Liams Lodge

A new children's respite, step-down and palliative care support centre for Ireland's children affected by complex, rare-genetic & life limiting conditions.

[mykidstime @mykidstime]

This month our Charity is @Saoirse_Fdn Ireland's National Children Charity for Rare & Genetic Disorders @BeeForBattens, @LiamsLodge + @BUMBLEance are 3 amazing projects making positive life impacts. Find out more at https://t.co/eVDBzYlGaj PLS donate ➡️https://t.co/XHRYGWio7e

[HSE Ireland @HSELive]

If you are out & about and it is difficult to practice #SocialDistancing, you should wear a cloth face covering. This includes places like shops or public transport. By covering your nose and mouth you are protecting people around you and helping our fight against #coronavirus.⁣

[Rare Diseases Ireland @RareDiseasesIE]

“Children become totally disabled and eventually lose all bodily functions” - Saoirse & Liam Heffernan's parents tell their story of their 2 children who had Batten Disease and how this inspired them to establish @BeeForBattens @BUMBLEance @LiamsLodge @Saoirse_Fdn @NoahontheRun

[HSE Ireland @HSELive]

The COVID Tracker app is now available to download. It will help in the fight against coronavirus. Download the COVID Tracker app here: https://t.co/CUrWQ9QVvj

We’ll protect your privacy, and you’ll help us protect everyone. Stay safe. Protect each other.

#COVID19 #StaySafe

[Liams Lodge @LiamsLodge]

Our thoughts are with the Crowley family at this sad time.

[Tony Heffernan a DAD @BeeForBattens]

Very very sad news today, our very dear friend and the ultimate gentleman, Liam Crowley sadly passed away.

https://t.co/HB4J81eQYa

Liam was a founding member of the @Saoirse_Fdn and until 2019 our esteemed Chairperson.

#Friend #Mentor #FellowAngelParent #HeavensGain

[Liam Mulcahy @LiamMulcahyTSM]

My adventure with @BUMBLEance has come to an end due to work commitments. Delighted to have been able to help the charity out during the peak of the Covid 19 pandemic to keep the wheels rolling and getting kids to their appointments safely . Emotional but rewarding time

[HSE Ireland @HSELive]

As we enter #PhaseTwo continue to leave no one behind, supporting those on the frontline & essential services, and the people most at risk across the country. We remember that we're #InThisTogether as a community.
#StaySafe and protect each other #HoldFirm 🌈#COVID19

[Batten Disease @BattenDisease]

Liam Heffernan was diagnosed with Batten Disease before his 2nd birthday. Liam was a courageous little fighter, with a deep love of dinosaurs. He could always be found carrying his toy Long Neck. In 2013 Liam became the first-ever child to travel on @BUMBLEance
#BattensDisease

[Tony Heffernan a DAD @BeeForBattens]

Our family, torn in half by #BattenDisease

[Batten Disease @BattenDisease]

Born in 2005, Saoirse Heffernan was energetic, full of life & famous for her huge hugs. Saoirse proved that a hug and a little love can make every situation a little better! Every day was an adventure for Saoirse. #battenday2020 #BeeforBattens #Saoirse #childhood

[Liams Lodge @LiamsLodge]

#JobFairy #Kerry #MakingPositiveLifeImpactsForSickChildren

[Liams Lodge @LiamsLodge]

Please share https://t.co/3tHHNA96YU

[Tony Heffernan a DAD @BeeForBattens]

I understand the intention here by @WhispersNewsLTD to highlight this travesty

Having buried my two children the "proper" respectful way, right others should of had.

But of all the means of highlighting this shameful event, this approach is simply WRONG https://t.co/WuSDLKir3N

[Tony Heffernan a DAD @BeeForBattens]

Our lads special place looking bright yesterday for Liam's birthday, looked even better after those extra special people added even more flowers and dinosaurs for our #LittleLiamo.... I think the skull of the T-Rex would have been his favorite, truth be told! #foreverfive

[Tony Heffernan a DAD @BeeForBattens]

What a day! 4 flights Ulsan to Seoul to Istanbul to Dublin to Kerry arrived home to bacon and cabbage followed by the #grandslam2018 and #TripleCrown on #StPatricksDay

#HappyDays

[Tomás Ó Sé @tomas5ky]

Brilliant signed print and 2 All Ireland football tickets being auctioned off here. ALL money raised will go to @BUMBLEance. Thanks to @ChrisOSull77 for print and lads for getting involved. Will go to highest bidder after two weeks 🏐💪🏼🙏🏼

[Tony Heffernan a DAD @BeeForBattens]

Today is #RareDiseaseDay2018 we remember our two children Saoirse and Liam who we lost to #BattenDisease please share to raise awareness

[Liams Lodge @LiamsLodge]

1st draft 3D images of our new centre for #Irelands sickest children. Get your company, business or yourself involved.... [email protected]

[Liams Lodge @LiamsLodge]

Rt https://t.co/QQPbMyW6iK

[22Q11 Ireland @22Q11_Ireland]

13 chromosomal disorders you may not have heard of https://t.co/wXQRCSRFh9

[Liams Lodge @LiamsLodge]

As when Liams Lodge is built there will be two BUMBLEance's based onsite. https://t.co/cWBLLTQJFy

[Liams Lodge @LiamsLodge]

Get your 2018 BUMBLEance Calendar today for just €7.50 (incl. postage). 100% of the profit goes directly towards sick BUMBLEance Kids thanks to our fantastic sponsors Mothercare. Order via T: 083 0044444 or W: https://t.co/lyQoiAAEyr
#LoveBUMBLEanceKids