@Squeeze1i ,Could this be why all the people I know that have autism say I have autism? I also know I have ADHD – my psych diagnosed me with it, but refused to prescribe any meds because of all the meds I’m already on 😳🙄(EDS, MCAS, POTS etc)
@NeurologistMom This makes me want to scream. My mom didn’t push, and now, at 43 I’m taking care of her after she took care of me for years after a TBI! EDS, MCAS, POTS- the trifecta! And later we both were dx with RA, Endo, Gastroparesis, and multiple heart conditions. But it’s all in our heads
@gymrat_bookworm Gurrrl my mom was ready to have IVUS surgery this week BUT insurance denied her!!! I’ve been following you & also Cortney for quite some time & I’m ready to go to battle with them no matter what her repeat Venus insufficiency test says- she has STAGE 5 & is dx w/vascular eczema!
If you have a Gmail account, you need to read this.
Google's AI now scans your emails and attachments, bank statements, tax files, medical letters, all of it. It turned on by default, and there's a class-action lawsuit over how.
Here are 5 moves to shut it off, the switch is hidden in two places:
I'm a cardiologist. A 42-year-old mother of two came to my office complaining of jaw pain and crushing fatigue. She ran half-marathons. Her EKG was normal. Another doctor had sent her home with anxiety medication.
When I got her into the cath lab, I found severe microvascular disease — plaque choking the tiniest vessels of her heart, the ones standard angiograms routinely miss.
Her heart had been starving in silence while everyone told her she was stressed.
She is alive today. Too many women like her are not.
Heart disease kills more women than every cancer combined. And medicine is still diagnosing it through a male lens.
84% of cardiologists report having patients in the past year whose heart disease was misdiagnosed by another physician. Women with a STEMI heart attack have a 59% greater chance of being misdiagnosed compared to men. Women with an NSTEMI — 41% greater chance.
The reason is structural. For decades, we screened, tested, and treated women using a template built for men.
Men's heart attacks announce themselves — the crushing chest pain, the clutched fist, the Hollywood collapse. Women's hearts whisper. Crushing fatigue that feels like wearing a lead vest. Jaw pain written off as TMJ. Nausea blamed on a stomach bug. An ache between the shoulder blades blamed on a long week. Shortness of breath blamed on being out of shape.
For years, medicine called these "atypical" symptoms. They are not atypical. They are female-typical. Half of humanity is not a variant.
And the biology runs deeper than symptoms.
Women have smaller hearts and narrower coronary arteries. Plaque doesn't only clog the big highway vessels — it hides in the microvasculature, the tiny branches feeding the heart muscle itself. A woman can have a heart attack with a completely "clean" standard angiogram.
SCAD — spontaneous coronary artery dissection — occurs 90% of the time in women. Often young, fit women with zero traditional risk factors. It's the leading cause of heart attack in women under 50, accounting for roughly one quarter of all cases in that age group. Most doctors have never diagnosed one.
And some of the most dangerous cardiac risk factors are hidden in women's medical histories where no one thinks to look:
Preeclampsia or gestational hypertension doubles to quadruples lifetime heart disease and stroke risk. Pregnancy is the body's first cardiac stress test — and these complications are early warning sirens, not closed chapters.
Autoimmune disease — lupus, rheumatoid arthritis, psoriasis — far more common in women, turbocharges inflammation and plaque formation at any age.
Cardiovascular disease in women aged 20-44 is projected to surge nearly 50% by 2050.
The youngest patients in my practice keep getting younger.
What every woman should ask her doctor — and what every doctor should be asking:
"Given my pregnancy history, autoimmune status, and family history — what is my full cardiovascular risk?" If they don't ask about preeclampsia or gestational diabetes, volunteer it.
"Should I have an Lp(a) test and a coronary calcium score?" Standard cholesterol panels miss too much. Lp(a) is genetic, one-time, and most women have never been tested.
"My tests came back normal but my symptoms haven't stopped — what's next?" Normal stress tests and angiograms can miss microvascular disease, spasm, and SCAD. Persistent symptoms warrant coronary CT angiography or cardiac MRI.
And if something feels wrong — say these exact words to your doctor: "I am concerned this could be my heart."
That single sentence changes the workup. Do not soften it. Do not apologize for it.
80% of heart disease is preventable. But the playbook has to be built for female biology.
Two decades ago, I wrote one of the first books warning that heart disease was the number one killer of women and that medicine was diagnosing it through a male lens. It was recognized by First Lady Laura Bush at the White House during the early years of the national conversation about women's heart health.
I'm haunted by how much of that book I could republish today unchanged.
The science has advanced. The awareness has grown. But the gap between what we know and what happens in the exam room is still costing women their lives.
Share this with every woman you love — and every doctor who treats them. READ MORE: https://t.co/4LRugiY8q2
This healthcare administrator got sick and tired of being sick and tired, so I've spent the last year of my life researching, getting assessed and treated for hypermobile Ehlers-Danlos Syndrome complications and co-morbidities. This work became urgent after COVID and Lyme worsened my mast cell degranulation and hypermobility. My story is 20 years in the making, having endured medically withdrawing from a doctorate program, four hospitalizations, dozens of doctors and medications, and upcoming endovascular stenting next Tuesday.
I have watched this heritable condition disfigure my mother, almost kill her from two pulmonary emboli, and from suffering a severe migraine during driving, which almost killed us both in a very severe car accident when I was in high school.
I worked with ChatGPT to develop this table to help patients and providers familiarize themselves with all the ways hEDS can affect their organ systems.
I hope people find this to be helpful!
@TheEDSociety@BluesteinLinda@jdibon@ImmunoFever@NorrisLab
NY Post: The unpredictable disease attacking women 5 times more than men — doctors only study it for ‘one minute’
'The disorder? Mast cell activation syndrome (MCAS)..occurs when mast cells...responsible for allergic response — overstimulate & misfire..'
https://t.co/gqCiA36ysA
Saw a patient today with a hemoglobin of 1.9 g/dL. For context, a level that low is almost incompatible with normal consciousness, but she walked right into the clinic on her own feet.
For three long years, she lived with crushing weakness and since last 6 months breathlessness from just walking across a room. Why didn’t she get help sooner? At first, it was because the kids had crucial school exams and later her husband was reluctant to deal with the hassle of a hospital admission.
Her health was treated as a background inconvenience.
When we dug deeper, it got worse. A year ago, her Hb was 6.4 g/dL. A doctor explicitly told them she needed immediate admission. The family refused, walked out with a basic strip of iron tablets, she took them for two weeks, forgot about them, and nobody in the house ever bothered to check on her or remind her.
She didn't even come to the hospital today because of the air hunger. She came because her periods had completely stopped for months. Her body was so profoundly starved of iron and oxygen that it literally shut down her reproductive axis just to divert what little blood she had left to her heart and brain.
It’s completely heartbreaking. A woman will literally bleed her body dry, gasp for air for years and keep working silently, only to be brought to a doctor when her normal functioning stops.
Please check on the women in your homes. Stop letting them normalize chronic exhaustion.
@gymrat_bookworm I found a physician that blood patched the CSF leak that 3 previous drs argued I didn’t have -
Including a neurosurgeon and an ENT - curing my severe vertigo, migraines and trouble swallowing