Liza Kramer

mom, native miami beach-er, CF fundraiser... desperate for a #CFcure.

[Emily's Entourage @EmilysEntourage]

The 2024 video is here: the story of a woman w/big eyes, a burning desire to live & a fatal disease that threatens it all. Now there's promising hope on the horizon, so for the first time ever—she dares to dream. Will you #DAREtoDREAM w/us?! >>> https://t.co/HlvtRprzM9

[Julie Wertheimer @JulieWerth]

I am thrilled to be part of Mayor-elect @PeopleforParker’s Transition Committee! Together, we're working non-stop to ensure a seamless transition to City Hall. Let's build the diverse, effective, and technically proficient administration that our city deserves. (1/2)

[Emily's Entourage @EmilysEntourage]

Earlier this week, EE’s Co-Founder Emily Kramer-Golinkoff presented at the Research Partnership Maturity Model Interactive Workshop hosted by @fastercures, a Center of the @MilkenInstitute. Emily discussed how EE deploys its financial resources to drive #cf research!

[Emily's Entourage @EmilysEntourage]

In recognition of #RareDiseaseWeek, we are excited to launch our “ExtraordinRARE” campaign!

Read more >> https://t.co/kmmkBWj0Hc

We are grateful to our Tier 1 Rare Disease Week campaign sponsor, @VertexPharma.

#ExtraordinRARE #RareDiseases #rarediseaseday

[Emily's Entourage @EmilysEntourage]

Sending a HUGE thank you to our Philly Marathon 🏃🏽 #sponsor, @FirstrustBank

Team EE has been training and every dollar raised is a step closer to our ultimate finish line: fast breakthroughs and a cure for 100% of the CF community.
Visit their website >> https://t.co/WG1LkWX2yI

[Emily's Entourage @EmilysEntourage]

Have you been thinking about signing up for an 8k, half marathon, or full marathon? Could you use some accountability and camaraderie? 🙋🏽 🙋🏻‍♂️ 🙋🏼‍♀️
Join #TeamEE for the 2022 Philadelphia Marathon and let’s get training! 👟 👍🏼 >> https://t.co/RuHp9NOGXV

[Emily Kramer-Golinkoff @emilykg1]

Big things are happening. Be part of it on Oct 13. Mark your calendars!

[Emily's Entourage @EmilysEntourage]

EE maintains a patient registry of people with nonsense mutations of #cysticfibrosis. If you have at least 1 nonsense mutation, consider joining our patient registry to learn about clinical research opportunities! https://t.co/xFJvkYDTwV #CFAwarenessMonth #crossoutCF

[Emily's Entourage @EmilysEntourage]

If you want to understand what it's like to breathe with #cysticfibrosis, try breathing through a pinched straw! You'll quickly notice how hard it is. Imagine living each day breathing like that. #CFAwarenessMonth #crossoutCF

[Emily's Entourage @EmilysEntourage]

Despite the remarkable progress, the median age of death for people with #cysticfibrosis remains 34.1 years old. That is far too young. We can do better, we must do better, and we must move fast! #CFAwarenessMonth #crossoutCF

[Emily's Entourage @EmilysEntourage]

EE is seeking unique virtual auction items for our annual gala – think: pitch meetings with biz leaders, script reviews with pubs, social follows from celebs, & more! Quirky or unconventional items are more than welcome.

Email us at [email protected] with your ideas!

[Emily Kramer-Golinkoff @emilykg1]

"We believe that people with passion can change the world for the better....and those people that are crazy enough to believe they can change the world, are the ones that actually do." (trying to forget Elizabeth Holmes' defaming of the quote) https://t.co/3iWrD7I5Ma

[Emily's Entourage @EmilysEntourage]

Time to bring out your 9-iron, Tri-State area friends! The Zack Bassin Memorial Golf Outing is happening on Fri., May 20 at the Putnam County Golf Course (Mahopac, NY). All proceeds benefit EE. Learn more and register >> https://t.co/V1tG9xxgnS

[Emily Kramer-Golinkoff @emilykg1]

Wonder if I will ever be able to go back to Europe https://t.co/FOOO8IAY4y

[Emily's Entourage @EmilysEntourage]

#tbt to 2017 when we produced this video explaining why EE is laser-focused, completely fixated, borderline OBSESSED with “the final 10%.” Hear it from Emily >> https://t.co/QHXQYmlQof

[Emily Kramer-Golinkoff @emilykg1]

Refreshing article on innovation & the value of diverse funding | "Anyone can identify Karikó in retrospect, given her persistence & her eventual discoveries. But what do we do right now to find the 2022 versions of Karikó" now?https://t.co/K98DNAQdp5

[Erin Moore @ekeeleymoore]

Let’s Be the Light for the Final 10% of People With CF: A blog post by yours truly, dedicated to @emilykg1 and the rest of the #CF community still waiting for their miracles. Join me! https://t.co/yCHzt0i1RU
via @EmilysEntourage

[Emily's Entourage @EmilysEntourage]

Our co-founder @emilykg1 spends 4-5 hours PER DAY on #cysticfibrosis medical treatments ... That's more time than a full marathon! Run the @Philly_Marathon on behalf of her and ALL people with CF ➡ https://t.co/rPu5jNiUIN

[Emily's Entourage @EmilysEntourage]

We're celebrating 10 years of progress, purpose, and the powerful insistence that "almost" is not enough. Mark your calendars for Dec. 4 at 7 p.m. EST for our annual Evening with Emily's Entourage gala! This one’s a big one, Entourage, and you won’t want to miss it! #EEPowerOf10

[Emily's Entourage @EmilysEntourage]

Shoutout to all of the family members of those with #cysticfibrosis! You are the unsung heroes in the fight against this disease. 💜