Liberate Life is Sobi’s vision for the future of haemophilia. This platform shares inspiring stories and useful resources about living life beyond haemophilia.
As the days get shorter and the winter chill starts to set in, many of us battle the cold and wind to go about our daily tasks. 🌬️❄️
But imagine facing the severe snow and wind at the top of the Alps!
That's the immense challenge that seven brave people from the haemophilia community took on. In an incredible mountain trek, this group – made up of individuals living with haemophilia or supporting those who do – set out to scale the highest peak in the Alps.
Their journey, captured in the documentary "Mountains we Carry; Mountains we Climb," is a powerful testament to resilience, community, and defying expectations. The severe weather only highlights the intense physical and mental barriers they overcame.
Visit https://t.co/jFrpKLCval to hear their inspiring, snowy story and find out how they challenged their limits and what they achieved together.
The experiences discussed are personal and may not reflect those of all people living with haemophilia. Please talk to your healthcare team about what is possible for you. Liberate Life is a disease awareness campaign developed and funded by Sobi.
A good appointment starts long before you walk in the door. The difference between a quick chat and a truly productive conversation about haemophilia management often comes down to asking the right questions.
Ready to make your next appointment the most effective one yet?
This guide can help you frame those crucial questions. 👉 https://t.co/5ej3G3JT3i
The experiences represented may not reflect those of all people living with haemophilia. Please talk to your healthcare team about what is possible for you. Liberate Life is a disease awareness campaign developed and funded by Sobi.
They did it! ⛰️ Alex, Ross, and Josh successfully completed the brutal #FanDance trek.
But this is more than just a physical challenge. These three young men, all living with haemophilia, sat down for a vodcast to share what it truly takes to push limits – both physically and mentally.
They get deeply honest about joint health, the strategies they use to integrate physical activity into their lives, and the motivation required to aim high, regardless of the hurdles. Their journey proves that a diagnosis doesn't define your capacity for adventure.
Click the link to learn more about their powerful, unmissable story! 👇
https://t.co/FzEmLhUNYS
The experiences discussed are personal and may not reflect those of all people living with haemophilia. Please talk to your healthcare team about what is possible for you. Liberate Life is a disease awareness campaign developed and funded by Sobi.
🌳 Happy National Tree Week! 🌳
This week is a wonderful reminder of the incredible beauty of trees, woodlands, and forests across the UK.
Just like a strong forest ecosystem, we all need support to thrive. Being out in nature – whether it's a brisk walk through a park or a quiet sit amongst the trees – is truly fantastic for both your mental and physical wellbeing.
This connection with nature is crucial for everyone, especially for those in our community living with haemophilia.
Mental Wellbeing: Nature can help reduce stress and anxiety, promoting calm and focus. 🧘 Physical Wellbeing: Gentle exercise like a woodland walk can support joint health and overall fitness, important factors in managing haemophilia. 💪 So, this National Tree Week, why not take a moment to #GetOutdoors and enjoy the natural world around you? Your mind and body will thank you!
Visit https://t.co/06v1uWUUyI for tips on how to stay healthy and active with the condition. #NationalTreeWeek
Please talk to your healthcare team about what is possible for you. Liberate Life is a disease awareness campaign developed and funded by Sobi.
Growing up with haemophilia, Josh was encouraged by his parents not to let his condition hold him back.
Their unwavering support helped Josh face the challenges of participating in sports during his school years, instilling in him a foundation of resilience and determination.
🎥 Experience Josh's resilience as he faces The Fan Dance.
The experiences discussed are personal and may not reflect those of all people living with haemophilia. Please talk to your healthcare team about what is possible for you. Liberate Life is a disease awareness campaign developed and funded by Sobi.
A phenomenal group of young people living with haemophilia recently conquered one of the UK's most gruelling endurance tests:
The Fan Dance – a tough 24km trek over the highest mountain in Bannau Brycheiniog National Park (formerly the Brecon Beacons), Pen y Fan, complete with a punishing 1,180 metres of ascent and descent.
Their incredible feat wasn't just about finishing the route; it was about sending a powerful, life-affirming message to others in the haemophilia community: "Yes, you can do it." 🌟
Visit https://t.co/FzEmLhUNYS to learn about the group's inspiring journey.
The experiences discussed are personal and may not reflect those of all people living with haemophilia. Please talk to your healthcare team about what is possible for you. Liberate Life is a disease awareness campaign developed and funded by Sobi.
Hobbies like photography can be a wonderful way to capture life’s moments and boost wellbeing. Living with haemophilia, finding activities that bring joy and fit your needs is part of reimagining your story.
Speak to your healthcare team about what's possible for you. Ready to explore new passions and live fully? 📷
👉 https://t.co/1bcrsawHHR
Liberate Life is a disease awareness campaign developed and funded by Sobi.
Living with haemophilia, joint bleeds can be painful, frustrating, and affect more than just how you move.
Discover practical tips to protect your joints and speak to your healthcare team about what's possible for you.
👉 Read more: https://t.co/IwAbMrCq3L
#JointHealth #LiberateLife #HaemophiliaSupport #HealthyJoints #StayActive
The experiences mentioned are personal and may not reflect those of all people living with haemophilia.
Liberate Life is a disease awareness campaign developed and funded by Sobi.
With the help of preventative treatment, Helen can focus on everyday moments with her son Charlie, rather than his condition.
The active life he leads offers a fresh perspective for families affected by the condition, highlighting the potential for a future filled with hope and everyday moments.
Speak to your multi-disciplinary team about what's possible for your child. https://t.co/xWqdTlT8QZ
The experiences mentioned are personal and may not reflect those of all people living with haemophilia.
Liberate Life is a disease awareness campaign developed and funded by Sobi.
#BackToSchool #HaemophiliaAwareness #ReimagineYourStory
As light and dark balance on the Autumn Equinox, it’s a powerful moment to pause, reflect, and release. 🍁
If you’re living with haemophilia, what if this season you let go of what’s been holding you back — and reimagined your story with intention and purpose?
Speak to your healthcare team about what's possible for you.
🌿 https://t.co/1bcrsawHHR
#AutumnEquinox #HaemophiliaAwareness #LiberateLife
*Liberate Life is a disease awareness campaign developed and funded by Sobi.
Looking back, Paul remembers the school days and sporting moments he missed because of haemophilia.
Watching Charlie now live a full, active life brings him a deep sense of joy - and serves as a powerful reminder of how far haemophilia treatment and care has come.
Today's advances are unlocking new possibilities for the next generation.
Speak to your multi-disciplinary team about what could be possible for your child. For more, view this page https://t.co/xWqdTlTGGx
The experiences mentioned are personal and may not reflect those of all people living with haemophilia.
*Liberate Life is a disease awareness campaign developed and funded by Sobi.
Living with haemophilia, talking openly with your care team can make a valuable difference. Shared decision-making means your voice matters, and together you can shape the care that’s right for you.
💬 Not sure where to start? This simple guide can help you turn your thoughts into questions for your clinician:
https://t.co/5ej3G3JT3i
#LivingWithHaemophilia #HaemophiliaCare #PatientVoice
*Liberate Life is a disease awareness campaign developed and funded by Sobi.
Today is the National Day of Encouragement, a great reminder of what’s possible. 💫
Regular movement can help maintain a healthy weight, boost confidence, and strengthen the muscles around your joints, helping to protect against injury, bleeds and long-term damage. Speak to your healthcare team about what is possible for your child.
Every small step counts — and encouragement can go a long way. 💪
👉 https://t.co/ZcHhIpxbwr
#NationalDayOfEncouragement #HaemophiliaAwareness #keepmoving
The experiences mentioned are personal and may not reflect those of all people living with haemophilia.
*Liberate Life is a disease awareness campaign developed and funded by Sobi.
Living with haemophilia, understanding your bleed protection is a great step towards living more confidently. For many, today's treatments mean less joint pain, a lower risk of bleeds, and the chance to enjoy everyday activities with fewer compromises: https://t.co/zFfDRlyOoX
Happy Parent Day! We're celebrating the incredible journey of parents raising children with haemophilia. Listen to Paul, a father of a young boy with haemophilia, share his experiences and insights:
https://t.co/emgB4epwbb
Today's #InternationalSelfCareDay! 💫 For those with haemophilia, self-care is key for overall wellness, as is feeling empowered in managing your health.
Make the most of your chats with your healthcare team to get the care you need and deserve: 👉 https://t.co/G5A9qTCPVS
Living with haemophilia, exercising can be a game-changer 💪 It strengthens joints, reduces bleeds, and boosts your mood.
Always chat with your haemophilia team before starting any new routine.
Ready to get moving safely? Find out more: 👉 https://t.co/O0d7hxfqBF
Did you know that factor levels above 40% are considered to be near that of a person without haemophilia?
This short video explains the concept and how it could make a difference to your protection, confidence, and everyday life.
👉 https://t.co/zFfDRlyOoX
Feeling like you want to make the most of these longer days? Our Liberation Quiz can help you pinpoint the areas of your wellbeing you'd like to focus on. Your haemophilia care team can provide tailored support to help you hit your personal goals.
👉 https://t.co/r5Y0HDR9ol
Living with haemophilia means looking after your joint health – the key to enjoying everything summertime has to offer. 🏄♂️ Find simple tips to protect your joints and enjoy an active, feel-good summer: 👉 https://t.co/vHpQMfuv3m