evans @Rebecca71766596]

Would really appreciate if anyone who has experienced a migraine in the last year and is over the age of 18 years could fill out my MSc Dissertation questionnaire, which explores peoples experiences of migraines and how they are managed.

https://t.co/jasoDRP6Yu
Customize Link

[Vestibular Illness Advice & Support @LabyrinthitisR]

A journalist is writing an article for the New York Times about living with chronic dizziness. Please help him collect data if you have time #dizzy #chronicillness #vestibular
https://t.co/uRNQ4BVJcc

[Vestibular Disorders @vestibularveda]

You've probably heard that magnesium supplements may help people with vestibular migraine, but did you know that there are several different types of magnesium? Dizzy Cook, Alicia Wolf, shares her research on this topic. https://t.co/lQA6E8ct8x

[Vestibular Disorders @vestibularveda]

Congratulations to Jodi Leffue for raising awareness about Mal de Debarquement Syndrome by walking in the Drumstick Dash. Walking is one of the few things that makes her feel at peace in her rocking world. She wants to raise awareness so others don't... https://t.co/LrfCa3xShx

[headsUPmigraine @headsUPmigraine]

#Migraine is the LEADING cause of #disability for people under 50, but SSA's OFFICIAL policy is that it's "rarely" disabling. Migraine costs Americans more yrs lost to disability than all other #neurological diseases COMBINED but is only neurological disease not covered by SSA.

[Vestibular Disorders @vestibularveda]

"It can be challenging to make decisions with unpredictable health. The uncertainty of fluctuating symptoms and fatigue makes it difficult to plan ahead and keep commitments." The Seattle Dizzy Group shares some resources to help you when making... https://t.co/Qin86FWnPW

[Vestibular Illness Advice & Support @LabyrinthitisR]

Listening to a discussion just now on @TodaySOR about inner ear illness, their doctor just responded to a question from a listener saying qoute 'physiotherapy (VRT) does NOT work for #vestibularmigraine, it only works for #BPPV!!' Shocked to say the least #uneducated #vestibular

[The Center for Balance and Dizziness @cincibalance]

Attention Migraine Sufferers. #migraine
https://t.co/6gsI9Gzx73

[Vestibular Illness Advice & Support @LabyrinthitisR]

@reelyrocking The Vestibular Disorders Association

[Vestibular Illness Advice & Support @LabyrinthitisR]

The next online support group is Monday October 15th at 7pm GMT. Everyone is welcome! For anyone unsure about being on a web camera, you can also join in without a web camera similar to a phone call. Register your interest here: #vestibular
https://t.co/h8FU7qfFvh

[Vestibular Illness Advice & Support @LabyrinthitisR]

Many people with #vestibularillness also experience #anxiety #panicattacks & #depression. There are many causes; both biological & environmental e.g. loss of self reliance. The psychological aspect must be addressed with the sufferer to aid recovery #MentalHealthAwarenessWeek

[Vestibular Illness Advice & Support @LabyrinthitisR]

The #vestibularsystem is not only responsible for balance, but also how the brain processes sensory information from the eyes and inner ear. When the vestibular system is weak, sufferers experience increased symptoms in busy environments with lots of stimulus e.g. shopping malls

[Vestibular Illness Advice & Support @LabyrinthitisR]

@NESN A diagnosis of 'vertigo' is never a diagnosis in itself but the symptom of a bigger problem! Glad he's better.

[Vestibular Disorders @vestibularveda]

“Vestibular Migraine is one of the most prevalent causes of dizziness in the United States, is underdiagnosed, and causes significant impairment of quality of life,” concluded the authors of a recent research study. https://t.co/1exEMsZalA

[Vestibular Disorders @vestibularveda]

"Vertigo or dizziness is not something you have to live with," says Sheila Barrett, a physiotherapist from east Cork, Ireland. Thank you, Sheila, for raising awareness so people who are undiagnosed can get help. https://t.co/T7qdEudmrM

[Vestibular Disorders @vestibularveda]

As if being a new father and having Meniere's disease isn't enough, Glenn is also supporting a wife through cancer treatment. Our hopes and prayers are with you, Glenn.
Mind over Meniere's https://t.co/4ARjK7eBmt

[Vestibular Illness Advice & Support @LabyrinthitisR]

@juxstaposing Good for you @juxstaposing 👌

[Vestibular Illness Advice & Support @LabyrinthitisR]

If you are attending a healthcare professional for #vestibularrehabilitationtherapy, always ensure they are adequately trained. If they are not, at best you are wasting your money. At worst they are prolonging your recovery or maybe making you sicker! #balanceawarenessweek2018

[Vestibular Illness Advice & Support @LabyrinthitisR]

Currently the only qualification the APTA recommends for physical therapists is through Emory University in the US, even for Physiotherapists outside America. Check your therapist is properly qualified & performs diagnostic & functional vestibular tests at your 1st consultation